My son, now 8 also has this. I didn't know about it until he was 4, but knew he was a high-need baby. I brought behavioral issue to his ped. to no avail. I had no idea what else to do. Well, he has Aspergers, a high functioning form of autism. He didn't do the tiptoe thing, but the tiptoeing is also a symptom of autism. Why would you need the label if it applies? Because Arizona has recently passed a law that health insurance plans must cover therapies for autism. If your therapist doesn't accept the insurance, file for reimbursement from your insurance company. There are exceptions, however, and I believe we fall under it because DH's company is self insured and self insured companies don't have to pay. So not fair.
Anyway, thee first step is to get your child to a Developmental Pediatrician for evaluation. Regular peds simply don't specialize in that area, and so many are not qualified to screen for it. In screening, you usually have to fill out multiple page questionnairs, and the first meeting can be 2-3 hours (of fun for the child because 1) they get the attention, 2) they get to play while being observed, and 3) they get to answer questions and show how smart they are. There's also a physical given.
Where to go? Your ped SHOULD be able to supply names, but that isn't what ours did (come to find out, he did know the info, but thought my son was "normal". I knew differently. In north Scottsdale, there's the Melmed center...they did my son. My insurance covered all but my copay (then $20, but now $50) for my appointments. However, they try to push their own therapies and seminars, which are VERY expensive - I call it overpriced. Hint: On May 6, 2008, it was reported that Raun Melmed and his wife purchased a 6174 sq. foot home in Paradise Valley for $2,580,000. The clinic's not his only income, but still, I don't feel it's fair that we go broke paying for therapies while people get rich off our misfortune, especially when they could have done SO MUCH more for my son than they did, but I was too naive to ask for it.
Dr. Kessler at St. Joe's is reported to be good. Dr. Timothy Jordan I hear very mixed things about. Try to check with the therapists you know, since you already have relationships there, to get some more names in your area. Feel free to contact me. I moderate the Special Needs section on a board I frequent (which is a money saving board about being frugal - I don't own it, nor do I get compensated in any way for bringing in new members or for moderating.) I just saw others who were disconnected and felt alone, not knowing which way to turn and asked the board owner for a forum like that. I think I'm going on 3 years on it. The board is Mommysavers.com. (If you sign up, PM me there and let me know who you are when you intro yourself in the Welcome forum).
I agree about the Out of Sync series of books. Also, request that your school psychologist and district test your child. Their testing helps also paint a broad picture for the Dev. Ped., and the Dev. Ped's diagnosis can help get services needed at school.
I hope some of this info helped. Good luck.