Pcos

Are you on Metformin? I find that helps me a lot. I am also on Yasmin birth control...that helps with the cysts. I still deal with fatigue by going to bed relatively early in the evening and taking a nap when possible...even if its 15 minutes at lunch. I wasn't as tired when I was thinner...but since the birth of my 2 kids I have had a HARD time losing any weight.
Good luck!!

I have PCOS, and the best thing that I did was seeing a chiropractor that practices kinesiology. He put me on some all-natural whole food supplements that have been miraculous. Another thing that has worked wonders for me is cutting back on sugar intake and foods with a high glycemic index. In addition, avoiding caffeine has done wonders with my energy levels. It takes a couple of days to get past the initial "addiction," but the benefits are so worth it.

Aside from keeping on top of your doctor for guidance and help, check out "Fertility, Cycles and Nutrtion" by Dr. Marilyn Shannon. It addresses treating infertility and fertility issues through natural remedies and improved nutritional choices, including issues surrounding PCOs and related conditions. It is an excellent resource and can be found at most bookstores and at Amazon.com. for about $10.

Please read "What your Doctor May Not Tell you About Pre-Menopause" It's incredible. It will give you a whole new perspective on the aging of your body and hormones. There is hope!

Congratulations

Hi A.,

Wow, this thread came at a most welcomed time, as I have just found out I have PCOS at the age of 40. I thought I was going through perimenopause, only to find out I have this insidious hormonal imbalance--the worse one a woman can have, given all the different facets of the body that are affected by it.

I suffered terrible, terrible periods in my teenage years, as well as acne, including cystic acne, which stopped for a while in college, then started again once I graduated. No one, I mean no one--family doctors, OB/GYNs, Dermatologists--could tell me why I was so sick with my periods, or why I got such severe acne. I have always gotten sinus colds easily as well (some immune system suppression, I think, goes along with PCOS), and my periods were always irregular. I was on and off The Pill, as I had problems trying to find one that worked for me.

When I was 29, I was diagnosed with high blood pressure and put on meds. I was taken off The Pill, which I'd just started about 6 months before, because the estrogen was affecting my HBP. Because of my blood pressure (and, at that time, my HBP was the only reason), my OB urged my husband and me to have our children as soon as possible. I married at 30, and a year later we decided if we were going to have a family, now was the time. After only 2 months of trying(!), I was pregnant and had my daughter when I was 32. I never had problems with infertility--which is probably why my PCOS diagnosis went undetected as long as it did. (We stopped after only one child; my health couldn't take another one.)

Pregnancy was uneventful, I was bedridden for two weeks, induced, and my daughter came three weeks early. I did suffer mild pre-eclampsia (I saw my OB at least once a week, and I had more pee tests for ketones than I ever want to have again!), and postpartum blues. I wanted to breastfeed, but was unable to produce milk (I find out now that that is one sign of PCOS, problems with prolactin).

In the years since my daughter's birth, I have also suffered from SAD (Seasonal Affective Disorder), allergies, asthma, atopic dermatitis (acne, skin problems), skin tags, excessive hair growth. I am one of those people who is thin, and have always been thin (other than the slight mommy tummy I currently have). My SAD makes my cravings for carbohydrates and sweets very hard to control; PCOS/insulin resistance doesn't help!

At the beginning of this year, I became quite ill. After numerous tests, it became apparent that my Internist and OB/GYN could not find out what was wrong and subsequently, I left and found a new clinic, new Internist, and new GYN. Upon my very first visit with the new GYN, she said she hesitated to say I had Polycy..., but...the ultrasound she did clearly showed the small cysts, as well as endometrial hyperplasia, which is what happens when a woman has irregular cycles her entire life; it predisposes a woman to the possibility of endometrial/uterine cancer.

When I met with my new Internist, she hesitated to say I might have PCOS because I was thin (you can be thin and still be insulin resistant and have PCOS). But then I told her about my daughter, who's struggling with abdominal weight and already has hyperglycemia, and she took another look at my file and the meds I currently take (egads, the meds!) and said that I'm already being treated for all of the symptoms of PCOS.

She ran a ton of hormonal blood tests/12-hr fasting; I've just received the results. Presently, my glucose level is 100 (impaired fasting glucose; pre-Diabetes); my total cholesterol is 212 (borderline-high risk), with HDL of 49 (women range 50-60), LDL of 128 (in between near optimal/above optimal and borderline high), and trigs are 177 (borderline-high); my thyroid Free Thyroxine T4 is 0.9 (normal is 0.7-1.9) and TSH level is 1.20 (normal is 0.5-6)--putting me close to Hypothyroid); and the CA-125 test was 22.8 (normal 1-35; this test checks for ovarian cancer, but isn't 100% conclusive. It worries me that I'm so close to the high end of "normal"). It's possible I might also have adenomyosis, and maybe even endometriosis (both my mom and sister have the latter).

