6 answers

Seeking Information on Complex Partial Seizures Aka Absence Seizures

My oldest adult daughter, who is currenlty enrolled in college 3200 miles from home, was recently diagnosed with Complex Partial Seizures (CPS). While I am very familiar with Clonic Seizures I have little knowledge of the CPS type.

Since her diagnosis I have done extensive research on the subject and have learned a great deal. But, I was wondering if anyone has some experience with these types of seizures and if you could provide me with list of possible triggers and/or tells you may have witnessed in someone with this disease.

What can I do next?

So What Happened?™

I want to thank all the mothers for the wonderful advice and resources provided. Because of your responses I have found a support group for both of us and am learning all I can about this condition. It was also a relief to find out that we are not alone and that there are other mothers out there that I can count on for strength and support.

Again, my sincerest thanks to you all.

This site rocks!!!!

More Answers

Hi Connie,

My son was diagnosed this summer at the UC Davis MIND Institute with Complex Partial seizures. He is now 4 years old and this scared us to death this summer. He started having brief (5-10 seconds) episodes every 30-90 minutes. He clutched his belly, grunted, had an odd laughter and it was hard to tell if he had a pleasure/pain type of sensation. He was confused, slow to speak and often tired afterwards. As a 3 year old at the time, it was hard for him to verbalize his sensation and it seemed as though anything & everything could be a trigger.

We are trying to get into an Eastern Medicine type doctor here in Sacramento to provide alternative advice b/c all the other doctors are comfortable saying, "in 75% of the cases, you don't know why this happens". His seizures are now controlled on Depakote, but I still want to try to identify food triggers or other possible natural methods to help our son. I'm sorry for what you are going through right now with your daughter, but I wish her the best of luck in her treatment.

I don't know much about seizures but me and a ton of people I know have had various medical problems and have had very serious diagnosis. I was told I have (or could have) a tumor, depresssion, fibromyaga nuereolgical issues/damage etc. For me and most of the people I know, it was the chemicals in process foods. You really wouldn't believe what they put in everyday foods. My system couldn't deal with all of the toxins and it finanly broke down. Anyhow, I have cured myself through natural cures, mostly foods. Most people don't even think that such a simple thing could be so impactful but IT IS.

I think the is a relation with food on almost every issue and there is almost always a more natural cure. See the movie "First Do No Harm" a true story about a child with seisures. It may give some grewat insight on how to help your daaiughter without doing her more harm (i.e. the side effects she will have with all of the treatment/ eds they put her on).

I am not a medical professional, I am not some health-nut. I am just an average person who decided to take control of my own health. Please, please, please just look up the food relation to conditions and try it concurrently with the other treatments. It might just be the answer and it can't hurt to try it.
Good luck.

I currently suffer from this. i am 38 and have had this since I was 3. There are medications that can help but not prevent occurances. For me the symptoms are 1)I all of a sudden feel very "fussy" like my body is detached from my brain 2) my head feels heavy but I can't move it very fast to lie it down on my chest 3) intense pressure in my head like someone is squeezing, but it is not painful just lots of pressure 4) I can hear you but not feel you touch me, not see you even if my eyes are open, and not talk eve nif my mouth is moving. 5) sometimes they make me tired with a headache afterwards and I sleep for hours; i have even stayed asleep as long as 14 hours at times

My tiggers are when things are extreme : heat, cold, I'm tired, hungry, and really stressed about something.

I take Keppra every morning ang night. I have taken Depakot(sp?), Phinabarbatol (sp?), Tegrotol (sp?), & Triliptol(sp?).
I have found that Keppra is the only one that works for me now, but i told Phinbarbatol when I was a kid until they had to give me so much that it turned me into a sombie at the age of 15 years.

Hi Connie, I am mom of special need child, we have net work of moms sharing what they have done in similar situations. Please call me and I will connect you with people who've suffered with seizures. They will tell you what they've done.
My name is A..

Hi Connie, I'm so sorry to hear about your daughter. My 7 year old son has been having complex partial seizures for the past 1 1/2 years. He was diagnosed at Stanford a year ago. They have good information on their website. There is also good information in a book called Epliepsy, a New Approach. It talks about triggers, diet, sleep, etc.

I definitely notice that if my son doesn't have a set schedule, with good sleep, good food, he's more likely to have an episode. He's on Keppra right now, a low dose, and it's helped with the actual manifestation of the seizures (they're pretty much gone), but he used to have nausea before a seizure and now he just has the nausea. Still trying to figure out how to help him with that.

I also notice that if he's emotionally upset, he's more likely to have a seizure.

The people who wrote the book about Epilepsy mentioned above also do biofeedback to help control seizures. They are in Santa Rosa. Maybe they can recommend someone where your daughter is.....?

Good luck with all of this, and feel free to email e with more questions. Also, check out the Epilepsy foundation website. They have a forum for parents with kids with epilepsy and you can post questions there.

Blessings to you and your daughter,

S.

I know taurine defficiency has to do a lot with seizures in autistic children. Find info regarding this aminoacid. Aminoacids act like neurotransmitters in the brain and it is imperative that she gets all the brain food that she needs.
Omega 3, or krill oil will also help with brain activity. Children with starving brains have all type of dysfunction in the brain. Brain Nutrition is essential. Dr. Jaquelyn McCandless explains with detail how to nourish children's (or people's) brains in her book: Children with starving brains; a medical tratment guide for autism spectrum disorders.
Blessings

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