58 answers

Seeking Advice About an Ongoing Problem with Croup

My son is a 17 month old who has been fairly healthy during his short life with the one exception of going to the hospital ER 3 times (most recently in the middle of a major snow/ice storm), admitted to the hospital for 2 days, and going to his pediatrician 3 other times all for the diagnosis of "croup". All the times he has been to the hospital I have found him blue in his crib in the middle of the night. Every time I speak or see his pediatrician they say "it is just a diagnosis. we will keep watching him". I have asthma as so does 4 other family members. I truly feel that there is some other underlying condition that his pediatrician is not ready to diagnosis. When do you start pushing to have futher treatments or testing done?

What can I do next?

So What Happened?™

Thank you to everyone for the advice. I am happy to report that I had a 45 minute coversation with my son's pediatrician (his actual doctor not one of the partners in the office). I should add at this point that he has never actually seen her for this problem we have had to see her partners. She read all of the past notes, previous er and hospital reports, and the most recent er report from the other night. She too agreed right away that something further needed to be done. She has prescribed him a neubilizer to have at home and we now have a standing on hold order at the pharmacy for steroids for when they are needed (the pharmacy is open 24hrs). We are also going to see a ped. pulmonoligist pending the results of allergy testing. She feels that there is an underlying asthma condition that her partners may have missed since they have typically seen him as a follow up to the er visit. He (and I)had a fantastic sleep last night for the first time in weeks! As I am new to this site, it was very comforting to see how quickly people responded and that others out there have experienced the same situation. Thanks again!

Featured Answers

I am echoing the other moms here when I say, take him to a pediatric pulmonologist. My son is 8 now but he was diagnosed with asthma when he was 2.5yo. As you probably know, asthma means "wheezing" and it doesn't mean he will have it forever - but he should be seen because every wheezing episode will diminish the lung capacity a little more. We see Dr. Hadi Jabbar who is the head of pediatric pulmonology at New York Hosptial of Queens (off Main St near 46th, the old Booth Memorial Hospital). He is terrific, very smart and great with kids. By the way, when my son was 4, he kept getting throat infections - he would take an antibiotic and then a week later, be sick again. Finally they took his tonsils out (Dr. Jerry Huo, also with NYHQ). Since then, he has been much healthier and his asthma symptoms have diminished as well. Good luck, I know it is scary!

It sounds like what happen to me with my older son. The pediatrician would always tell me that it was the croup. I finally took the advice of a family friend and went to a pediatric allergy/lung specialist and found out that my son had asthma and allergic to several things that my pediatrician never told me. Fifteen years later.. my son is healthy and doing great. His asthma is completely under control and still sees the same doctor.

sounds like RSV which would be a simple swab test up the nose. My daughter had it a few weeks ago and need steriods, antibiotics and a nebulizer to finally get over it. She had a croup like cough and a running nose plus a fever. The fever only lasted a couple of days but the cough stayed around for weeks. The doctor explained to me that the cough wasn't really a cough it was a wheeze. We also noticed that she was panting. I would demand the test for RSV as it can be very dangerous especially in children under 2. For older kids it presents as a head cold with a croup cough. It is worth the quick test to know one way or another. Hope this helps a little bit.

More Answers

P.S. My son']s airways were very small and that is why he would get the croup. Try the albuterol liquid.. it really helped. I didn't like the fact that the breathing machine was so long term. The albuterol liquid is for only when they get sick.

Turning blue is not something that should be dismissed or kept an eye on. When my son was 5 1/2 weeks old, he turned blue and was rushed to the hospital where he apent several days under observation hookes up to monitors. We were sent home on an heart monitor( for sleep apnea). It only went off once during the 4 months he was on it. But this was done as a precautionary measure. i would not accept " we will keep an eye on it" as an answer. There could be more than croup going on. Get a second opinion. Doctors aren't always right. You need to be an advocate for your child!!! I don't mean to scare you but one can never be too cautious. I have had 2 more children since my son( he is the 3rd boy) then 2 girls. Both girls were put on the monitor to be on the safe side because of what happened with their brother. We went to a sleep apnea specialist out of Valley Hospital in Ridgewood, Nj I believe we saw a neonatologist. If you want me to look up the name , please let me know but do not wait on this. Take care of it now, please!!!!!!

