I just read all the other responses, and definitely agree that you should get your son evaluated. You DO NOT need a pediatrician's referral. The State of IL accepts referrals from parents, grandparents, caregivers, teachers, etc. It is a state-run program. If you can't find the number for child-family connections in your community, contact the state department for human services. The evaluation is free, and if your son qualifies, services will be provided at your home for a monthly fee, which is determined by your income, but includes ALL services under the early intervention umbrella, so if your son gets speech and OT once a week, but also needs a consultation or evaluation through a hospital or psychologist, etc., it will also be covered under the fee. They do bill your insurance first, but it doesn't change how much you pay each month. If your insurance picks up most of the cost, you can request a refund of the unused family fees you've paid about a year (I think) after your son leaves EI. My son was in EI, and now is being served by the school district since he turned 3. The earlier a child gets help, the better. I am surprised that the hospital and/or your pediatrician didn't tell you sooner. I get the feeling from meeting other parents that when a preemie is born, Early Intervention keeps a close eye on them to ensure they are developing appropriately. Good luck!