S.W. asks from Allen, TX on February 18, 2009
Looking for DAN Dr. Recommendations, Nutritional Therapy for Autism
Hi, all. We are going to see Dr. Rao in Plano for nutritional testing related to autism issues. Has anyone else been to Dr. Rao? What did you think? We have heard that he(and the DAN dr's) do nutritional testing, but also then sell you the supplements. It sounds possibly shady, but we know there is a big nutritional componenent to my son's needs and want to know how we can help him. I would appreciate your input.
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A.F. answers from Dallas on February 19, 2009
I recommend Dr. Elahi in Plano. She's amazing, and doesn't try to sell you on supplements. Her # is ###-###-####
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D.B. answers from Dallas on February 19, 2009
S.,
To answer you questions about gluten free diets---there is a LOT of online information. I would start with www.glutenfreemommy.com . Her recipes are excellent and reliable. She has a LOT of links down the righthand side of the screen. Check them out as often as time allows. I am doing gluten free with my son, so feel free to email me privately.
DAN doctors---yes, it is tricky to trust someone running tests AND selling the supplements. You may want to try to find a Dr. to run the tests and then buy your supplements elsewhere. I do NOT sell supplements, but can direct you to some of the good places to find them. At the least, you could compare prices, etc. Again, if you'd like me to help, email me privately.
1 mom found this helpful
L.C. answers from Dallas on February 19, 2009
S.,
I have a son with autism and we do not ses Dr. Rao. We have chosen another path but I am a part of a yahoo group and there are MANY women who do go to Dr. Rao. They would be more than happy to share. If you are interested in joining just email me. ____@____.com
You can ask anything on there.
L.
L.W. answers from Dallas on February 19, 2009
I highly recommend reading Jenny McCarthy's book Louder than Words: A Mother's Journey in Healing Autism. You laugh/cry through the book.
Good luck.
J.R. answers from Dallas on February 19, 2009
Hi S.,
I work in the school district with autistic children and I my middle son who is high functioning autistic. Although I have never used Dr. Rao for nutritional needs, I just wanted to share something with you:
If your child is truly autistic, a change in his diet will not make him miraculously healed.
I think it is very sad that Jenny McCarthey has claimed that her child was autistic and is now completely healed due to "his miracle diet" change because it allows parents who have autistic children to be ripped off by all of these people claiming to have the diet cure for the autistic child (the prices being charged for the "curing supplements" are ludicrous). Anyways, although changes in diet can help your child's focus and lessen agression at times, it will not heal an autistic child (this I know from experience with my own child and with other children I have worked with over the years).
Personally, I would love to have seen Jenny McCarthey's son before and after his "miraculous cure" because I'd be willing to bet that what she is considering autistic, was nothing like what you and I have experienced with our children. There may have been an imbalance in her child's diet that caused him to have autistic like symptoms but I do not for a minute believe that he was truly autistic.
Parents, be warned. Please don't allow these people to continue to "rip you off" just because Jenny McCarthey says it's true! I've seen many, many autistic children on special diets (especially since Jenny McCarthey's claim) and I have yet to see one of them miraculously "snap out" of their autism!
I'm sorry to be so blunt, I am just tired of these doctors ripping off families who are hurting....tired of seeing these doctors ripping off families who spend every penny they have because they are desperate to help their child! Your money would be much better spent in getting your child the best life skills help available so he can live the most unassisted life as possible!! Change your child's diet and make it as healthy as possible, just be very careful about these doctors who claim they can cure your child! I trust a doctor more when he says he will try to help my child be the best he can be, not when he promises a very unlikely cure!
I love autistic children and my heart goes out to their families. I know the pain of wanting every opportunity for your child possible and I also know first hand the disappointment of having such high hopes for a cure because some movie star claimed it worked on her son!
Best wishes to you all!
B.H. answers from Dallas on February 19, 2009
Have you tried Acai juice?? Jenny McCarthy and many others have said that it was instrumental in curing her child's Autism along with a gluten free diet. Acai comes from the Amazon Rain forest, and is the most powerful superfood known to man. If you are interested in trying some please check out my website, mymonavie.com/bjhiller for more information, as well as my contact info. You will find all of the nutritional information there. In two 2 oz. servings of juice one can get the equivalent of 13 servings of fruits and vegetables along with every essential amino acid and omega 3 fatty acids. It is easy to get my 3 year old to drink it because it tastes good, (unlike wheatgrass juice) is approved for pregnant and lactating women, and has no caffeine or stimulants, just nutrients. My husband and I decided to try it for our health, now we just want to share the benefits with everyone.
A.F. answers from Dallas on February 19, 2009
I have worked with a lots of mom with Autistic children who have had great resault with Nutritional Food Supplement developed by a Nutritional scientist. I will be happy to connect you with other moms and give you details on the supplements.
Let me know.
A.
C.C. answers from Dallas on February 19, 2009
You should visit www.autismspot.com. The website is a great resource.
A.F. answers from Dallas on February 19, 2009
I recommend Dr. Elahi in Plano. She's amazing, and doesn't try to sell you on supplements. Her # is ###-###-####
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