N.H. asks from Cypress, TX on March 26, 2008
Selective Eating Disorder
Has anyone heard of "selective eating disorder"? My 7 year old son has always been a picky eater. What is different about him, though, is that he's not a typical picky eater. I have read book after book and read many articles online about picky eating. They are comical for me to read because he is so beyond picky eating. His doctor thinks I over react. One day I decided, instead of looking up "picky eater", I searched for "childhood eating disorder". BINGO. I found a disorder called Selective Eating Disorder.
Let me discribe my son's eating habits. I have made a list of things he will eat and there are only about 15 items on that list. Nothing of nutrition. He has NEVER eaten a vegetable and the sight of one on his plate makes him vomit. We have tried "when he's hungry he'll eat" theory. A symptom of this disorder is that they will allow themselve to be hungry and can go days with hardly and food. They see food as discusting. When I asked my son about this he told me that most food looks very gross to him. Absolutly nothing has gotten him to eat healthy food. I could go on and on about his symptoms.
Does anyone else out there have a child like this? I'm so frustrated with people telling me all of the remedies for a picky eater. They don't work with him. We really pracice positive reinforcement to reduce his anxiety about food but it doesn't help him eat healthier.
He is normal weight and overall healthy. He doesn't eat healthy food. The small amount he does eat is very high carb food. Only one kind of friut, no veggies at all. No meat. He's afraid to try new food. If he does, he usually throws up. He says he feels different than other kids because of the way he eats and that he doesn't like being like this. I want to help him so much but I don't know where to find help for him. Any help would appreciated.
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So What Happened?™
I am amazed at how may responses I have gotten to this, both on this page and private messages. What is frustrating is that very little is known about this. Currently my son is 9 1/2 . We "fired" our previous Pediatrician and found one willing to really listen and find us help. He has been going to an Occupational therapist for about 6 months now. It is really refreshing to have him work with someone who truly sees this problem and isn't out to judge ME. When asked if the therapy is working, yes, but it is extremely small steps forward and sometimes big steps back. I worry about him daily. He is starting to gain a significant amount of weight. This is really bringing his self esteem down. The most frustrating thing is, right now, there isn't to much I can do to control the weight. He's already on a very limited diet, there isn't much to eliminate. We have to monitor the amount of food he eats, so he doesn't over eat the foods he does like. My goal is for him to be able to eat 1 vegetable and unprocessed chicken. N. D. thank you for your post. I really understand the dangers of this disorder. We are doing everything we possibly know to do to keep our child as healthy as we can. I wish there was a better understanding with Dr's. To all the parents who have kids with this problem. Listen to your gutt, and don't let other's judgements of you make you ignore the problem. You will know if your child is more than "just a picky eater". Find a new Dr. if they don't listen. Don't give up, because trust me, the kids don't like being this way any more than you do. My son would give almost anything to be "normal".
Featured Answers
J.P. answers from Houston on March 27, 2008
I recommend having him tested for celiac disease or gluten intolerance. Celiac disease is an autoimmune disease or allergy to gluten which is a protein found in wheat, barley, spelt, and rye. He may not want to eat because certain foods actually make him physicially sick. You can find some info at www.celiac.org.
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L.B. answers from Austin on March 27, 2008
My grandson is just like this...my daughter says 100%. She would be willing to communicate with you by email if you like. She lives in upstate New York and my grandson is 7 years old. Let me know if you would like to hear from her. I am L. at ____@____.com
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K.G. answers from Austin on March 27, 2008
Hi N.-
Did you also come across something called Sensory Integration Disorder in your research? Or Sensory Processing Disorder? Same thing, different names. I am a pediatric occupational therapist and have worked with many children who are very picky eaters and their diet is similar to what you have mentioned: mostly carbs, avoid veggies and fruits. Different textures, smells, or tastes make them gag and, like your son, just the sight of them can trigger this sometimes. Most of these kids also have other issues as well: sensitive to different kinds of touch, smells, sounds, movement (either crave it and move around a lot, or get car sick easily), visual, etc.
