12 answers

Toe Walking - Manitowoc, WI

My son is 9 and is a toe walker he want through casting and are doctor left. So we went to a new doctor and he does not delieve in the same things as the last doctor. So i am not sure what course to take

What can I do next?

Featured Answers

My sons both have a developmental syndrome, Fragile X.
Low muscle tone may be the reason. I carried the syndrome
and toe walk, but was Magna Cum Laude in college. My mother
claims I never toe walked until I copied an older neighbor gal. (Looked like walking on high heels). I struggled to
relearn the proper method. May also relate to pronation
of feet (not much arch).

More Answers

Hi A.,

I have a 6 year old son who walks on his toes, and it has been a frustrating process getting answers about the cause & best treatment for him. The place to start is a pediatric orthopedist (I don't know if you are in the Twin Cities area, but we saw Dr. Teresa Capello at Children's St. Paul & were extremely happy with her). Our (former) pediatrician didn't even look at my son's feet when I brought it up at a well-child check, but I insisted on getting a referral to an ortho & am very glad I did!

The things to look at are: has your child always walked on his or her toes? is it the same on both feet? (my son actually told me, "I can't put my heel down on this foot, it hurts too much.") if you ask your child to put his or her heels down, can he or she do it and walk with a normal gait? If the answers to those questions are yes, then it is most likely "idiopathic toe walking" (meaning no one knows why they do it), and there's a decent chance no intervention will be needed. In my son's case, he started walking normally & then started toe walking at age 2 or 3, and as I said, one foot is quite a bit tighter than the other, so we have seen a pediatric neurologist & ruled out lots of things. A developmental pediatrician is another option. Unfortunately, there isn't necessarily a diagnosis in these cases, but the best we can do with my son is call it mild cerebral palsy & go on from there.

If they decide that it is NOT idiopathic toe-walking, the best treatment is serial casting, where they position the child's feet very carefully, put on walking casts, and repeat weekly or every two weeks until they're happy with the position of the feet, and then custom braces at night until the child is finished growing (keeps those muscles that we worked so hard to loosen up from tightening back up at night, as they grow). The serial casting usually takes 4-8 weeks. They do not like to do "heel cord lengthening" surgery any more, as it is a one-shot deal, and does not address the tight muscles, just the tendons (or ligaments?).

As you can see from the length of my response, I have some experience with this issue! Please feel free to send me a message if you have more questions.

Good luck!

A.

1 mom found this helpful

Dear A.:

As a child I walked on my toes until I was in the fourth grade. I never was seen by a doctor for this problem. I am pretty sure it will go away, however, I was made fun of a lot when I was a child for this.

My son did toe walking also along with other quirky behaviors and was eventually diagnosed with sensory integration disorder (I think they refer to it as dysfunction of sensory integration now). We went to three years of OT starting at age 3 and now he has hardly any issues anymore (at age 9) - Google sensory integration and see if he has any of the other symptoms, if so get him evaluated by an OT that specializes in sensory stuff.

Make an appointment with a pediatric orthopedist. This can be a long-term problem if not treated.

I have to agree with the "go to a children's ortho". Nothing against General Physcians, but that is exactly what they are. You wouldn't go to a General Dr. for a major heart problem. We had a friend whose daughter walked on her toes and she had to have casts on to stretch the hamstrings and she went through PT to correct the situation.

What answers have you gotten?? I have a 6 year old who still walks on his toes and I have always been told "he will grow out of it" I'm still waiting! We keep reminding him to walk on his feet and not his toes. I have a son in law who did the same and he did grow out of it.

M.
____@____.com

A. everyone is different when it comes to toe walking. Don't be alarmed. My son walked on his toes, he grew out of it. I've seen a lot of toddlers walk on there toes and grow out of it. I've never heard of any child having to have surgery though, if so then I would think that maybe something else was wrong for that child to have surgery.Just my opinion.

My sons both have a developmental syndrome, Fragile X.
Low muscle tone may be the reason. I carried the syndrome
and toe walk, but was Magna Cum Laude in college. My mother
claims I never toe walked until I copied an older neighbor gal. (Looked like walking on high heels). I struggled to
relearn the proper method. May also relate to pronation
of feet (not much arch).

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