Epilepsy Foundation
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Epilepsy
Asked by S.K. from Pittsburgh
on July 31, 2009
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I was wondering if anybody has had to deal with epilepsy in a child. We may have the opportunity to adopt a child with epilepsy & I don't really know anything about i...
Answers
- Hey S. I don't have a child with epilepsy, but I can tell you epilepsy is not a "one size fits all" disease. There is a broad range of seizure types, medications a...
- Hi S., My son is almost 3 and he was diagnosed with epilepsy in April. In the big picture, this condition has been far more daunting for mom/dad then for my son. He...
- I have a daughter with epilepsy. If you give me more details on the type(s) of seizures or the specific syndrome I can be of more help. I also have two healthy daugh...
Seizure Disorders and Epilepsy
Asked by A.O. from Colorado Springs
on July 25, 2006
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Just seeing if there are any moms around here that have kids with a seizure disorder or epilepsy.
Thanks'
A
Answers
- My daughter has epilepsy. Some days she has constant seizures every 1-2 minutes that last 5-15 seconds. On her good days she will have seizures about every 20 minutes....
- A.-My son is 71/2 yrs old.He is my youngest. He was born with Lissencephaly which means smooth brain. As a result of this he has siezures. We are currently have him on...
- A.: I do not have children with Epilepsy, but my brother has had Epilepsy for over 20 years. So, I can definitely be a source of support. I have started to do some ...
Help with Husband with "Epilepsy"
Asked by M.R. from New York
on October 28, 2009
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Hi,
I would like to know if anybody is dealing with a family or friend with epilepsy. I need some advise. I didn't know my husband suffer from epilepsy until 2 year...
Answers
- Can you do a little research online and find out more about epilepsy, especially what to do if he has a seizure? You seem very afraid of it and more information would...
- Hi M.! I work with a group of doctors that specialize in epilepsy. We have offices all over the tri-state area. Where do you live? Also, I am the Case Manager for the...
- There is a graet book called Epilepsy a Parent and Family Guide by Orrin Devinsky. Definitely check out the Epilepsy Foundation. Try not to worry that he will have...
My 8 Year Old Diagnosed with Epilepsy, Any Advice??
Asked by J.M. from St. Cloud
on August 3, 2009
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My 8 year old son was recently diagnosed with Epilepsy. He started having seizures about a month ago. They have put him on medication and he seems to be doing well wit...
Answers
- I had epilepsy as a child as well-I was diagnosed when I was about 8. I had a seizure while we were traveling by car on a family trip and I was asleep in the backseat...
- My now 8 year old was diagnosed with epilepsy when she was 2. We started noticing her really jerking in the evening after she fell asleep. We asked our doctor and he...
- J., I was diagnosed with Epilepsy about 9yrs ago as an adult. They never knew what was wrong with me, just that I had a seizure and than had another one when I too...
My 13 1/2 Month Old Has Epilepsy
Asked by E.M. from Sacramento
on February 28, 2008
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I have a 13 1/2 month old daughter that has epilepsy.. She was prescribed Phenobarbital.. Since we was told Feb 1st of 2008 she has had 2 big seizures... By big i m...
Answers
- Hi E.- I'll keep this short as so many others have provided the necessary information. My daughter had brain damage at birth. She has been diagnosed with CP, micr...
- Friends of mine have a 3 yr old son with cerebral palsy. He is also developmentally delayed, not walking and almost crawling, like your daughter. I'm not sure about ...
- My daughter doesn't have epilepsy, but she is in a similar physical situation. There are problems with the Motor Development part of her brain. She is 9 months old a...
Epilepsy (Seizure Disorder)
Asked by A.A. from Chicago
on July 11, 2007
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My 1 year old daughter has been experiencing simple partial seisures from about 11 months of age. Would like to know if anyone has experienced this type of issue with...
Answers
- I would suggest working with Epilepsy Foundation for Northeastern Illinois. They are great advocates with links to counseling, doctors and support groups. Please co...
- Hi A., Hugs to you and what you and your daughter are going through. My 6 year old son has complex partial seizures and has been on and off medication since birth fo...
- Hello, I would recommend going to a neurologist if you haven't done so already. My daughter had seizures as an infant and we went to Dr. Singh out of Hope Children...
Child Spacing Out
Asked by K.K. from Shreveport
on November 19, 2007
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I have an almost 21 month old little girl who has really been staring into space here lately. I've heard this could be signs of epilepsy or even autism. I don't see ...
Answers
- It is a good idea not to wait, but go ahead and have this checked out. If she is staring, does she respond when you call her name? She may be just fine, but it is be...
- K., I have a 12 year old son who was diagnosed with petit maul seziures when he was about 6 years old. It has been a long road but something that we have been able t...
- You have been given some great advise! I would make a Dr. appointment and keep track of her "spacing out". My husband has epilepsy - he had his 1st seizure at 27yrs ...
I Am Scared to Be Alone with My Son
Asked by A.K. from Houston
on July 25, 2011
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My poor son had a seizure last week, and has subsequently been diagnosed with epilepsy. I am scared to even look at him, for fear he will be seizing when I look at him...
Answers
- A., you need to talk to a counselor. Not wanting to look at your son because you are afraid to watch him seize is a real problem, and you have to get past this. You ...
- I am praying for you, your son, and your nephew....
- He can still swim and climb the play structure. You don't want to make an invalid of him. Not allowing him to play normally is being over protective and will cause h...
Seizures (Infants)
Asked by D.K. from Detroit
on June 23, 2010
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my eleventh month old was diagnosed with epilepsy at 6 months old she looked like she would be having these weird muscle spasms she had 7-10 in 3 days some at the hosp...
Answers
- I don't know where you're getting her treated. I strongly recommend the neurologists connected with Children's Hospitla, especially Dr.Michael Nigro. He talks very s...
- Try not to be discouraged. New medications are coming out every day. If your baby has only tried one type, ask about others. I am going to assume you are seeing a pedi...
- Wow this must be very stressful. If you can video tape the periods of time when she has the seizure or lost look. Our friends son had multiple seizures and they realiz...
Migraine Suffers Please HELP!!!
Asked by P.A. from Los Angeles
on January 18, 2011
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Had a bizarre skiing accident and collided with a snow boarder. Long story cut shot, I fell on the back of my head and felt that I had the wind knocked out of me. Luck...
Answers
- As a fellow migrain sufferer, I'm so sorry for your pain! I'm assuming the medication you are taking is specific to your injury? I take Maxalt and it works wonders.....
- Go see a chiropractor. Spine health is about total body health, not just your back. EVERYTHING is linked to your nervous system, thus your spine and brain. Most chi...
- Hi P., Even though the MRI showed everything was fine, it is possible there is a subluxation in your spine. Simply put, your nerves aren't firing right because some...
