Muscular Dystrophy
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Developmental Dyspraxia
the coordination difficulties are not due to a general medical problem such as cerebral palsy or muscular dystrophy and do not meet the criteria for ...
Answers
- Hi N.! While it is very hard to see your children go thru these things, with a diagnosis your efforts can be more targeted and effective...so that's a good thing! ...
- pay close attention to the following info....I had my son in speech therapy by the time he was 2 years old for being language delayed....I feel that one on one attenti...
- Very importan tthat you try vision therapy. Check Vision Associates on CHerry Hill. near Hill. Also stimulating the shen men point on his ear can help. Check downloa...
Hypotonia and Delayed Motor Development
She had every test in the world the doctors were sure she had muscular dystrophy . She had the biopsy showed nothing wrong. They told me she wouldn't ...
Answers
- Hi L.: My son had hypotonia as well. I was living in DC at the time and also had the county health department services (billed on sliding scale). I called them when...
- I believe hypotonia is low muscle tone. My son had it as well. A physical therapist and/or occupational therapist could help her. I know some people who have also used...
- My daughter was diagnosed with hypoyonia at 6 months old . She didn't sit till 13 months didn't walk to 18 months. She had every test in the world the doctors were sur...
Chicken Pox Vaccine Necessary?
I was glad that they got the shot becuase my son has duchenne muscular dystrophy and when he gets sick it takes a long time for him to feel better. ...
Answers
- Both of my kids had the chicken pox vaccine and it wasn't bad for them because after they got the shot they where exposed to the chicken pox and they didn't get it eit...
- I would absolutely recommend this vaccine! We decided not to get it for our second child due to so many allergies and we were afraid he may have a reaction. He was s...
- Hi A.. I have an understanding that it's not necessary to have a shot and it's something we all go through as youngsters. My son will be 20 in August and a daughter th...
Has Any One Seen This Before
Just after my son was born I was diagnosed with Limb-girdle Muscular Dystrophy. It is a very rare condition and dispite years of tests and specialists they ...
Answers
- Did you have an epidural? I've heard of strange things like these happening from nerve damage. Other than that I don't know..
- K., I can see you have received quite a bit of response to your request, so I'll make this short and respond to your medical condition. Ask your doctor if your sympto...
- I hope you find this timely information. I have in the last year discovered a wonderful world of alternatives to doctors advice and medicine. I have a fantastic Chir...
Long Term Care
I am 46 years old have 3 healthy boys and I have Spinal Muscular Atrophy 3..( SMA3-Muscular Dystrophy)I was also on the advocacy committee for ALTCEW (Aging ...
Answers
- DO NOT be afraid to express your concerns to the doctors and staff. One thing I have learned is "Call them on their care" and don't be afraid to ask for what you want....
- It's a difficult transition, from being in this critical stage of the disease to one of remission. From being the center of every healthcare professional's attention ...
- KS, I fully agree with you and I think this decline in apparent consideration and bed side manner may stem from frivolous lawsuits. Doctors are nearly paranoid o...
Therapies for Autism and How to Pay for Them
Our first foster child had something similiar to Muscular Dystrophy, he couldn't speak well, pointed at everything when we got him. He was on Medicaid and ...
Answers
- ECI is great, we have used them 2 times with our own Son and a foster child with Sensory Issues. I would continue with ECI cause they have a sliding scale and work wi...
- ....We just had our son diagnosed about 9 months ago with PDD/NOS and he is on the milder side of the autism spectrum. We are going to be putting him in the school sy...
- I am a single mother a son that just turned 4 last month and he is also on the Autism Spectrum along with Sensory Integration Disorder with Speech and Motor Skills del...
Feeling Confused and Scared Carrying Twins?
I have not had twins, but I did have a very difficult time the last trimester of my last pregnancy due to the muscular dystrophy I have AND a broken foot. ...
Answers
- I know how you feel, I had no idea where to start when I was told I was having twins. I have not figured out on this website how others have responded but if you haven...
- Good Morning, I personally don't have twins but some of my friends do. There is an Eastside Moms of Multiples group that covers the Seattle area. Their Web site i...
- Hello K., First, congratulations! When my husband and I decided to have 'a' baby we had no idea that it would mean two babies. We also had no family history of twin...
Anyone 'Donated' Cord Blood Before?
Muscular Dystrophy * Parkinson's Disease * Spinal Cord Injury * Stroke. Helpful? Yes | No Save This Remove This Report This Share ...
Answers
- I banked my daughter's cord blood through Viacord when she was born 17 months ago at Loudoun Hospital. My doctor was agreeable to my banking of my daughter's cord bloo...
- Actually we ended up saving our baby's cord blood due to the fact that heart problems run in my husbands family and they are doing amazing things with these cells and ...
- I did. Well, I didn't donate it - meaning I'm having it stored for my family's use. I delivered my son at Reston, and Cord Blood Resgistry is the company I used. Th...
Living Far Away from Extended Family...
Plus, my mother has Muscular Dystrophy and I know she eventually won't be able to travel or get around on her own and I want to spend as much time with her ...
Answers
- We, also, live far away from all of our family. One thing I did for my boys was that I made magnets with all of their cousins, aunts, uncles with their pictures on ea...
- My husband is from England, where all of his family lives (except for his brother who lives in Germany), so I can totally relate. We use a program called Skype. It's...
- R., My husband has a very large family also and to keep up with everyone once a year we have our family reunion. Same weekend every year, same place usually. It works...
Stay at Home or Work Outside of Home
Our situation has been a little more challenging than most, in that our oldest son has Duchenne muscular dystrophy and needs our complete care. ...
Answers
- I say...follow your gut! Your children probably do need you, and what is more important in your life than your children? That is not something you'll want to regret wh...
- Hi F., That is a tough choice because I know you get lots of benefits from the military. You have to make your choice but I decided to be a Stay at home mom. We don...
- Hi! It's difficult to make that decision. I tried my hardest to spend as much time with my kids as they grew. I tweaked my hours at work all of the time so that I coul...
