Plagiocephaly Toddler Needs Mind at Ease. Is It Too Late? Boston Mass. Area

It's never too late, and all you can do is try. Don't give up and keep trying and reach out to the support groups mentioned below. It sounds like you got some bad advice, so don't beat up on yourself too much. It's hard to know what to do. Now it sounds like you're following your intuition and reaching out, that's the best thing to do. Just remember it's never too late to reach out and find out what you can do. And follow your intuition.

Hi there, My son had placiocephaly and torticollis as an infant. There are support groups out there. I have not been in the loop for 3 years but we put a helmet on my son when he weas 5 months old..he had it for 2 months and the shape of his head changed so much! We are so happy we did it..even though he had to wear it all the time. I hope the below links will help you or anyone else going through this. I also found 3 support groups on facebook as well if you do a search on plagiocephaly.

http://www.plagiocephaly.info/
http://www.plagiosupport.org/
http://www.childrenshospital.org/az/Site692/mainpageS692P...

Jen

I know how much this makes you feel guilty, like it is all your fault...I know this cause I went through this with my son. What I can tell you is he will grow out of it even though you think it is not ever going to correct itself. My son is now 5 and his head did lose the sever misshape. It seemed to correct slowly and I am still extremely guilty and always look to make sure it is not bad. You can't even notice anymore. If your pedi really thought it needed to be corrected it would have been handled. I know two that had to have the helmet to correct this. :) It will all work itself out.

my daughter also had placiocephaly and torticollis as a newborn. we took her to a specialist who said she would outgrow it and no need for the helmet. which it did. she also received PT thru early intervention for the torticollis