Looking for Other Moms with a Child Diagnosed with Asperger Syndrome

Hi S.
I want to encourage you and tell you that you are doing a great job as a mom. You are concerned and you are looking for help and that is commendable.

I know this may seem strange but have you looked into chiropractic? Both the conditions that your son has been diagnosed yet have seen tremendous results under upper cervical chiropractic care. There are a number of websites you can check out to get more information, which I will list below. You can also google upper cervical chiropractic and the condition of your choice and come up with some great information. In fact, there was a study with autistic children in which all 7 children improved dramatically under upper cervical care and 2 of them were not even considered autistic anymore!
I am in the Belleville, IL area. I'd love to meet with you to discuss you options...or please email me for any more information you may want or need.

http://www.erinelster.com/Articles/add_articles_main.html
http://www.erinelster.com/add.html
www.upcspine.com
www.nucca.com

Have a tremendous day!
J.

1 mom found this helpful

I would contact a local college or doctors office for a family support group. I live right outside of Springfield, MO and teach in a special education setting. In our area we have a family support group for parents of children with autism, aspergers, or any autism spectrum disorder. The process coordinator at your sons school may also have information.
Good Luck.

Hi S. R,

My 14 year old son has Asperger's Syndrome, ADHD and Bi-Polar. We currently live in Colorado but will be moving to Broken Arrow as soon as our home sells. We are trying not to trigger an episode with JJ and make this move as easy on him as possible.

Our son was diagnosed with AS about a year ago...after doing some research we could see all of the qualifiers fit him to a T. We aren't quite sure what is JJ's special subject yet. But because he wasn't diagnosed until middle school we feel he was left behind due to being taught using emotional symptoms as a guide instead of physical symptoms.

Do you have an IEP (Individual Education Plan) with the school he attends? We have had one with JJ since 1st grade...he was diagnosed with ADHD when he was 5 and they added Bi-Polar when he was 11.

The hardest part of being a parent of a child with AS has been two-fold...watching JJ trying to make a long term friendship with his peers. He can make friends easily but he loses them as easy. And, realizing that our son is at a 4 year old's level emotionally but in a 14 year olds physically.

Does BA have any support groups for special needs chidren? We attend one here in CO and hope to find one when we make our move to BA.

W. Q

Hi S., I don't have a child with Asperger Syndrome but my son does have CP. There is a group here in KC called EFECT which stands for Encouraging Families with Exceptional Children Together. They are a group of wonderful parents dealing with the same type of issues. They have a yahoo webgroup called Efect and they also have a website which is www.efect.org. I hope that you are able to find some of the answers you are looking for!

D.

My son is now 18 yrs and has always been "different". He was diaagnosed with just about everything from ADD,ADHD.OCD...only to have them say he ded not have whatever it was thought he had. He was finally correctly diaagnosed when he was 14Yrs.It is something people have to accept and learn to live with.Most people don't understand children with Asperger's. They think they are just kids the parents let get out of control and don't have boundries. It will be a hard road for all of you. I fought with schools for years,I finally Kept him home and home schooled him . Good luck to you all and God bless

Hi,
My just turned 7 year old son has Asperger's, diagnosed last summer but I knew a year before that. He also has Sensory Integration Disorder, Giftedness, Dyspraxia and food allergies. He is very high functioning and attends a private school here in South County and is in the SNAP program for speech. He should be getting a lot more services through SNAP but he was denied b/c he has some intelligence. I actually have posted several places to get a small support group going for ASP kids and moms. Judevine doesn't have one for ASP just for Autism.
We are in St. Louis MO. If you want to get into a little group and maybe let the kids get together and/or moms only please let me know. I am in South County near Telegraph/Reavis Barracks.
L.

i don't have a child with the disorder, but my younger sister has asperger's, adhd, and bipolar. i also work at a counseling center. i will be willing to answer any questions if i can.

A.

I work in family law as a paralegal. We have clients whose children have been diagnosed with Aspergers. Some of them go to Dr. Harriett Barrish who deals with kids diagnosed with Asperger's. Her phone # is ###-###-####. Her office is located at College Blvd & Roe.

Good luck to you!

I have a 4 yr old son diagnosed with moderate Autism, but the original thought was Asperger as he has a lot of those type mannerisms.

I have another son, who is 18 months old. I work as a Realtor, so have a chaotic and unpredictable schedule. My fiancee works at a local television station so is gone a lot as well.

If you'd like to chat, just let me know. We can commiserate and conjecture together! We just got the diagnosis a few weeks ago so I'm still trying to figure out what it all means.

He starts a special education preschool program in a couple of weeks and I'm hoping that will help him learn to cope with others and how to interact.

- S. in Wichita

Cafemom.com
you will find this very helpful

try getting information on support groups in your area through NAMI the national alliance for the mentall ill www.nami.org

good luck
please let us know how it goes

I am a special ed. teacher who has a student with Aspergers in my home. We have had him for almost 3 years now. He is in third grade. He has made so much progress socially. His academics are pretty good. He was just re-evaluated. His math is on a 2nd grade 5th month. His reading and spelling are 6th grade 8th month. 'Bob' does his best when he knows the scheduled events for the day. As both his special ed. teacher and part-time parent, I am soooo enjoying seeing him grow socially. He has quite a ways to go though. At our house, he has to do 3 things with our other kiddos before he can resort to his 'Asperger's Island'. He is expected to invite/ask another child in our home to do a puzzle with him. He then has to go outside and interact with the boys for at least 30 minutes. Last, he has to ask my husband to shoot baskets with him or play catch. At first he hated it. But once he got the reward for participating and interacting, he has added one more thing to his list. He actually gets a toy and plays with our small dog. He would much rather be alone on the computer, watching Toon Disney, or drawing/writing on his Magna-Doodle.
Children diagnosed with Asperger's are so much fun. Enjoy him!