S.V. asks from Fresno, CA on April 05, 2008
Hgh
We were just told that our little son might be a canadate for hgh human growth hormones. they are 3 and my little guy still only weighs 18 lbs, where as his twin is almost 40lbs. does anyone have experiance with hgh?
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H.F. answers from Sacramento on April 07, 2008
If you haven't already, I recommend meeting with a pediatric endocrinologist... he/she will be able to tell you if hgh is right for your son. Good luck.
C.W. answers from Sacramento on April 07, 2008
I feel for you-Love & Good Luck!
L.J. answers from Sacramento on April 07, 2008
hi my name is leeanne and my little guy was earlier as well..he is on the short side for his height and average for his weight..i work in a medical office, so my advice would be to ask lots of questions of your pediatrican ,do as much research as you can...because frankie has a compromised immune system i am leary of giving him anything..good luck
R.S. answers from San Francisco on April 07, 2008
i used to make it when i worked at genentech. you can call the genentech customer service line and they will send you all sorts of information on it and you can ask to be put in touch with other families who have gone through what you are going through!
S.H. answers from San Francisco on April 07, 2008
I personally do not- however I can send you to a yahoo group where there are some people who do. ____@____.com a group for families with children who have kidney issues from posterior urethral valves...I know there are some families who post there that have children on HGH...and they are pretty knowledgeable. Even though your son may not hve the same issues, I am sure that someone can answer your questions.
good luck- I'll let them know that you may be posting.
W.H. answers from Modesto on April 07, 2008
'Might be a candidate' does not mean it is the best thing for him. I think it is being recommended because (one of the reasons anyway) he has a twin that is bigger.
My own son in kindergarten is the smallest kid in the class. He is only 31 pounds (he's over 5 1/2). I did ask about it about when he was a toddler (he took FOREVER to outgrow his infant car seat. I finally turned it around anyways at 15 months even tho he wasn't near 20 lbs yet) Anyway, the doctor (who worked with other kids using HGH) said it was not a necessity for him since that was just the way he is. His dad is 5'7" and is a (what's the masculine term for petite?) small wiry man. Both of us were barely pushing 100 lbs graduating from HS (oh how I wish I could say I still was! oh well) I myself am only 5'2" and the smallest in my family as well. (not that anyone is really big in our family, I'm just the smallest of us all). So anyway, dr said he would be just as well off to not be on it. So we didn't.
However that comment on Celiac intriques me. My son has started complaining every so often that his tummy hurts, especially in the middle of eating. I guess I'll have to look into it.
M.D. answers from San Francisco on April 07, 2008
Hey how are you ,
I knew a family with your very same problem and the little one is just fine and not tiny any more .He is adult now and has kids of his own . HGH is really a serious thing to give a baby . I have a deep feeling towards this type of thing and would get several second opinions and weigh it very careful . This is your child and God for sure only knows what these medicines can cause in later years .My own child was very tiny and I worried about her and took her to the doctor because I feared she was never going to grow . Well she did grow and all my worry for nothing.I can understand how you feel and so I know it is hard choices to be made so be very careful and you and your husband God Bless you both and please think long on this.
Paula
K.K. answers from San Francisco on April 07, 2008
have him tested for Celiac. if you google it you'll find all kinds of information. here's a quick definition:
Celiac disease: A disorder resulting from an immune reaction to gluten, a protein found in wheat and related grains, and present in many foods. Celiac disease causes impaired absorption and digestion of nutrients through the small intestine. Symptoms include frequent diarrhea and weight loss. A skin condition dermatitis herpetiformis can be associated with celiac disease. The most accurate test for celiac disease is a biopsy of the involved small bowel. Treatment is to avoid gluten in the diet. Medications are used for refractory (stubborn) celiac disease.
my niece who is now 12, average size and very healthy, was a candidate for hgh as well because at 9 years old she was very, very tiny and was growing at a very slow rate. she had a lot of stomach aches, too.
the doctors were testing her for everything but Celiac until her teacher suggested it... the family doctor said "well ok but i don't think it could be that" and lo and behold it was.
they changed her diet and she shot up a few inches in a year. it was magic. and she feels a lot better now, too! easy to test for so it's worth giving it a try.
good luck!
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