14 answers

Seeking Parents of Children with Asperger's or Autism Spectrum Disorders

My 8 year old son has just been "diagnosed" (in the loosest sense of the word because only his dr can really dx him) thru the school with High functioning Autism Spectrum disorder or Asperger's Syndrome. His school is really stepping up to help him and I both academically, socially but I'd like to have some out of school support.

What can I do next?

Featured Answers

I have a daughter with Asperger's. It does take forever to get a diagnosis. My daughter is 13. I also advocate for parent with children of special needs. Feel free to contact me.
C. Spencer
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More Answers

Here's a great website to connect with other families

WWW.GENERATIONRESCUE.COM

1 mom found this helpful

Hi S.
My name is L. my son is 4 1/2 yrs old and he has autism, he very verbal and social he goes to GISD currently he is in an autism preshcool class, he also gets Direct indiviual insturction which is helping a great deal,I know of a couple support groups in the area one is Genesee autism support group that meets once a month in Grand Blanc.
Have a great day
L.

I found a local Asperger's social skills group that was helpful with my 8 yr. old. I also get private therapy, and have gotten trained by an OT to do some therapy techniques ourselves at home for the sensory problems. You are lucky to get help from the school- ours doesn't recognize high functioning autism (at least in a gifted kid!) so we were unable to get any help there.

J. here single divorced mom of two daughters with asbegers nine and eleven dx at the age of five and three the diagnosis was different then but, thier pediatrician sent me to macomb isd for testing Dr.s Do know Autism but, most,( dont quote me on this as u can tell its been a while since my daughters were dx) will send you else where for proper testing with qualified individuals. Macomb ISD if you arent comfy with the diagnosis that you got you can ask them where else you can go for testing, I have been with them for a long time and they have been wonderful with my family. They dont work against you they work for you. IF you ever need anything or have any questions please feel free to email me at ____@____.com

Jules

I have a 2.5 year old that is showing the signs of Autism. They put him in school once a week and they also come to my house to work with him once a week. They didn't diagnose him yet because they don't usually do that until they are 3 years old because as you know the spectrum is so wide that no two children are exactly alike...
I think he has the high functioning form. He doesn't point, feed himself with a fork or spoon, he takes my hand and brings me to what he wants instead of pointing, he makes eye contact when we are playing rough or rowdy but other than that he doesn't really respond to his name some times, instead of play pretending with toys he lines them all up in a perfect row. He organizes things by shapes and colors and is very visual. He's a very smart little guy but he's just lacking socially. I am looking into contacting a DAN doctor to see if they can help give me more information on special diets or anything that I can try to help him. I think you're a great mom for looking for all the support you can...I know its really hard to some times to get straight answers from doctors and what to do next.

Hi,
My name is L. and my girlfriend wanted me to sign up for mamasource. I have been really busy and deleted a lot of the daily e-mails from mamasource, but I decided to check out what is was all about today and came across you. I belive things happen for a reason. I'm so sorry to here about your son. I don't know anyone personally who has Autism. It must be really hard for you and your family. I was introduced to Mona~Vie in December and have had awe some results with friends and family. Mona~Vie is the healthies drink you can get loaded with anti-oxidants. I came across an article on Autism and Mova~Vie. I would love to share it with you, and send you some information on it. If that would be okay.
I'm a stay at home Mom and have a 20 month old girl. I'm into natural medicine and nutrition.

Hi S....

I'm about 38 weeks along waiting for my little princess to arrive. As soon as I found out I was pregnant I started my research on Autism. It's a big concern to me since so many children have been diagnosed in the past few years. My mother works for family practice Dr is Milford which his son has Autism so he has helped me understand everything from "they" think causes it to why so many drs have no clue in what it even is. If you would like the number I would be more than happy to give it to you. Good Luck...
S.

Hi S., my 15 (almost 16) year old daughter was diagnosed a couple years ago with aspergers. She struggles socially but I don't believe she had a proper diagnosis. Some sites I found useful were the Judson Center, Macomb or Oakland County Autism Society. Also there is Jack's place. You can always google it and find all kinds of things online. If you want to talk at all feel free to email me.

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