24 answers

Strabisimus or Eye Issues

To everyone and anyone who has had eye problems or issues...
My little boy that is now two years old will be wearing glasses for an extended amount of time and I have some questions. My husband nor I have never had to have glasses and was very suprised when he had to go to an optometrist. I had noticed an issue with his eyes about 6 months ago and kept thinking it was just his eyes adjusting and working together for him to focus. When I took him to the doctor, he informed me that he appeared to have had this since he was born. I got on the internet and found out there were many different kinds of eye issues and that there are possibilities of Infant Strabisimus or Europia. I had never been told by the doctor or anyone else that it appeared that he had anything. I also had no idea that I needed to see an eye doctor for him at 9 months. I am so upset because I also found out about the many problems that can occur because of this issue...Is this considered an illness or disease and has anyone had these similiar experiences? We got him glasses and is doing good with them, but the doctor informed me that he is also going to have to have surgery...I am looking into other options because the internet also informed me that surgery can cause more problems and that docotrs tend to push surgery for cosmetic reasons. As he gets older, that will become an issue and I am wondering if other moms have any suggestions as to what is best for thier own. My gut tells me that surgery is not the way to go for him. He has only been wearing the glasses one day, so of course there really is no change, but what if there is and there is no need for surgery...I am sooo confused and worried of making a decision that will not be good for him. I talked with the doctor about the fact that he had 4 fever seizures when he turned 2, but he said that it did not have anything to do with this and that I believe. The internet also said that strabisimus is sometimes not apparent to the untrained eye. Was I in denial and why did I wait so long? How could I have let this go? Isnt it my job to make sure that nothing is happening to my child? I really am beating myself up about this and I dont know how to come to grips with it? Am I being too dramatic? I am hoping that there are other moms that can help me understand . I know that I have to be strong for my little boy and I just want to know that I am doing all that I can. I am looking into vision therapy because the internet also raves about it. Insurance may not pay, but I really am wondering if anyone has any ideas for me...I am soo lost and scared. I guess I feel like I was delayed in getting him diagnosed and feel so guilty. Vision is so important and I know that everyone needs a fair chance to learn in school and life...Help Please

What can I do next?

So What Happened?™

My son is doing wonderful with the glasses, and the next apptment is in 6 weeks. I wanted to thank everyone for so much more info and personal experiences....it was truly a God-send. I am sure I will still worry, but the guilt is starting to demenish and I feel a little releived that others have faced this issue with such strength and courage. I will be contacting some of the mothers and people with these issues...I live in Corpus Christi, Texas and the health care down here is sparing and the only opthamologist that sees 2 and up is this one. I am looking at getting my husband to transfer so that we can better accomidate my sons needs...Thanks again for all the great advise and I have to say if not for this website, I would worry myself sick!!!

Featured Answers

Child & Family Eye Care
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6700 Woodlands Pky, Ste 150, Spring, TX

They do some new eye therapys their. They are great.

Relax...somethings just slip by us. And WHO takes there 9 month old to the eye doctor? I would bet not one mother I know.

More Answers

My 5 year old daughter has Accommodative Esotropia. We see Dr. Musgrove at the Houston Eye Association. She has had this since she was 3. She has gone through many prescription glasses. The doctor says she is doing well, but it could take another 7 years to completely correct this visual defect. If she continues to improve she won't need surgery, I pray this is true and can relate to your concerns.

First of all, if you are unsure you should get a second or even third opinion. Surgery is sometimes necessary, but most optomologist do seek other methods first. Don't panic, he may believe that surgery is necessary, but another doctor may disagree. Also, don't feel guilty, many of these problems go unnoticed.

Second, if he does need surgery, he may need more than one. The doctor we are seeing does about 100 of these surgeries every year. Make sure the one you see is very experienced. Most of the surgeries are successful, but surgery is surgery, there are always risks. So, I would seek out other doctors before I would make any decisions.

It is scary and for a long time I thought I should have caught this sooner. But I prayed about it and I now know whether she goes in for surgery or not she is going to be okay. Children bounce back so much easier then adults from surgery and if it is goods will, so be it. This took me a long time to reach this thought. Deep prayer, talking to my husband, allowing the guilt to come up to the surface and then releasing it. It is not your fault but you can make a difference now. Be your childs advocate, seek out other opinions and if in the end they all agree surgery is the only option, take it and realize you are doing it for your childs future, for their visual health.

