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All Cystic Fibrosis Questions

Updated Feb 10, 2012

Q: Carrier of Cystic Fibrosis    —The Colony, TX

"I am 12 weeks pregnant and I just found out I am a carrier of Cystic Fibrosis and that if my husband is also a carrie..."

Answers:

Hi M., My 8 yr old niece has CF and we found out when she was 2. No one in my family had ever even heard of CF until Makailyn was diagnosed. I will be honest, she h...

M., When I was pregant, I was 40, and a blood test showed a very high possibility for Down's Syndrome. I was 25 weeks pregnant and the doctor, for over two hours,...

16 more answers >>

Q: Moms Dealing with Cystic Fibrosis    —Union, MI

"i was just wondering if there were any other moms who are dealing with there children who have "cystic fibrosis""

Answers:

T., dealing with CF as you know is life changing! As a former Pediatric nurse I have seen how this changes a family. So, I would recommend talking to the nurse at you...

Hello T., I have a 13 month old son and we are actually going tomorrow for our sweat test study. So, I am hoping that I am not a mom that is dealing with CF. But, I ...

2 more answers >>

Q: Seeking Other Moms of Cf Kids    —Marysville, WA

"I am looking to talk with other moms of cf kids. I really don't have anyone else to talk to except family and friends."

Answers:

Hey! I have a son who is 4 w/o CF, and a daughter, 2 who has CF. She has been pretty healthy as well. I am a 35 year old stay at home mom, and I have been marri...

Hi D., I am an Independent Associate for USANA Health Sciences. There is an amazing story about one of our Associates who has two children born with Cystic Fibrosis. ...

3 more answers >>

Q: Anyone Moms Here Juicing Wheatgrass?    —Bella Vista, AR

"I am growing it ....juicing it .....it is not very good but I have been told it is very good for you. Anyone else her..."

Answers:

What little I know about wheatgrass, it is used for the digestive system. You may want to do some research on what wheatgrass is and how to use and benefit from it.

I buy Green Magma, Dehydrated Barly Grass juice (sold at Health food stores) that you mix 1-2 tbs. into white grape juice or any kind of juice. I have given it to my ...

3 more answers >>

Q: First-Time Mom of Child with Cystic Fibrosis    —Gordon, GA

"I was just wondering if anybody had any advice or tips that I need to know about raising a child with cystic fibrosis..."

Answers:

My brother in law has two children with CF. Listen very carefully to your doctors especially the respratory therapists! His children were kept out of day care until ...

I do not have any advise just wanted to send you an encouraging message! You sound like an amazing, loving mom and your daughter couldn't be any more lucky to have yo...

3 more answers >>

Q: Please Help    —Syracuse, NY

"My 3 week old daughter just had a test come back that states she may have cystic fibrosis or be a carrier. I am terri..."

Answers:

D., I have just finished that test myself with my 29 month old daughter. What tests have been done thus far? Keep your chin up... --T.

We also went through this when my son was born. We were sent for more testing... a blood test and a sweat test for the baby and blood test for my husband and I. The wa...

10 more answers >>

Q: Anyone Ever Test Positive as a Carrier for CF?    —Aurora, IL

"My husband and I are both confirmed carriers of the CF gene. We found this out during my pregnancy with my son. I saw..."

Answers:

Unfortunately, my sister and brother-in-law didn't know they were carriers. Their 2nd child was diagnosed with CF when he was 7. They have 3 children, the other 2 do...

My dad had CF so I am automatically a carrier. My husband got tested when I was pregnant with my daughter and, thankfully, he was negative. As you know, it is a rece...

5 more answers >>

Q: The GI DR Thinks My Baby May Have Cystic Fibrosis or Celiac    —Winchester, TN

"My daughter is 15 months old and we've been seeing a GI DR b/c she has a 'failure to thrive'. We are going for an end..."

Answers:

L., I have Celiac and its alot to deal with to start with, but it gets easier. Celiac disease is when your body doesn't process Gluten. Gluten is found in wheat, barle...

From your brief description, it seems there are other possibilities than just CF or Celiac. I have several friends whose children have Celiac disease, and well it can...

8 more answers >>

Q: Just Needing a Little Support from Other Moms Dealing with Cystic Fibrosis    —Sallisaw, OK

"My son was diagnosed last November, and I have yet to talk with any other moms who are dealing with CF. I would reall..."

Answers:

Hi, my name is S.. My son Mark is 9 and has CF. He was disgnosed when he was 2. My email is ____@____.com if you want to talk sometime. I completely understand abo...

There is a website you can check out, and it is called caringbridge.org. There are people from all over who are in the same situation, and they can keep you updated, ...

8 more answers >>

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