My Grandson Thomas

Updated on June 23, 2014
P.P. asks from Salem, MA
14 answers

There is a reason why he did not heal. My daughter took him to the doc on Saturday for a strange rash that developed. Sent to the children's hospital and will remain there for now. He has all the tell tale signs of leukemia.

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So What Happened?

I don't trust what is going on. She has him at children's hospital in El Paso Texas. We live in Mass. She should come back home and go to Dana Farber Boston Children's. That's all they do is children's cancer. #1 in the country.
In addition to his ankle not healing, he now has a fracture in the lower feemer. The docs tell her it's part of the disease. Diagnosed with ALL. Looking it up it sounds like AML. The docs are telling her he will be cancer free in 2 wks. Really? What the hell is going on here!!??

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M.O.

answers from Dallas on

I'm so sorry. Hoping that there are other answers that are more easily treatable and it's not leukemia.

1 mom found this helpful

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J.B.

answers from Boston on

So sorry you're all going through this, you must all be terrified. Was the rash petechiae? One of my sons had some unexplained petechiae a few years ago and waiting for the doctors to tell me it wasn't leukemia were some of the longest hours of my life (he was fine).

Even if it is the worst, please keep in mind that the cure rate for Leukemia is very, very high. It's the rare case that isn't 100% cured. I've had several colleagues whose kids are happy, healthy Leukemia survivors and one of my brothers friends has been cancer-free for more than 30 years after beating it when we were children.

I'll be thinking of your grandson and family...please keep us updated.

5 moms found this helpful
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P.K.

answers from New York on

Signs of leukemia? Usually have a diagnosis immediately. Everyday counts. What's taking so long? Prayers your way. Keep us posted please. If it turns out he does have it, as hard as it is, the cure rate is like 97%. Have had three friends with children with diagnosis. All healthy and happy.
Hugs to all.

5 moms found this helpful
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M.B.

answers from Austin on

I'm glad he is getting further testing..... I'm sorry for the potential diagnosis. Keep us posted!

4 moms found this helpful
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B.A.

answers from Minneapolis on

Of course you are worried. At this point all you can do is wait for a diagnosis. Then deal with what is. A Children's Hospital is the best possible place for this little guy.

4 moms found this helpful
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B..

answers from Dallas on

Prayers for him said.

3 moms found this helpful

D.B.

answers from Boston on

So sorry to hear this. Please stay on top of them for results to tests. A children's hospital is the best place, as others have said. Even if this is the diagnosis, please know that there are incredible things being done not just for treatments but for minimizing the side effects of things like chemotherapy. I have neighbors who have had children successful treated for leukemia with chemo (one is now 15 years cancer-free) and there are so many "cocktails" available based on each child and each form of leukemia. Moreover, I'm associated professionally with many scientists who've made great strides with a natural peptide that has many benefits for immunity and which appears to be successful in stopping metastasis in some forms of cancer (with dozens of published papers and many more in the works). What's more, the food science approach can be used in conjunction with the medical approach because there are no contraindications. There is great reason for hope.

3 moms found this helpful
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D..

answers from Miami on

So terribly sorry. Saying prayers for him.

2 moms found this helpful
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G.B.

answers from Oklahoma City on

I'm so sorry your family is going through this. I know there are many treatments for this disease nowadays. Prayers are being said for your little Thomas.

2 moms found this helpful
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M.L.

answers from Colorado Springs on

Oh, I'm so sorry! Thomas is in my prayers. I'm glad he's at the children's hospital. The people at Children's Hospital in Denver saved my granddaughter's life when she was born. Please keep us posted.

2 moms found this helpful
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J.C.

answers from Philadelphia on

Oh P., I am so sorry. How terrifying for all of you. I will say prayers for Thomas and your family.

2 moms found this helpful
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J.C.

answers from New York on

Poor baby - I'm so sorry for you all. Stay strong. It will be a fight but he will be fine!

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S.S.

answers from Atlanta on

I'm truly sorry you are going through this.

You need to get informed. I know many people say to avoid the internet, you aren't looking for a diagnosis, just answers. I would stick to web sites like The American Cancer Society, The Mayo Clinic and Children's Medical.

This is what I found.

http://www.cancer.org/cancer/leukemiainchildren/detailedg...

A diagnosis is what you need. Don't assume anything. Fear and panic are the worst. You need to be informed. Talk to the doctors and learn from them. Find out his white blood cell levels and talk with the doctors.

I wish you sanity and healing during this time.

S.

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❤.M.

answers from Los Angeles on

I am so sorry. I will say prayers for your family.

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