Chiari Malformation
Related Questions & Answers
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Chiari 1 Malformation
Asked by K.W. from Cumberland
on March 31, 2010
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My son does not have Craniosynostosis he has Chiari 1 Malformation.
This is when the cerebrulum tonsels hang down into the spinal canal.
Does anyone know anything ...
Answers
- My mechanic's daughter just had the surgery to correct it last year (after years and years of terrible migraines... she's a teenager). What they did was to grind th...
- Here's one of many informational sites: http://www.cincinnatichildrens.org/health/info/neurology/diagnose/chiari-malformation.htm Good luck. I'll keep you and y...
- Hi, yes I know about Chiari Malformation because I have it and so did my cousin. My cousin had surgery about two years ago and she is doing well. She can do a lot o...
Arnold Chiari Malformation
Asked by N.E. from Las Vegas
on November 28, 2009
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Well where to start. I was recently diagnosised with arnold chiari malformation and wanted to know if anyone has any advice on it. I suffer with really bad headaches...
Answers
- My daughter had Type II Arnold Chiari Malformation (I'm assuming you are also Type II) and she had surgery to widen the existing opening at the base of the skull. She ...
- If you live in the LA or surrounding areas I have someone who might be able to help you. Email me back if you are interested
- I think Chiari Malformation can run in families. At least, I know a man with 5 kids and he and all of his children have it. He was not aware that Chiari can be hered...
Chiari 1 and Throwing Up?
Asked by A.H. from Los Angeles
on July 19, 2010
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mY 20 month old has Chiari 1 malformation. She just started throwing up at night only for the past 3 night. She is fine during the day. She has no fever or any other s...
Answers
- my sis in law is a ped. she says to see your doc it may be due to too much pressure on her head when she lies down. Seek your doctor asap.
- She could be having night terrors that stress her out. She could also have reflux. There are so many things she could have. But the best way to find out is to see a...
- I am so sorry that you and your daughter have to deal with this but it is good that you have a support group like mamapedia to go to. Do you think it could be migrains...
Need Some Advice
Asked by T.P. from Cleveland
on August 29, 2008
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recently my youngest daughter had surgery to put in a g-tube and she also had a nissen done. well we went for a month check up and the doctor has told me that she woul...
Answers
- It is likely they are thinking it may be hereditary and want to rule it out. We deal with ACM II so ours is a bit different. My son has spina bifida and this is a comm...
- Hi, T. - I have friends whose daughter made very little developmental progress related to speech. After consulting a number of doctors, they determined that she ha...
- Hi T., My 39-yr-old friend was just diagnosed w/ Chiari type-1. 5mm of the lower brain is protruding into her spinal column. This is something she was born with, b...
Anyone Ever Heard of This or Been Through This?
Asked by S.R. from Binghamton
on February 28, 2007
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My daughter has recently been diagnosed with Chiari Malformation. We were sent to CRouse Hospital to see Doctor Holesapple. We need to go back up 3 more times for test...
Answers
- I did not know what this condition is, so I found this interesting description on google: http://tinyurl.com/ytur2v. It seems that the outcome of surgical intervent...
- Hi S., Chiari Malformation is common in kids with spina bifida. My son has Spina Bifida but not chiari malformation. You may want to visit the Spina Bifida Associa...
- I found that the best source of information on any medical issues is Medlineplus.gov It's a website from the National Library of Medicine. I did search it and found a...
How to Tell Concussion in Husband Long After?
Asked by M.F. from Buffalo
on March 10, 2011
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We recently moved and my husband stayed behind to handle final arrangements. A month later he followed.
He just doesn't seem right. He does have multiple medical is...
Need Info......Please Help!
Asked by S.P. from Houston
on June 14, 2008
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I have just found out that my 7 yr. little girl has Chiari Malformation-1. I have been to some of the web sites and they all say surgery. I dont know anything about it...
Answers
- Here is a link that may be of use: http://www.or-live.com/memorialhermann/1327/ it's a webcast of a decompression surgery, for a Chiari malformation. (done here...
- There are excellent, top notch neurologists and Texas Scottish Rite Hospital for Children in Dallas. I know that's far, but the hospital and services, including surge...
- Hello S.- I'm so sorry that you and your family are going through this. While I don't have any first hand knowledge of this disorder I did remember that a family w...
Suggestions for a Fun Summer for My Kid's While I Recover from Surgery
Asked by K.G. from Chicago
on June 13, 2008
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I have been identified as having a brain malformation that will require neurosurgery this summer. Suddenly our water park and fun in the sun plans have changed. I have...
Answers
- A couple of suggestions.... Wii fit-- good exercise and it's a blast for all ages! Also, some indoor water parks if you're up to is, as well as gymboree or park distr...
- I was going to say set up a small pool outside, but the inside idea is great too! I bet your son has some fun ideas, ask him what he'd like to do. If your husband ...
- Good luck and I wish you a speedy recovery........... Michaels has a great stock up sale this week (ends today)with lots of items for $1.00. I went there yesterday a...
Surgery
Asked by I.M. from New York
on January 21, 2011
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Okay, here is my dilema. I've been diagnosed with Chiari Malformation since 2004. Due to too many reasons I have postponed this surgery for ever. I've been in consta...
Answers
- I loved Sue H.'s idea about writing them each a special note and leaving it for them! I think you have done an amazing job at preparing them. Props to you. My hub...
- Awwwwww....just get out some movies and all hang out together for a whole day, watching movies and having popcorn! Bets of luck with your procedure!
- Make your mother the person to spend time with you in the hospital when the kids are home from school so she doesn't send them round the bend. If she is driving the k...
Any Experience or Knowledge on Growth Hormone Therapy?
Asked by T.V. from New York
on December 17, 2008
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My 12 year old daughter is very small for her age. She was born with many medical problems, like missing a left thumb and abnormalities with her right thumb. She has h...
Answers
- Hi T., I don't have any recent experience with this. Growing up, my brother was on the short side, and growth hormones were a possibility that my parents really co...
- My best friends daughter has Turner Syndrome, a lot of your daughters symptoms sound similar to hers. She is almost 7 and she has been getting hormone shots for almost...
- Hi T., I'm sorry that your little girl has had so many medical concerns. What a very hard thing for her and the whole family. I'm afraid that I do not have any ...
