Down Syndrom
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Down Syndrome
Read all 23 responses: "Hi ladies... Today I got a phone call from my doctors office and they told me that my blood work came back as the baby has down ...
Answers
- My understanding is that this test comes back with false positives FREQUENTLY. Your dr. should have told you that. Sigh. Relax, and don't worry until you've seen th...
- Hi C., That blood test is a "screen" which does not diagnose Down's but only tells the doctor (and you) to look more closely to see if it's there. I, personally...
- Hi C., I'm sorry that you are so scared about this. I have a son with Down Syndrome and I know it can be very scary. I'd love to talk to you if you need someone who...
Blood Test for down Syndrome
Read all 12 responses: "hi my name is lili and I'am 18 weeks pregnat I did the blood test for the down syndrome and it came back positive so I went to the ...
Answers
- Hi Lili, Just want to let you know that here in Boston they perform two blood tests in order to determine the chance of DS. They follow up the first blood test with...
- I have three children and I've never had the test done. I was told by all three doctors that often the first test has a false positive. If the one you just had done ...
- this happens all the time, the blood test shows that it is possible but the amnio is the real deal. I would not worry too much if the first result is normal. The 2n...
Pregnant with a down Syndrome Child
Read all 13 responses: "I am new to this site and was wondering if anyone had any advice on having a down syndrome child with a heart defect.
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- Congratulations on the birth of yoru daughter ! I am sure by now you are madly in love with her. Give us an update.
- Try finding an agency in your area that deals with special needs kids. I know there are a few here in Sioux Falls that have been very helpful. Also, once your child is...
- I’m 28 years old when I was 19 I had my son Kaycee. When I was told he had Down syndrome I was angry sad confused ….I had a hard time finding anyone that was close to ...
Down Syndrome
Read all 10 responses: "I had a first trimester ultrasound since I will be over 35 when my baby is born. They checked for all chromosomal deficiencies and ...
Answers
- Hello K., sorry you are dealing with this. Being pregnant is a challenge all on its own. I had the AFP test done, with 2nd pregnancy, I was 26, they sent me to counsel...
- K., My first son was born when I was 32. My AFP test was normal but one of the later ultrasounds showed some of the markers for downs. I can't remember exactly what...
- Hello K.. I haven't had any experience with this personally, but I wanted to offer you some comfort. When I was pregnant, I was in an online group (called March 2009 b...
My Baby Is Born with down Syndrome
Read all 27 responses: "Our boundle of joy had come, we are so happy to have our first baby, but we never expected to have Down Syndrome.
Answers
- Just to respond to a previous post, no, not everyone gets their fetus tested to see if it has downs. I have never done any testing other than a sonogram. Even if she ...
- The Down Syndrome Guild of Dallas was a life saver for me 21 years ago. I was the mother of 3 older children and not real happy to be 40 years old and the mother of a...
- I have two things - #1 http://www.our-kids.org/Archives/Holland.html #2 find an online support board specific to DS... there are several networks. *hugs* S.
Needing Help on Visitation with a Child with down Syndrome
Read all 16 responses: "My ex-husband and I have been divorced since '04 & it has just been in the past year he has wanted to see his kids.
Answers
- We go through this with the ex's as well. Both mine and My husbands. If you are worried call the police in your ex's town and reguest a welfare check. They will go s...
- pray about it. go with what feels right. if you pray and have a peaceful feeling that everything will be ok, then i wouldn't worry. if you feel like you should do some...
- There is an order called a protective order on behalf of a child (if you are in UT). It is for children who are being physically abused, even if it is a little sister....
Vitamin Therapy for down Syndrome
My newborn was diagnosed with Down syndrome. We have gotten some information on vitamin therapy for her. I would like to know how you go about getting the ...
Answers
- Hello my son is 18 months old, he has down syndrome and gets therapy weekly but i have never heard anything about vitamin SUPPLEMENTS. If u can pass me some info
- S., You might check with Nana's Pawpaw Patch on South Douglas (between Reno and SE 15th). They carry a lot of vitamins and other things that might be helpful to you....
- Congratulations on your new baby! I have 2 sons, our youngest has Down Syndrome & will be 2 on Labor Day. I did a lot of research on vitamin therapy and decided not...
2 Year Old with down Who Won't Eat After Surgery
I have a two year old son who is living with Down syndrome. ... I have a 2 year old with Down Syndrom also. She was having some eating issues a while back ...
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- Has he ever had a scope? Does he have food allergies? is that why he had adenoids and tonsils removed? I am wondering if he has Eosnophilic Esophagitis? Doe she ha...
- Hi B., While I don't have specific advice on your son's lack of food intake post-surgery... I did want to write and say I have a Down syndrome son so I can relate t...
- Dear B., My daughter's adenoids and tonsils were so big that she would not eat, only drink. She was not thriving. I took her to a specialist and we decided that on...
Need Advice on Possible Baby with a down Syndrome.
Read all 8 responses: "Hi mama's. I need help. I have a friend who just found out her baby "MAY" have a down syndrome. The ultrasound has shown a light in ...
Answers
- I have had the amnio (my choice), with both my pregnancies (both my kids are fine), and I am glad I did. I had my testing because I was 35+ years old, with each pregna...
- I would say no to the amnio it is a risk and even if the child has down syndrome which is highly unlikely I would not have the test. I would say have her relax the str...
- I would agree with her as far as not doing the amnio...there is only a slight possibility of the baby having Down's Syndrome and even if the baby does have it, there i...
Question About "Vanishing Twin" and Results of the Down's Syndrome Blood Work
Read all 11 responses: "I found out last week that one of my twins didn't make it. I am almost 36 and am about 14 weeks pregnant with my second child.
Answers
- Hi T., I had never heard of that until my niece and my cousin's wife both had that happen to them. Both at the early stages of their pregnancy's. They both went...
- after having the blood work also do the full scan. at our age (im 2years older then you) the do a secon level ultrasound that counts the bones. this plus the blood res...
- hi, i have not experienced this exactly-but as the twin of a sister who died inutero I just wanted to send you my thoughts and say that i survived. my mom was on f...