My glucose and cholesterol put me as insulin resistant. Thryoid probably warrants more testing to determine if it's actually thyroid or pituitary. Also, thryoid problems can affect menstruation. CA-125 will be further checked when I go in for exploratory sono* next week of my uterus and other female organs.

Those of you who found out/have known about your PCOS for a while, you are lucky because you know what it is that you have, and you're able to do something to help combat/keep the symptoms under control. I kept asking my old Internist what could possibly be making me sick all the time (it seemed like I came down with a new ailment every winter), and he didn't know. My new Internist says that would be a typical response from an older doctor (he's near retirement), as PCOS is a newer syndrome and has only been really diagnosed within the last 10 years. Also, my old doctor was treating my high blood pressure and wasn't necessarily looking for or thinking about an overarcing "syndrome."

I have started some natural herb/supplements on my own, such as Ginger root (good for digestion and an anti-inflammatory--many with PCOS have a lot of aches and pains, and this is something that can be taken that's natural, vs lots of Ibuprofen or aspirin); Metamucil (for regularity); Fish Oil Omega-3 (this one is essential for controlling blood lipids); Cinnamon 2000 + Chromium (to regulate sugar and fat metabolism); acidouphilus (helps combat yeast infections from all of the prescription medications I take); a multivitamen; vitC (this is a good one for the immune system); an over-the-counter med for allergy, and Viactiv 500+Vit D&K (to help combat osteoporosis, which is a big problem with HBP and PCOS).

I take 2 prescription oral meds for atophic dermatitis, along with using 2 topical meds daily and 2 topical meds that are used only when I have a break out; 2 meds for SAD; 3 meds for high blood pressure; and 1 med for asthma.

Since PCOS is new to me, I'd love to find a PCOS buddy with whom I could form a support system. If anyone's interested, please contact me at ###-###-#### or ____@____.com.

I wish everyone well on your journey to wellness.

A. C.

ADDITION:

I've noticed many people stating that, once they are successful at having children, they are "cured" of PCOS.

PCOS is a hormonal imbalance. Once you have it, you never get rid of it. You can control it and the symptoms, but you'll always have to be vigilant against high blood pressure, glucose/cholesterol/diabetes, heart disease/stroke, and the myriad of other small problems that come with PCOS, like atopic dermatitis (acne, skin problems, skin tags), huirtism, obestity, hormonal imbalances (testosterone, estrogen/progesterone, thyroid), and cancers.

I have had a child, and I am sicker now from PCOS than I was before I got pregnant with her, and I take care of myself even better now.

It would be wonderful if pregnancy "cured" me of PCOS, and I would love God if that would come true, but that's not going to happen. Once you have PCOS, you have it for life. How bad you get the symptoms depends on your eating and exercise habits, how well you control your weight, and even hereditary.

Sorry to burst anyone's bubble, but if you actually do know how to cure PCOS, let me know, because I'd like it to be gone as well!

Great questions - you are on the right track! I used to have PCOS. Find an intuitive homeopath that muscle tests and she/he can tell you what you need to change or do to stop the cysts and the others things that go along with PCOS, accurately in about 30 seconds. Mine isn't taking new clients or I would give you her name- I am sure there are more good ones out there. It takes a while to find the right one :)

I am a dietitian who specializes in PCOS. Food, exercise, sleep and stress management are all tied to the management of PCOS.

I have had high success rate with conception. Actually, just yesterday I received a call from my sixth consecutive client who conceived within 4-8 weeks of working wth me, after trying to get pregnant for over 1 year. One of my clients actually tried for 2 1/2 years and had a failed IVF attempt and conceived after 5 weeks of making changes to diet, exercise, sleep and stress management.

I agree with the other responders that balancing meals to promote blood sugar/insulin maintenance. Exercise helps insulin receptors work better, which is desired. Also, Metformin, a medication commonly used with PCOS may be helpful with insulin receptor function.

PCOS has become a very common diagnoses and there are more people out there then you know it. I was diagnosed at age 28 when we began trying to have a family. After 5 months of infertility drugs, I went off of them and became pregnant with our little boy, who will be 6 months.

I to, struggled with fatigue for many years. My doctor stated that a low carb diet and excercise is recommended for those who have PCOS. Although, I am a case where I am very thin, so weight hasn't been the issue, however, irregular periods and mild acne has been.

There are alot of PCOS chat boards that you can become a part of and get alot of good information. Just Google it and you will find alot of women out there that have similar situations. My struggle will continue to be adding to our family, as I have always wanted 3 children. So we will wait and see. All in God's hands.

