My oldest son, now 9, was diagnosed with torticollis when he was around 2 months old, I think. He'd had a hematoma on his neck and we think that's what caused it. We went to PT and it helped. We then moved cross country. No one told us to continue the exercises or to keep an eye on it. We thought he was fine.
Moved back cross country and noticed that his head was kind of tilting and took him to the doctor. He had more PT (if you can call it that). The PT saw himn 3 times and showed me exercies to do at home instead of going there and doing it there with someone who knows what they're doing (besides with me being in school and working, it was hard to get it done at home and him not wanting to do them.) We ended up not getting enough PT time in.
He saw a pediatric opthamologist and it wasn't his eyes.
Saw a couple of more doctors at PHX Children's Hospital. One wanted to do Botox. That kind of scared me. The insurance would cover it in such a young person.
He then saw an orthopedic surgen, Dr. Wu in Phoenix. Excellent doctor. He did end up having surgery when he was 6 to release the neck muscle. We did do more PT (we found an excellent PT in Goodyear, White Tanks Physical Therapy, Cory. They're not a pediatric PT (we did that at PHX Children's, really hard to get in that's why I found White Tanks and they're closer, even though their PT was good at PHX Children's; they're not the 3-visit one, that's yet another one) but Cory is great with kids and knows how to get them to do the exercises) but the muscle was too fibrous by then and it didn't help very much.
Dr. Wu released the neck muscle and then we followed up with PT with Cory and now his head is straight. His eyes are a little uneven and his ears too from having his headed tilted so long. The were even with the head tilted. Every once in a while I catch him tilting his head and I remind him to straightne it. Part of it is muscle memory, so he just has to practice keeping his head straight.
I'm thinking if we had known to keep an eye on it more, not think that the PT when he was a baby fixed it, and found better providers earlier that maybe the surgery could have been avoided. Who knows, but now he's fine.
His torticollis wasn't due to his eyes, but that's our experience with torticollis in a nutshell. (We went to a pediatric opthamologist on Bell Rd. around 59th Ave., I think. Not too far from Arrowhead.)
Let me know if you have any questions or need phone numbers for doctors or PT or anything else. Good luck.