Do any of you have a children who has hypospadias? Any children have the surgery? if so, what age? Any children not have the surgery? Are they okay? We have mixed reviews from doctors and I need to hear from parents what to do. We are so confused as to what to do...Would like to hear from parents whose children had the surgery and to see the results when they are older. Also, to hear from older children who did not have the surgery and to see if they are alright. Any advise, information???
My son was just diagnosed at 2 yrs and 5 months with this Hypo Spadius we live in California and we are being referred to Children's Hospital in Los Angeles to have his surgery in a couple of weeks will keep you all informed.
My son had the hypospadias surgery at 4 months old. It was very scary to see your baby after surgery because he was really messed up form the anastasia. Over all we have had great results. He is now 13 months and every thing is normal. If i had to do it with another child i would.
A friend of mine's son had the surgery at age 2. She said she was amazed at how well he tolerated everything. His surgery was a complete success. He's now 7 and all's well.
Good luck to you in your decision. Hope this helped...
Hi. My son had hypospadias and had the surgery to repair it at 9 months. Anytime after 9 months, the surgery can be done as an outpatient procedure. My son will be a year old on Saturday and is doing great. The surgery was done outpatient by a great specialist at Cedars - Andrew Freedman. Similar to others below, we never thought twice about having the surgery. We thought it was very important to have the surgery done and our pediatrician said that we would be doing the surgery. Had we not done the surgery, my son would have looked different from all the other boys, however the most important reason why we did the surgery was so he could urinate properly and not urinate in the wrong direction. While it is a scary thing to think about your son having surgery, Dr. Freedman, as well as other specialists, do several of these surgeries every week. It was a challenging week after the surgery, as it is uncomfortable and painful for the baby, however they prescribe pain medication which helps. The thing that is most uncomfortable is bladder cramping because there will be a catheter inserted for a week but they will give you medicine to relax the bladder and help with the cramping. Don't worry, there isn't a bag hanging down, the catheter drains into the diaper. We just did a lot of cuddling and reading books to comfort my son and he handled it like a champ. My son healed fast and will be happy we did the surgery. Feel free to email me directly if you want to discuss further.
My nephew had that. As soon as he was born, they told my sister he would need surgery. The doctors advised her to wait until he was at least 1 year old. He wasn't circumcised, but after the surgery it looked like he was. My sis told me they used the extra skin in the surgery. The doctors told her it happens in 1 out of 100 males, but it seems like it's becoming more common. My good friend's son also had it, was also told to wait until he was 1 to have the surgery, but he would need 2 surgeries because it was more severe. So far he's just had one, and will go for his second surgery soon. So maybe get another opinion. The doctors also told my sister that her son would not have any problems having children when he grows up, so that's another thing to think about.
My son had mild hypospadias. He had the surgery at 14 months. He's 4 1/2 years now and no problems. They sent us to a pediatric urology specialist at UCLA. It was hard for us to make the dicision as well, but we have no regrets. Hope all goes well whatever you decide.
I would definately get a 2nd or even 3rd opinion. Our pediatrician thought he had it, and my gyn. who was to do the surgery, said no, and he's fine!
Best of luck.
B.
We were told in the delivery room that our son had hypospadia. Scale of 1-10 about a 7 in complexity. He went to Dr. Hardy at Children's Hospital in LA, and he was wonderful. I insisted on having him seen by Dr. Hardy at about 2 months, though they said the surgery should be done at age 1. Dr. Hardy examined and confirmed. I asked what if I didn't have it done, and he said to me, "You want grandchildren?" and I said, "That is that." I couldn't deny him a family. He had it, and had a followup exam 6 days later. The next day, during a diaper change in the car, he reached down for a split second to scratch and ripped it open. I was on the other side of town and very scared for him. I took him to the ER at Children's Hospital, and they told me they got 1 or 2 boys a day who would have a complication. We had to wait 6 months for it to heal so they could do it again. When I called the insurance company, the lady who helped me told me that they just found out her 15 year old had it. He knew he couldn't pee straight but didn't think anything of it. They were preparing I believe for his surgery, but the doctor was warning him how painful it would be at this older age. I am guessing it is painful at any age, but at least as a small child he wouldn't have recalled it. The second time, for about two weeks, we restrained him by holding his arms if together or strapping his arms down (with special restraints from the hospital) during diaper changes if the other parent wasn't home. He hated it, but something you may want to consider if you don't want to do it twice like we did. If you can get in to Dr. Hardy, I think you should consider his opinion definitive. Our son is nearly 4 now and pees with precision, brags he doesn't even have to "hold" it and never has gotten any on the walls, etc.
Hi, I know this is an old question, but we've been through it all with hypospadias. I'm here to help if you have any questions: http://www.hypospadiasmom.com/ Good luck!
My oldest son had the surgery at 8 months old. His was said to be mild, but no doctor ever questioned that we were going to do the surgery. The anticipation and recovery from anesthesia were the worst parts. When we went into the recovery room, and he tried to speak to us, he sounded like Danny from The Shining. All worked out fine and his circumcision was done at the same time. He is now 2 years, 8 months and potty training. I can't imagine going through that without having done the surgery (even though it was mild). I wish you the best of luck with your decision making.
Hi, My son had hypospadias. There was never any question about whether or not to do the surgery. As soon as he was born that was the first thing the pediatrician said. He will need surgery. So he had it when he was 6 months old. It was scary because they had to put him completely out. We had a wonderful Dr. He came out amazing and you could never tell the difference between him and my other son. His circumcision actually looks better than my other son's regular circumcision. From what the Dr. told me if you do not do it he could have serious kidney problems later on because all of the urine does not get out.
A friend of mine had hypospadius and for some reason his parents never had the surgery AND NEVER TOLD HIM HE WAS DIFFERNT. He simply urinated sitting down--always so as not to make a mess. (I was the idiot that told him he had a birth imperfection--he was in his 30's at the time.--oops) Another relative of mine is going through multiple surgeries with her infant, because the flap of skin used to cover the "old urethra outlet" keeps falling off and he keeps getting infections because of it. There are complications with every surgery so keep that in mind, too.