Hi A.. I have PCOS and what you describe sounds very familiar to me, especially the fatigue. Changing my diet and exercise have been the best for me. I fought that for a long time because I really didn't believe that that would work. But it really is the best thing you can do. Another gal mentioned metformin. Many many many women with PCOS are insulin resistant and that may be part of your problem. Find a doctor that really understands PCOS and one that will run blood work. I was told that since I had PCOS I was at high risk for diabetes and should be checked for it every year. There is a great website that I got a lot of support from called soulcysters.com . You will find many wonderful women on there to talk to and get advices from. Hang in there, I know it's hard.

You might look into saliva hormone testing and/or blood hormone testing to see if you have an imbalance in your natural hormone levels. Natural hormone therapy/replacement might be an option... don't know a whole lot about it, but know some people that seem to be very happy with it.

have you tried looking into essential oils? try Gary Young's book:Integrative Medical Guide. it is a helpful reference book by Dr Young – as it has blend recipes listed for about any problem. if you are interested there is info on the oils on www.youngliving.com or research essential oils on google or such. good luck!

I was diagnosed with PCOS 7 years ago. I was told at that time that the way to cure it was to get pregnant. I had numerous laporoscopies to get rid of the cysts. After two years of giving myself fertility shots and having art. insem., I gave birth to a beautiful boy. We decided to do it all over again to give him a sibling. Now we have a daughter. Now I believe that I am cured of PCOS because I am now pregnant with our third child with no medical help. I did not change a thing in my diet or exercise. Have you talked to your doctor? It could be just stress or that you may be sleeping wrong. Other than that, I don't think it has to do with PCOS. I hope you find your answer.

A.,
I have PCOS too. I was diagnosed about 11 years ago. I miraculously have one daughter (7). Are you on any medication? I used to see an Endocrinologist, but since moving here I have not. They had me on Metformin. I felt better and had an easier time loosing weight when I was on it. I really need to go back on it. Do you eat a lot of veggies? That seems to help me. I try not to eat a lot of grains and pastas. I definatly stay away from potatoes as much as possible too. I do use orgainic foods as much as possible, I would excersise, but I never seem to have energy when I get home or I end up doing housework instead. I also use an all natural progesterone cream which is helping to regulate me. I feel better, sleep better, and am actually starting to have cycles. I am trying not to use any meds if I don't have to, but they do help. I also am doing some detox stuff right now and that is helping with the energy. I sell all this stuff if you are interested in finding out more jsut let me know.
PCOS really isn't too big of a deal if you eat good and keep your wieght down. Easier said than done I know!!
Blessings to you!
J.

Hi A.
Have your loving husband get a gift certificate for a massage. It works wonders to relieve the stress your body is holding onto. Or attend the Fri nite at First Evangelical Free church with Brian Fennimore when he comes to pray for people. Call the church for more info.
S.

A.,
I was diagnosed with PCOS when trying to concieve. I knew back when I was a teenager that I would have trouble getting pregnant because my periods were so irregular, but I didn't know until I was in my late 20's that I had PCOS. I now go to an endocrinologist who specializes in PCOS. It can be closely related to diabetes. I was also told, as were others here, that I am a likely candidate for diabetes. Even after being on metformin (which made me feel so much better) and clomid, my husband and I had to go through IVF to get pregnant. The fertility specialist told me I was a higher risk for multiple birth because of my age (now 36) and the PCOS. I gave birth to triplets in October and couldn't be happier. I am going through the weight gain and fatigue again now because it is hard to regulate my diet and get exercise with three infants to care for that were three months early and have a lot of needs to be met. Thank you for asking the question. I will also learn something from the answers you get. Good luck to you.

If you are open to alternative/complementary medicine, you could try acupuncture. There are many acupuncturists that specialize in treating fertility issues, including PCOS and its symptoms. Acupuncture is a "safe" treatment and very "natural". Even if the acupuncture does not "cure" the symptoms you have due to PCOS, the treatments themselves are very relaxing and refreshing.

Hi A.,

I don't know anything about what you have, but I can share with you that I am 44. I ended up having a hysterectomy one month after my 30th birthday because of a tilted uterus.

I did keep my ovaries. I do get cysts on them & yes it is painful. I have many health issues and to this day have not found any other supplements better than what I have been taking for the last 8 years. I have AM & PM packets.
I also started taking their prodct for menopause. I thought that I was going to lse it there for a moment. I feel like a NEW woman!!!!!!!

You should be able to do a "google search" for this. I am sure there is a help group out there. They have them for everything!

J.

Hi A.-
I am so sorry to hear about your health, you need your strength for your family. I just started taking products from Life Force, liquid nutrition. I love the body balance and liquid calcium. please go to my site www.momstayhealthy.com look at the products.
Would also love to talk with you on the phone, so many people have had great results with these products. My brother has had a terrible back and neck problem, he is seeing great results.