You could make an appointment with a pediatric occupational therapist to have him evaluated. Ask your doctor for a prescription for an eval, as some places require one, and he'll need a prescription to get treated. If you are interested, I can give you the names of places in your area of town that have OT's. You can also take a look at "Just Take a Bite"--I forgot the authors names, but Amazon carries it.
Good luck! I know this can be terribly frustrating but having a name and reason to his behavior can be comforting--and, of course, knowing that there is a treatment!
K.
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B.J. answers from Houston on March 27, 2008
Former anorexic myself, I started in high school, selectively choosing what I would eat, then became obsessive, eating disorders are not about weight they are about control, nothing in your life is controllable except what goes into your mouth. It may not be about fun ways to introduce foods, as much as it is a counselor to get to the root of his eating habits.
Good Luck,
Robin
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M.B. answers from Houston on March 27, 2008
N., I have a son who is 13 and it sounds like he has this disorder. He eats hardly anything. But there is hope. When he was very young he would eat very well. Then texture and smell really did him in and most of what he likes to eat now is carbs that are very bland. Other than strange eating he is normal in height, and weight, etc. Over the course of the last year or so he has really made strides on his own to try new things ( or thing that he used to eat). He recently tried spare ribs with BBQ sauce. He didn't particularly like it but said he would probably try it again after a while. I find when my husband and other son try to encourage him to try new things he gets frustrated and then won't try anything, even if it was previously in his mind to do so. When I make something to eat that I know is not on his eat list, I just ask him if he would like some. If he says no, then he knows that that is okay and I am not pressuirng him. Pressure seems to make it worse. Good luck. It is not easy, but it is worth it.
M.
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S.B. answers from San Antonio on March 27, 2008
Hi N.,
I would have to agree with some of the other responses to find a doctor who specializes in eating disorders. He may grow out of it as some people have, but it never hurts to follow through medically. I know you have to be worried about your son, and it would help you to feel better to find a doctor who will take you seriously and take measures to find a solution to the problem.
My youngest did not want to eat solids, and after I weaned him at a year old, he stopped growing and I had great difficulty getting him to eat food. Sometimes he would throw up, and I thought he might have a sensitive gag reflex, but I finally figured out that he might have reflux. After consulting with his doctor, she agreed that it could be reflux and put him on medicine. Meanwhile, we did blood tests and saw a specialist to make sure it wasn't another type of issue. After being on the reflux medicine for a month, his eating improved, and after 4 months, he finally started to grow. In short, follow your instincts and find a doctor who will do everything possible to help.
Good luck!
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C.L. answers from Killeen on March 27, 2008
N.,
I can't imagine how difficult your situation problem is. Have you or your doctor thought about getting your son and the family into therapy? I know most people don't want to see therapists because they feel they will be labeled as "crazy", but perhaps a therapist coul help your son first of deal with his feelings about "being different" and then with his feelings toward food. Also, you may want to check some of the bigger hospital websites, because there may be some programs for children with eating disorders tha your son could participate in.
I wish you and your family the best! You are a great mother that obviously cares for her children dearly. C.
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Z.B. answers from San Antonio on March 28, 2008
N.,
Your motherly intuition is correct. If you feel there is something wrong with your child, there probably is. The doctor who told you that you were over reacting is not a good doctor at all. A good doctor will listen to your concerns and help you work them out. Just because they went to medical school doesn't mean they know everything about your child. Every child is different and not all situations are the same. Find a doctor that is willing to help and not ignore what you know in your heart is a problem your son is facing. Your son is crying for your help if he has already said he feels different from others. It is up to you and your family to help him through this, what I am sure for him, tough time.
Best wishes and God Bless
Z. Floresville TX
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C.S. answers from Austin on March 27, 2008
i don't have any answer about this, but I'll pray for you.
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M.W. answers from Houston on March 27, 2008
My son is 6 and he is the same way. He has always been this way he won't eat any veggies, no soft food (mashed potatoes, rice, etc...) Everyone tells me he is a picky eater. I have tried making him eat these foods, I have tried rewarding . Nothing works!! I can't force him because he will just go without eating. I found what works for me is to hide the veggies in everyday food ... My son likes spagetti so I get the sauce that has veggies in it . For the most part I wouldn't worry if he's healthy and a good weight . Good Luck!!
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