27 answers

Seeking Acid Reflux Moms

My son has acid reflux, hes 4 months old. I would like to speak to other moms who have went through the same thing im going through. Acid Reflux is newly diagnosed and I think my doctor is uncomfortable prescribing medicine and dealing with it in general. I am trying to get the help I need but it seems I have to suggest to the doctor everything I need him to do, but im not a doctor! I know more about it then he does! All he thinks to do is keep changing his formula over and over again. He was put on Zantac twice a day and Reglan 4 times a day 30 mins before bottle when he was 9 lbs. I have recently requested that my doctor change his reglan to Carafate, due to the side effects of reglan. I have only used it for 2 days now so its too early to decide if I should stick with it. The zantac I increased the dosage myself. At 9 lbs it was 1mL twice a day , I upped it to 1.25mL twice a day now that he is 14 lbs. and have noticed a HUGE change in how much he spits up and how often.

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So What Happened?™

Thanks everyone for their response. I am doing all the research and learning I can about this condition. The Zantac makes an enormous difference in his spitting up. He gets some in the morning and some in the evening.Carafate is used to coat the esophagus so it doesnt hurt when he eats, or when it comes back up if it does. Before he would down 8 ounces of formula in about 2 minutes flat because it hurt him to eat, so he would hurry and get it over with, causing him to have a severe stomach ache afterwards. With carafate he drinks his formula slower and thus doesnt hurt afterwards. My doctor did tell me that he hopes he will be off all medication by the time he is 6 months old.

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My son is 3 years old now but,I do remember what it was like cleaning "spit up" constantly. Give the Carafate a little more time, hopefully it will help. You can also give something called "Thick It" a try. It is not prescription but you do usually have to get it behind the pharmacy counter. You just put it in the bottles and it helps keep the formula down. If you are not doing it already, try to keep him sitting up for awhile after his feeding. Hope this will be of some help.

My daughter also had reflux and the only thing that helped her was Prevacid solutabs. We did half a tab in the morning and the rest at night and it worked wonders. She's over it now and doing fine, been off of it since August. She's 15 months old now. Good Luck!

I don't know a whole lot about the disease, but I do know that maybe you should find a new doctor. My best friends son was diagnosed at 2 months old. His doctor also switched formulas numerous times and had him on Zantac and Reglan, but nothing seemed to help. The doctor never seemed that concerned. When Cade was 6 months old, she switched doctors. They did tests and found out that due to the reflux, Cade had had approx. 5 ulcers in his stomach. My advice, seek a new doctor who knows a little more about this condition. I will see if I can get the name of the new medication they put Cade on that seems to be working really well. Good Luck.

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My 1st 3 were medicated and it never really seemed to do too much, especially with the 1st 2 who had it severely (the 1st one STILL has it at 5yrs, but only on occasion). My 4th has it, but since my last one was born 2 1/2yrs ago, new studies have shown that the side effects and problems that come with the medications do not out way the benefits so it's better to NOT medicate. So, with her, we're just doing the "home remedies" that we did with the others. We put a wedge under her mattress so she sleeps with her head raised, we keep her upright for at least 30mins after she eats, I watch what I eat (I'm nursing), and that's just about all we can do. The meds don't usually help at all with the spitting up (even though you said it helped) so you'd have the same amount of spit up, but it takes their pain away a tiny bit but not enough to get the possible problems or side effects (future breathing problems or diabetes are 2) and resistance to the meds when their older is a very common one. It's VERY VERY dangerous to increase meds without talking to a Dr first. It can really cause them problems in the future that you won't see right away. I know he weighs more, but still, it's better to be safe than sorry, right? If you have problems with your Dr and his discisions, change Drs.

Go out today and buy Nestle Good Start formula with Comfort Proteins and try it for about a week. It worked wonders with my second son who got diagnosed with acid reflux and my third who never had any problems because I started her on it from the beginning. It is worth a shot!! Let me know if you try it and it helps....

If you haven't done it yet get some kind of wedge to go under crib mattress or put a block under the front legs of the crib. My daughter was older and in a bed but elevating her head really helped.