I personally love the increase in my energy level.

Please call me T. ###-###-####

thanks

Hi A.! I too, have PCOS..I have 2 daughters. My 1st was concieved with Metformin, my 2nd w/ Clomid. However, after I had my 2nd daughter I went back on bcp for menstrual regulation & was tired of feeling the way I was (bad). So I went off bcp & tried herbs...check this website: http://pcos.insulitelabs.com/Insulite-PCOS-System.php
Taking these herbs completely changed my life. I felt better, had more energy to work-out, I actually had periods on my own which hadn't happened since I was a teenager. After being on the herbs for 6 months I didn't get my period & was so disappointed. Come to find out, I was pregnant. An unexpected surprise but a welcomed one. I'm currently 36 1/2 weeks pregnant & am looking forward to going back on the herbs after my son is born.
There are many different things out there to try so don't give up any hope!
Good Luck,
H.

I have been diagnosed with it too. I was told that the main reason that I am heavy is that my body over produces insulin and that my body is insulin resistant (which is why many women with PCOS eventually have diabetes) Some of that can cause fatigue, like if your blood sugars get a little high. The best way to control this is to watch your carbs. Eating less carbs and making sure the carbs are whole grain is great for controlling this. This will also help some lose weight (if you are not over weight, you could still lose some weight anyways) I havent had a chance to lose all my weight yet, every time I start I end up pregnant!! I had my first son in 1999, then for 3 yrs I was told that with this disease I wouldnt have anymore babies, unless I go thru expensive treatments or adopt. I was heartbroken, then in 2004 I had my first girl. 24 months later, I was blessed with another girl. Still believeing I couldnt get pregnant, we never really prevented anything, so 18 months after my second daughter, I was blessed with another son (he is 2 months old now) I did discover, for all you out there trying to concieve, that I ovulated late, my second daughter due date was 41 weeks and 2 days after my last period, and my second son was 41 1/2 weeks after my last period. Have a doctor check that before they tell you you are completely infertile. :) The pill is recommended if you are irregular with your period, but it doesnt necessarily control symtoms. Also metformin can help with the insulin resistant part. I hope this has help some. Good Luck!

Hi A.,

I am 34 and went through 6 years of trying to conceive. It wasn't until I went to a new doctor that I found out that I have PCOS. She put me on Metformin (also used for diabetics). Within a couple of months, I was pregnant! Once my baby was 4 months old, I struggled with sweet cravings. I went online and found that my sugar was being used for my breastmilk and that left me fatigued and craving sugar. I know that PCOS is just a syndrome and it affects everyone differently, but are you or were you breastfeeding your 1 year old? Do you crave sweets? If so, you may want to discuss using Met. with your doctor. It has made a huge difference in my life (including our little miracle!). It has made me feel much better!

Good luck!

J.

I like to reference the website www.betterlifeunlimited.com. The recommendations on the site come from a medical doctor, but they are naturally based, and he always cites research in his articles that support his recommendations. Hope that helps!

Hi A., I have PCOS (some people also call it PCOD or poly cyctic ovarian disease) I was diagnosed when I was 20 right before I got married. The doctor who diagnosed me told me that the best thing I could do to manage the disorder was to be on birth control pills unless and until I wanted to get pregnant, at which time I may need fertility drugs. She also told me that having my children at a young age was the best way to go since PCOS is a progressive disease and the longer I waited the more likely it would be for me to become infertile. The main trouble with PCOS is not the ovarian cycts, they are usually painless, the problem is that the hormones in your body are out of balance, your body produces too many androgens which are male hormones, left unmanaged this can lead to excessive body hair (which I have been able to avoid), excess weight gain (not as lucky there), very irregular periods including a lack of ovulation (a very big problem if you are trying to get pregnant), and a myriad of other unpleasent signs and symptoms. I followed my doctor's advice, I was on birth control pills for awhile and then when I was 21 I went on clomid (a fertility drug)to get pregnant, my husband and I had a beautiful baby girl, but after her birth I was afraid of what the hormones would do to my breastmilk so I went off the pill, when my daughter was 2 1/2 I was surprised to discover that I had gotten pregnant again without the help of clomid! I was thrilled! My second daughter was born healthy and happy almost 3 years ago. Now my husband and I are trying for baby #3 without any sucess yet, but I am still very hopeful. I did go back on the pill after my second baby was born and it really did help manage the symptoms, but I will go 2-3 months between periods on or off the pill, which means I buy allot of pregnancy tests. It is great that you get lots of exercise as that can really help with the weight issues, and eating well is good too, lots of fruits and veggies can help to regulate hormone levels. Good luck and good health to you!