Seeking Other Moms of Cf Kids

Updated on April 30, 2008
D.G. asks from Marysville, WA
5 answers

I am looking to talk with other moms of cf kids. I really don't have anyone else to talk to except family and friends.

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A.S.

answers from San Diego on

Hey!

I have a son who is 4 w/o CF, and a daughter, 2 who has CF. She has been pretty healthy as well. I am a 35 year old stay at home mom, and I have been married for 7 1/2 years to my hubby, who is in the Navy. He takes an active role in the care of our daughter (when he's not out to sea!) I live in San Diego. Great to find you!

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C.P.

answers from Los Angeles on

Hi D.,
I am an Independent Associate for USANA Health Sciences. There is an amazing story about one of our Associates who has two children born with Cystic Fibrosis. One of the daugthers was 15 years old when her mom was introduced to USANA and started on the USANA nutritionals. That was almost 12 years ago. Today, the daughter is alive and doing well. She is even married now. She and her husband are expecting their first baby. The doctors had advised her to terminate her pregnancy because they felt her body would not be able to support her pregnancy to term. She decided not to terminate her pregnancy. She is now 7 months pregnant and doing well. We have a doctor on the USANA Medical Advisory Board who has specific recommendations for Cystic Fibrosis using the USANA Nutritionals. If you are interested I could share this information with you. You can visit my website www.pascua.usana.com

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N.Z.

answers from San Diego on

Hi. I am a single mother of a almost 3 year old. I work full time too. I am a loan consultant. Its wonderful to hear your daughter is doing well. N.

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L.B.

answers from Anchorage on

Hi D., could you be more specific of what cf kids are for those of us who are not understanding what cf kids are. thank you

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T.T.

answers from Sacramento on

Hi D.,

My name is T. and I am 31 years old. I have Cystic Fibrosis myself. I live near Sacramento, CA. I have to tell you one of the best experiences growing up with CF was CF camp. I went to the Northern California CF camp sponsored by CFRI. I started going when I was 8 years old. It has changed dramatically over the years, due to cross infection, but the friends I made are so helpful and supportive.I rarely make it to "camp" anymore, it's now called CF Adult Retreat but many of my camp friends keep in touch through email and message boards. I can point you toward a message board where many of us keep in touch to this day! Please email me. I have lots of experience with CF and many many friends in the same situation. We are all willing to help with any questions you might have. My private email is T. (at) droflet (dot) net. I'm not sure if this message board will let me post the email as it's supposed to be written, so that's why I wrote it that way. I hope it makes sense! Hope to hear from you. Hang in there.

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