Keep pushing! If you feel something just isn't right, then it probably isn't! I went through a medical issue when my daughter was a baby and the pediatrician thought she would outgrow the condition. I kept pushing and in the end, I was the one who discovered the true underlying problem and remedy!!! The doctor agreed with me and so did other professionals that I had been going to for help.

Listen to your gut! And if you are not getting anywhere with yoyr pediatrician, get a second opinion. Also, research your child's ailments thru a web search or magazine articles.

Good Luck!

I took my son to a pediatric pulmonologist as per my pediatricians advice when he was9 mo old. He was always wheezing, coughing, bluish fingernails. He also has reflux & eczema. The pulm. said he has respiratory distress disease which could lead to asthma. She started him on pulmicort & xopenex 2x a day via nebulizer. He stopped snoring the first day we used it! He is much better now. I would definately get a referral for a ped. pulmonologist especially since asthma runs in your family. Maybe the coughing isn't croup. It could be that he cant get air into or out of his lungs properly or something like that. It won't hurt & will give you a peace of mind. Good Luck!
Nicole

Always go with your gut instinct NO Matter WHAT! Even if you dont want to be "pushy" or hurt someone's feelings or step on someone's toes, or even if you're just not sure how to explain it so you dont want to sound stupid or something, If your gut says something else is wrong and your doctor says dont worry about it we'll watch him, GET A SECOND OPINION. Get a third if you have to. But dont stop until you find a doctor who listens and shows and communicates to you that he is taking this seriously and is doing everything possible to understand what's going on with your child.

Sounds like your son has asthma. You need to get him to a pediatric pulmonologist ASAP. My daughter wasn't turning blue, but just before she hit 3 years old, she started getting colds that would rush into her chest, combined with wheezing and trouble breathing. After 2 or 3 episodes of this, our pediatrician (experienced with asthma) diagnosed it and recommended we see a pumonologist too. The pulmonologiist is who picked the right medicines for her and she's been well through this cold season (she's 4 now).

It's tough to get an appt with a pediatric pulmonologist, so either find another pediatrician who has experience with asthma and talk to your current ped. about your history of asthma. A child turning blue is nothing to just watch. Something has to be done to prevent this from happening over and over again.

Also, if your son does end up admitted into the hospital again, you can ask for a pulmologist to see him.

Good luck and keep us posted. BTW, I have asthma too and the pulm. told me that if there's a family history, it's a lot easier for them to diagnose it, because their genes already have that tendency.

M. in Brooklyn

I am echoing the other moms here when I say, take him to a pediatric pulmonologist. My son is 8 now but he was diagnosed with asthma when he was 2.5yo. As you probably know, asthma means "wheezing" and it doesn't mean he will have it forever - but he should be seen because every wheezing episode will diminish the lung capacity a little more. We see Dr. Hadi Jabbar who is the head of pediatric pulmonology at New York Hosptial of Queens (off Main St near 46th, the old Booth Memorial Hospital). He is terrific, very smart and great with kids. By the way, when my son was 4, he kept getting throat infections - he would take an antibiotic and then a week later, be sick again. Finally they took his tonsils out (Dr. Jerry Huo, also with NYHQ). Since then, he has been much healthier and his asthma symptoms have diminished as well. Good luck, I know it is scary!

I too had this problem with my now 4 1/2 year old son. After the second time of being admitted into the hospital I had it. One of the nurses gave me a name of a pulmonologist. I didn't wait for the pediatrician. I still go to see the pulmonologist 3 times a years with him.
With my son I know when the weather changes from cold to warm quickly(or vice versa), I need to start giving him nebulizer treatments for the next few days. At first I didn't like giving him the medication but It was better then him struggling to breath and he got soooooo scared. I hate haveing to bring my kids to the doctor but for peace of mind try a pediatric pulmonologist.

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