A.W. asks from Grapevine, TX on April 27, 2009
Want to Talk with Parents of Asperger's Children
We have recently been told our 12 year old son may have Asperger's Syndrome. He was diagnosed with ADD when he was 6, so I thought all of his issues were ADD related. Now he is in middle school and there are different issues that are coming out with age. All his friends are moving on to other interests, girls, clothes ect...Our son is still very immature and he can't relate to his core group of friends that well anymore. I won't go into all the issues now, but I am reading all about AS and we are seeing a physcologist but I would love to just talk to someone who has a similar child.
S.D. answers from Dallas on April 29, 2009
I have had a few moms here in Anna ask if we might start a support group here in Anna. Would you be interested in such a group?
N.W. answers from Dallas on April 28, 2009
There is a DFWMAFEA yahoo group. Most of us have ASD kids, some are higher functioning aspergers.
1 mom found this helpful
A.R. answers from Dallas on April 28, 2009
Type in your search engine...Dallas Asperger Network and you can find a group with acronym DANISH that may be helpful. I believe it is a parent forum with monthly meetings. I also know there are dvds that you can order online dealing with social skills....type in social skills dvds, I believe there is one named Coulter that teaches higher elem through high school....good luck and God bless
M.B. answers from Dallas on April 27, 2009
My older son is an Aspie (16) and my younger son (13 1/2) is the ADD/ADHD one. Really, these diagnosis are more based on what symptoms/behaviors are dominant. For my sons, we have gotten a tremendous benefit from a gluten-free/casein free, additive free diet. It made a world of difference for both boys. My older son's eye contact and ability to be more relaxed and interact with his peers improved dramatically. My younger's son's ability to focus and complete tasks also improved significantly. Before that time, he could not even finish a meal without getting up and doing something. So, I can't urge you strongly enough to look into this - even if he isn't diagnosed Aspie's. The research on the impact of gluten and casein to the brain (and thus influencing behavior) is fairly recent and I can point you to some of the medical research. But, it has been effective for the majority that have tried it (and it's best to test before trying so you have a baseline and can retest to ensure the diet is truly GF/CF). This diet is the most effective treatment for autism and Aspie's is considered to be on the spectrum of autism (again it's due to the constellation of symptoms and neurlogical impacts and thus behaviors).
That all said, at this age, you will find one of the broadest ranges of maturity amongst a peer group. It is NOT at all unusual for them to NOT be interested in girls - it's really only the most overt that seem to be so obvious about it. Honestly, I have appreciated that my boys have matured more slowly in this area. My older has always been far more mature than his peers overall - he matured physically early as well as mentally, he's been way ahead of his peers and sometimes it's the mental maturity that causes the Aspies to be even further apart from their peers. However, he really didn't have an interest in girls, clothes or the music of his peers until he was almost 14. My younger son is even less mature (both physically and in interests) than boys his same age (or his brother at the same age) and his best friend is almost a year younger. The doctor calls him a "late bloomer" and she told him they live longer, so he was happy :) But, again, I'm actually appreciating that. In our culture, I think kids mature way too fast and it's our job as parents to preserve their childhood as long as possible, within reason - we do have to prepare for the world in which they'll live.
P.S. answers from Dallas on April 28, 2009
LISD has a Special ED PTA, one of the first in the state. They welcome parents from everywhere. I know you can find a link to their website on LISD.net There is a ton of help out there and the ladies runing SEPTSA are WONDERFUL!
J.R. answers from Dallas on April 28, 2009
My son is high functioning autistic. Although this is a little different than Asperger's (high functioning children usually don't have the high intelligence the Asperger's children do), the two fall on the same spectrum. I think one of the most important things to remember is to be consistent.....autistic children thrive on consistency and routines. You will also need to be diligent and patient, sometimes you will feel like you are pulling teeth to get anything out of him!!! But, with hard work on your part, your son should be able to live a normal life.
Also, most Asperber's children have one thing that they are really interested in. For instance, my son is very interested in art and can draw, paint, etc. very, very well...it's amazing. If we want him to understand something, we use art to push him along. So find what his interest is and find creative ways to use his main focus when you are trying to help your son.
Please feel free to email if you'd like to talk: ____@____.com.
A.J. answers from Dallas on April 28, 2009
There is an AS support group on meetup.com its called north texas parents dealing with aspergers...
Hope that helps
D.S. answers from Dallas on April 28, 2009
I'm a former special ed teacher, and can tell you that talking with others who have similar issues can be a real saving grace for families.
There is also a great website: www.autismspot.com for families, friends and people with ASD.
T.M. answers from Dallas on April 28, 2009
Please contact Judith Jolly. She is the director of the program at our church called Friday Nite Friends. I know there is at least one child with Asperger's who attends FNF.the email address is ____@____.com phone number is ###-###-#### ext 247. God bless!