Angelman Syndrome
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Son with Angelman Syndrome
Asked by D.M. from Chicago
on January 19, 2011
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I have a 10 year old son with Angelman Syndrome. Looking to communicate with parents that have a child with angelman syndrome or think their child may have it.
Answers
- If you are involved with the school system, you may want to ask the teachers and social workers if there is aparent resource or parent partners program in your area. ...
- I'm going to try to get someone's info who lives very near and will private message you.
- I sent you a private message with some contact information for people and activities in the Chicago area. I hope you're able to find what you need!
Special Needs. Angelman Syndrome
Asked by J.D. from Cedar Rapids
on January 6, 2008
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My name is Karla and I was just looking to see if there was anyone here how has a child with special needs or even possibly Angelman Syndrome.
Answers
- I have a 13 yr old daughter with Turner Syndrome that was recently diagnosed with type 1 diabetes. I know very little about Angelman Syndrome. Is there a support gr...
- Hi my name is D. I have a thirteen year old son with an unknown diagnosis, he is a quadraplegic on a ventiolator 24 hours a day. I have never heard of Angelman Syndro...
- My name is N. and I have a daughter that was born in early December. While I was pregnant they found out that she had an enlarged ventricle in her brain. During the pr...
Special Needs Teenager
Asked by T.J. from Canton
on February 12, 2009
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Have any of you ever heard of Angelman Syndrome?
Answers
- Hi T.. Yes, I have heard of Angelman Syndrome. Do you need help with information?
- We have a young man at our church with angelman syndrome. I don't know much about it, but I do think it is a fairly new diagnosis and rather rare. He is now in a hom...
- T...Although my son does not have angelman(at one point his doctor thought he may have had it) I have heard of it. Does your son have it? I know it is very rare.~K.
Any Moms Out There Whose Child Has Noonans Syndrome
Asked by K.F. from Milwaukee
on December 20, 2006
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I recently found out my 15 month old daughter was dianosed with Noonans Syndrome. I want to know If there are other moms whose child has this. How early would you star...
Answers
- I am so sorry about your daughters diagnosis, it is trying to have a child that will have challenges. I lost a child in pregancy that had a rare disease (not this one)...
- I have never heard of this, sorry, but I would educate myself as much as I could if my child was dignosed! Go online or to the library, ask doctors questions, ect.... ...
- My heart goes out to you because I also have a special needs child. We don't have a diagnosis for her but we all think it's Angelman Syndrome. She doesn't talk or wa...
Baby Diagnosed with Dandy-Walker Syndrome (24 Weeks Pregnant)
Asked by D.A. from Minneapolis
on January 14, 2007
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I had written in 2 weeks ago regarding a problem that they had found with my ultrasound, there were spinal abnormalities. I had the level II ultrasound as well as the...
Answers
- Okay I know this is probably very scary to you! I would be too! But dont worry, no matter what your child is like you will love them the same. I havent had this proble...
- "Neurologic Abnormalities." The Merck Manual of Diagnosis and Therapy, edited by Mark H. Beers, MD, and Robert Berkow, MD. Whitehouse Station, NJ: Merck Research Labor...
- I'm so sorry that you are having to go through all of this stress. I have a 3 year old daughter that we think has Angelman Syndrome and she has some similar traits to...
VERY Worried Mother
Asked by A.R. from Denver
on November 27, 2006
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My 3 year old has a habit of jumping up and down and flapping his hands. I have NEVER seen another child do this and all my research tells me it is atuism or "Angelman...
Answers
- If your worried about it, I would suggest asking your Dr. and start reading. My son was diagnosed with Sensory integration when he was 3- similar to Autism. You migh...
- Hi A., The habit of jumping up and down and flapping his hands is called stemming. The way it was explained to me (my 13 year old stems and has done so since his t...
- Hi A. I have a special needs five year old daughter beautiful Victoria Rose she also flaps her arms and clasps her hands all the time I would talk to your Pediatrian ...
Just Wondering
Asked by A.R. from Charlotte
on December 27, 2006
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Is there any other parents in this group that have children with Angelman syndrome??
Angelman syndrome is usually not recognized at birth or in infancy since the de...
Answers
- Do you mean my playgroup? No, none that I know of. I'm afraid I dont know what Angelman syndrome is though, can you inform me?
- A., How did you find out about your daughter? My daughter is 6 and we are still not sure what she has. Angelman has been mentioned. Does she see a geneticist? Did she...
- Hi A., No i do not have a child with Angelman syndrome, however i do have a son that is Dyspraxic but i am curious could you tell me what Angelman's syndrome is and...
Ils Too Old/sick to Care Properly for Special Needs Niece and Nephew...
Asked by J.R. from Davenport
on April 8, 2008
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I have been told since the FIRST DAY I MET MIL, by her, that "ONE Day, when something happens to FIL and I , you four will have to take care of these kids (who were th...
Answers
- Whatever happens, get yourself involved in a support group for families of special needs kids ASAP. Even if you don't get custody, you are being asked to assist in a ...
- Are you sure that the kids are formally adopted? Usually, once an adoption is final, state funds stop unless the kids are entittled to SSI due to a parental death. I...
- Hi J. Will your MIL let you take the kids for a week at a time over the summer that way they get to really know you and your family rules and are familliar with them ...
Special Needs Moms, Would You Be Interested?
Asked by J.G. from St. Louis
on June 6, 2011
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After my post today I get the feeling there are a lot of moms who are raising special needs kids. I have this blog that I set up but never used. I could tweak it to ...
Answers
- I would be interested. My 4 yr. old grandson was evaluated for Sensory Integration Disorder or Sensory Processing Disorder, no telling what the DSM 5 will actually ca...
- That would be helpful - thanks for thinking of it!
- I'm interested too! My son has SPD and CP, along with global developmental delays. I'm always looking for other mom's I can relate to!
Amblyopia and the Patch - Help
Asked by R.L. from Dallas
on February 7, 2011
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Hi, moms! My daughter, Ashlee is 23 months and has Amblyopia. The doctor told me to patch the good eye for 2 hours a day but ASh doesn't want to have anything to do ...
Answers
- I'm going to bet it's a lot easier said than done, and I'm NO expert on a patch but have had to convince my child of unpleasantries from time to time. But here is one...
- Hi R.- I had this struggle some years ago with my developmentally delayed daughter. What I finally did was get those large bandaids, and her older sibs helped her ...
- Hi R., I have a 10 yr old son with Angelman Syndrome that we had to patch. It was difficult at first due to the fact he didn't like anything touching his face, inclu...
