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All Muscular Dystrophy Questions

Updated May 28, 2012

Q: Going Beyond Pull-ups for My 5Yr-old Boy with DMD    —Boulder, CO

"Gosh what a pleasent surprise to see a specific topic. Well, I have a special boy whom was diagnoses with DMD last sp..."

Answers:

From what you wrote I assume that your child knows something is going on with his health. I agree that he is probably too young to know everything about DMD and what i...

Wow, where do I start. I have a 13 year old boy with Duchenne Muscular Dystrophy, DMD, and we went through all sorts of fun when it came to potty training. I think h...

7 more answers >>

Q: Looking for Wheelchair Ramp Options for My Van    —Big Lake, MN

"I'm having a hard time figuring out what to get for my van to get my daughter in and out in her wheelchair. I can't ..."

Answers:

I have been in the field of developmental disabilities for years - I'll ask around for you with our folks in our 16 states where we serve - what state do you live in? ...

J. -- if your daughter is disabled she probably qualifies for a program called "birth to three" (that's wisconsin -- I think is it 'to five' in Minnesota). Ask your pe...

4 more answers >>

Q: How Would You Handle This??    —Denham Springs, LA

"Ok here is my problem. My youngest daughter has muscular dystrophy and has had several ear infections. We have seen..."

Answers:

I think you should email, fax, go see the other doctors especailly if the doctor u r seening is not doing his job. U have to do what is right for ur daughter, not sit ...

In a situation like yours, where something that in most cases would be simple could cause a major problem, I would simply tell the doctor that I'd like a copy of the n...

3 more answers >>

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