10 answers

Strabismus Treatment?

Hi,
My 3 year old daughter has strabismus in both eyes, as I had suspected. Her vision is fine and the eye doctor stated that she needs to wear a patch daily, alternating left and right eyes each day for 4 hours/day for 6 weeks. If that doesn't work, then it's surgery. Has anyone else gone through this? I hope I'm able to get her to leave the patch on! Has anyone done vision therapy or anything to help normalize her vision?

What can I do next?

So What Happened?™

Interestingly enough, she likes the patch and never wants to take it off - stating that she sees better with one eye. I haven't noticed any improvements or anything, but we'll see after the 6 weeks go by. Thanks for your stories! :)

More Answers

A., I cant remember the name of the company, but we ordered cloth eye patches on line that cleverly attached to the glasses. I just googled cloth eye patch strbismus though, and preventblindness.org had a whole list of online suggestions, some run by parents of children with the same problem. My son did end up having the surgery, as it was pretty severe, but the patch did help a lot. He had to wear it all day, for months. He was fourat the time and becanme used to the cloth one, which the doctor approved, but the bandaidish one was a problem, I tried the adhesive one once with hijm to see what it was like---very sweaty especially in summer. Also cant remember hwhther you can really blink, or if you have to be in a constant wink.

Hi A.,

I went through this myself when I was younger. Finally my parents had to resort to surgery after years of the patch. If you are thinking surgery, do it when she is younger. Don't wait. The yonger the easier.

Hi there, A....

We tried doing patches when my son was a toddler, not three. He always pulled them off at that age (not sure how he'd do now--he's 4). We ended up with special drops that we put in one eye (switching eyes every other day). These drops did the same thing as the patch somehow. If the patch doesn't go over well with your daughter, you should ask him/her about these drops.

Good luck!

My son also had strabismus, but in one eye. He had to wear an eye patch which worked really good. He is now 21 and you would never know he had the problem. His vision is fine. My sister's son had stabismus in both eyes and he had the surgery in both eyes. It worked great! And this was when he was a baby. He is now 24. Today the surgery is probably much more advanced and so much better. Good luck.

Hi A.,
I am an adult who has lived with strabismus all her life. As a little girl they tried me on red and green glasses, the patch, and as I got older they wanted to put me into lenses that gave me nausea. If your daughter's problem is not corrected by non-surgical means, she may grow up to do things like watching TV with one eye and turning her head to view things like I do. It is liveable! Anyway, good luck with your response to the problem.
L.
P.S. I hope you have a university-based pediatic ophthalmologist who gives you the honest answers.

A.,
My daughter had the surgery and never needed the patch. I used a doctor here in CT who is an expert in the field, unfortunately he is now in NH (or possibly VT). My daughter is planning on driving up to have him check her vision, as she won't see anyone here unless he recommends that person. Anyway the guys name is Dr. Maynard Wheeler, I know it is a ride but at the very least call him and get him to recommend someone in your area whom he trusts. By the way the surgery is not bad, my daughter did very well and luckily he corrected both the strabismus and Duane's Syndrome completely in one shot and she was the worst he had ever seen.
Also as someone who had to wear the patches, let me say they are very uncomfortable and most kids don't wear them, I faught my mother, taking it off as soon as I was out of her sight. Let me know how you make out.
Hugs,
T.

I do not have a child with vision problems but I was the case worker to a boy with Strabismus. He had the surgery as a teenager and it was successful at least cosmetically. It seemed like his depth perception was effected before the surgery and I am not sure this was corrected. But I suspect it had something to do with having the surgery so late. The eye doctor said it was usually done in young kids--toddlers and preschoolers--because they can adjust to it better because the brain is still developing.

There are colorful stick on patches available online. They have lady bug print, dalmatian print and some crazy colors. That's the only way I could get my son to wear his patch. He got to pick which one he wanted to wear every day. It was great. You can do an internet search to find patches for your daughter. Patching didn't work for my son so we ended up with surgery to correct his problem. Now both eyes are straight and he has perfect vision.

If you live near the Fishkill area in NY I would recommend Dr. Hugh Sauer. He specializes in caring for children. He brings himself down to their level and explains everything to you so you understand what he is talking about. His staff is also equally wonderful. He also checked our other son for the same condition after he was born. He would examine him every time we brought our oldest in and he did it free just because he was concerned and we were there with him already.

Good luck to you!

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