Good news for you and me is that the sooner it is diagnosed the better. Children as young as ours usually respond to treatment and can overcome their eye defects.

Let go and let God. Seek his Face. Ask him to take your worry and every time you worry again, ask Him again. He never grows weary of our requests.

I have prayed for you and your child. Peace.

1 mom found this helpful

My son has strabismus due to premature birth at 25 weeks. We tried patching his eye when he was three and then again at four, but he kept pulling the patch off. At this poin, age five, we aren't doing anything. He has blindness issues due to early birth, but perhaps we can try it again later .

My daughter's first grade classmate wore a patch on her eye for an entire year for strabismus and her eyes are now great!

My friend's daughter turned four in the spring and had surgery when she was three to correct the strabismus, but it was overcorrected and now the doc wants to do surgery again to correct the overcorrection. The mom put her foot down and said "NO".

Use your best judgement.

Obviously from all the responses you are not alone. I am also in similar shoes at this moment. My three year old was diagnosed w/Exotropia (Strabismus-when an eye turns outward) about 6 weeks ago.

My son has a bad habit of sucking his thumb and holding his fingers open over his right eye. When he first started doing this around 18 mths old I spoke w/his Pediatrician's office and they said not to worry. Of course they also said to redirect him when caught sucking his thumb. He ALWAYS sucked his thumb and I hoped he would grow out of it like his older brother did. No such luck!

Anyway I started noticeing that his eyes didn't look quite "right", but it wasn't easily seen when I tried to "catch" it. So I took him to his Ped. Dr and he didn't catch it. Few months later it was not only obvious it was pronounced. So I found a wonderful Opthamologist here in Houston, Dr. Aaron Miller, and am in the process of doing the patching a few hours a day-alternating eyes each day. It seems to be helping. I will be taking him in to be reevaluated in a couple of weeks. Then we will find out if we continue patching, wear glasses, etc.

Like you I immediately got on the internet and started researching. I saw the same info I'm sure you saw about visual therapies. The problem is that 2 or 3 yr olds are not good candidates for visual therapy because of their short attention spans. So at this point we are biding our time and waiting to see the results of the patching when we go back in a couple of weeks. My hope is that surgery will not be required, and if it is then we will definitely get that 2nd opinion-maybe even a third.

In the meantime-trust your instincts since you know your child better than anyone else, and do whatever it takes to get him through this. If you haven't already, please stop feeling guilty and know that God KNOWS what is right for us. Keep in mind you are not alone, and please contact me if you need someone to talk to, or to share progress and what we are learning as we go along.

Good luck and God bless!!

Dear D., You are not an Opthalmologist or physician of any kind. If you were you would have a practice somewhere.
Also, you are a first Mom, right ? Ok, how are you supposed to know everything ? Stop feeling so neglectful ! You cannot know it all. How many people do know all the workings of the eye ?

If you have many unanswered questions about your son's eye problem, schedule a consultation with his doc. Write down everything you want to ask on a tablet and take it with you. You and your husband go alone so that you can get maximum benefit from your visit. If you are still uncomfortable with anything, take your child to another eye doctor, one that specializes in children, and go from there.

You are paying for all this one way or the other, and you want only the very best for your son, knowledge is the greatest tool, and you have every right to be thoroughly satisfied with his care.

Best wishes.

R.

Don't feel bad. My advise to you would be to get a second opinion and maybe a 3rd. That way you know for sure what the best treatment will be. You are a new Mom and you were just hoping that things would get better and don't worry about what you did or didn't do......we just do the best we can and that is all we can do. Besides I think that that type of corection cannot be done until a baby is of certain age any way. Good luck.
Don't beat your self up any more. Your fine.