My son had it for a few months when he was around 4 months old. Our doctor gave us a sample of Prevacid (15mg Solutabs) that we had to disolve in warm water and give through an oral syringe. It worked very well for us. I was supposed to give it to him once a day, but we discovered (after missing a dose) that we only really had to give it to him every other day. After a few months, I stopped the medication to see if he had gotten better, and he has not had a problem since. You may want to try a different formula if you are not breastfeeding. I decided to try a different can each time I bought one to see if it made a difference, and it did. I found that with some formulas he would have a more difficult time keeping it down than others. It was frustrating at times, but it was a short-lived problem.

I don't know what kind of doctor that you have but sounds like you need to find another one. Maybe he isn't suggesting any meds for reflux because he doesn't particularly like to give meds to babies unless absolutely necessary. First of all, I don't know why he put that small baby on all that medication, whether there were some bad complications due to other things that I don't know about, but I am a breast feeding person. I think that God gave you boobs for a reason and that is always best medicine. I see more problems when they are on formula. Breast milk has your immunities in it (ALOT OF IMMUNITIES) to keep them from getting sick and having stuff like that. I do understand sometimes it isn't possible to breast feed. I have heard of putting babies on reflux medication but usually it is a weak sphincter and will go away on its own as they get older. It is a little inconvenient but I would much rather prefer the inconvenience to any medication for my small baby any day.
If you want, you can always get a second opinion.

Hi M.

I just have a second, I heard my little one wake up.
My first had reflux...it was awful, he spit up appx 40 times a day and screamed all the time. My second one spit just as much, but it never bothered him so we didn't medicate for it. Some babies just spit up a lot.
My first was on Prevacid and it worked pretty good with Mylanta when needed. I was nursing him so I continued to change my diet until I found what triggered his reflux. It is very hard. Dr's don't like to medicate little one.
My DR didn't until I finally insisted at 14 weeks b/c he had not slept more than an hour in a row and that was only when he was aleep on my chest in the chair. The meds made a big difference. Have you tried the Nutramigen formula? that is what I had to use with my second child. He could NOT handle the milk based formulas. It made a big difference and he didn't have to be medicated.

I am not sure what to tell you other than, I have been there, covered in puke, smelling like spoiled milk with many sleepless nights :) Have you considered changing DR?

J.

Hello M.,

My now 9 yr old daughter had the same problem. Unfortunately, they didn't diagnose her until she was 8 mths old and had a terrible ulcer that had started to bleed! At first they thought I was just 'overreacting', then said it was 'just colic', but with the projectile vomit and if she was laid on her stomach she would scream like the pain was unbearable. Eventually they told me to 'let her cry it out. After taking her to my GP they did a scope down her throat and discovered her ulcer. Which since I had my first ulcer as a child and life long acid reflux, they should have checked with me for my history too. Anyway, they prescriped the same, Zantac and Reglan and a minute (don't remember how much) of another medicine to 'repair' it, she got better. She stayed on the medicine for 4 yrs until she got better. She still has periods of it when she is highly stressed or anxious though and my GP prescribed Nexium for her. The only thing is she now has IBS (irritable bowel syndrome) when she gets stressed. She is like her Mom, very sensitive and prone to too much acid. So we watch and make sure she stays away from acidic foods as much as possible when things are high tension. (like tomatoes, citrus, ketchup, orange juice etc.)
Good luck with your little one. Oh, and they ended up putting Cassie on Nutramegan (sp) and that stuff smells like rotten milk but really helped her also. (AND it's like $25 a container). Take care and let us know how he is doing.

My son was born 5 weeks early and had horrible reflux. He would scream before eating, during eating, and after eating - sometimes for 5 hours straight. At about 8 weeks, we tried zantac and it didn't work for us. Prevacid was our life saver! Within a week of being on the prevacid, he was screaming much less and within 2 weeks, he was a totally different child. He stopped the medication at 5 months and has never looked back.

Hang in there. It's a difficult situation and gut wrenching for any mom!

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