D.,
I am so glad that I read the posts today. First of all you are on the right path. Seeing a doctor. The main thing is to get to the right doctor. I havetwin girls that are now 13 and they both have strabismus. I took them to two doctors and the second one did push for surgery and of course we listened. One of my daughters was in glasses at 10 months old and still wears them. We did patching and glasses. She had surgery when she was 14 months old. This doctor was in the Austin area. I will say that I did not like his bedside manner and we did not feel confident, but as a scared parent we did have the surgery. No problems there. We then found a wonderful doctor in Dallas. Please do not let the area you live in dictate where you take your child. This man knows his stuff, it is his specialty and everything he has said has been true. We patched, he did another surgery at the age of 3 and each year we had new glasses prescriptions. My husband wanted him to do another surgery because she would get teased. The dr told us that she would probably grow out of her glasses in her teen years. One of my dausghters does not need her glasses anymore and her eyes are straight. My other daughter that had the surgeries has progressed each year and she is in a single vision lens and the weakest strength ever. She had bi-focals, progressive bi-focals, strong lenses and now she gets a weaker lens each year. I would trust him with my childrens eyes 100%. He is Dr David Stager, sr. His son os a dr too! He is located in Dallas-his son is in Plano. Please look him up and try him out. He will help and has so much wisdom. A very kind and patient man who knows what he is doing. I hope this helps. He has been a blessing to us. Don't beat yourself up for not noticing. My brother-in-law pointed out that my daughters eyes were going in and I thought he was crazy. I never noticed and looking back at pictures it was very severe. I think we are with them so much we do not notice as easily unless we are looking for something to be wrong. Please contact me if I can help ____@____.com
Blessings
M. J

D.,

First, you should stop being so hard on yourself! And then you should see a doctor who does not make you feel as if he/she is being critical of you.

Our son has Marcus Gunn Phenomenon. It is an extremely rare disorder that is listed with NORD. (National Organization for Rare Disorders) It is very difficult to find current information on this, as so few people in the world have it.

We went to see Franklin Keith Busse in Austin, and I'll tell you that he is well worth the trip. He is the kindest man, and his waiting room resembles a daycare center.

The resulting ptosis in Bryce's eye warranted surgery to prevent flattening of the eyeball from the pressure of his lowered eyelid. Dr. Busse was not pushy about surgery and had two types to offer. We opted for the less successful, but also less obvious one when he was 8 months of age, and then repeated it at 11 months. Bryce's eyes now appear to be perfectly symmetrical.

I don't tell you all this to push for surgery in your case. I tell you this so that you might find someone who comforts you, presents your options, and makes you feel good about the choices that you are making.

Dr. Busse does not have a website, but is listed on the site of a hospital where he practices. I am sending a link. Additionally, the site does not say so, but he does keep Saturday hours. (usually one Saturday per month)

http://www.dellchildrens.net/find_a_physician/busse/franklin

I wish you and your family well!

First off, find an opthamologist that you like and trust-one that explains every detail to you in terms you understand and that listens well to your concerns.

I had multiple eye problems when I was born, and by the time I was two, my mom had noticed(granted mine was actually fairly severe), but the pediatrician told her I was fine up until then. I wore glasses and patches(I took them off), but also I was mainly blind in my right eye(due to a lens deformity-another reason I wouldn't keep the patch on, they were trying to patch my one good eye!).

I ended up with three surgeries from the age of 5 until 14, the final one being done at the Jules Stein Eye Institue at UCLA. I wouldn't be surprised if my eyes were in some text book somewhere! lol Actually, it was a very rare combination in my case that made it so difficult to treat. They still aren't perfect, one reason being that I can't make my bad eye move so well since it doesn't see well enough to focus on anything, so I can't excercise the muscles. Finally, they simply made it so my bad eye follows my good eye. It's good for the most part, but I notice the slight difference in positioning. Most others never know unless I say something. And everyone is shocked to find out that I'm blind in one eye.

My point? Find out every option open to you...find the doctor that will listen, and understand that despite your fears, surgery might be the best option. It doesn't mean YOU'VE failed, it means the other treatments have. And your boy wouldn't be the only one they don't work on. Many out there have been there, done that and have still had to have surgery...and for some, the other treatments do work. Time will tell. Be vigilant, though and truly give everything a fair try.

Make sure his glasses have an elastic strap to help keep them on his head and make more difficult for him to take off. He will get used to them in time as long as you enforce his wearing them. Make sure anyone that take care of him is just as thorough as you are with his wearing them.

And do your best to have this corrected(by surgery or any other way) before he starts school...it might be mostly cosmetic on the outside, but that's what the other kids will notice...and yes, kids are very cruel, I've learned that first hand(and is probably why I notice my own difference so much).

For the record? I'm 41 now, with three nearly grown kids myself...and an RN. I drive and do pretty much everything I want to do, but really suck at sports that involve flying balls. I've learned to compensate for my lack of vision in one eye, but my depth perception sucks when a ball is flying at me at a zillion miles an hour! Oh, and I can't do three-D movies or pictures! I figure I'm probably not really missing much there...lol

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