Henoch Schonlein Purpura (HSP)

http://www.medicinenet.com/henoch-schonlein_purpura/artic...

This site can tell you a lot more.

Dear L.,

This may be an off the wall response and I'm not going to "give" you an answer but rather suggest you do some reading. I just finished reading a book called "Curing the Incurable" by Dr. Thomas Levy (get it from Amazon.) Read it and see if you don't find what is going on with your daughter in the book.

When people have odd things happening you need Columbo not a regular doctor. They don't have the time nor the talent to really figure out what is going on. Best if you figure it out yourself. The next letter had some good information but this stuck out "The exact cause of Henoch-Schönlein purpura is unknown, although it may occur after certain viral and bacterial infections, as well as an adverse drug reaction to some medications." All infections stress the body's stocks of Vitamin "C" because it is used up in fighting the infection. Sounds like your daughter is short of Vit "C". Give her lots of Vit C and read the book.

God Bless,

S.

My daughter had HSP when she was 5yr.old. We experienced the tiny, bruise-colored rash all over her, she could not walk to due joint pain, she vomitted excessively. I was scared to death! I did a lot of research on it (on my own) because the doctors didn't really seem to know a lot about it. The HSP did seem to come and go for quite a while. One day, she'd be fine, the next she'd be vomitting and achy. We went to the doctor regularly with our urine samples, etc..
Luckily, it did not affect her long-term. She is a thriving 11 yr.old now!!
Usually, in mild-cases, kids get over it in about 6 wks.
Had your daughter been vaccinated before the HSP?
You did say she had an infection, this could be the cause.
There's actually HSP support websites. Go to google.com and type in HSP.
I would reccomend no school, keeping her immune system built up as much as possible. Look in to the probiotics, natural remedies, etc..
You will get through this. It just seems to last forever when it's your child that's sick with some strange illness.
I'm thinking of you, take care and keep us filled in.
Let me know if I can be of help!

I had this when I was a child in the first grade. I remember my legs tingling constantly from this, like how they would feel after a day of roller skating. Back then, I had to spend a week in the hospital! It did spontaneously clear up with no lingering effects. But the urine samples and extra doctor visits did continue for quite awhile to make sure there was no lingering damage to the kidneys. Oatmeal baths and benadryl if the doctor allows. Extra hugs and kisses and extra rest.

our daughter had that after repeated strep infections and tonsillitis. She was treated each time with antibiotics and then finally had a tonsillectomy. However the HSP continued and she got worse with the added symptom of abdominal pain and severe fatigue along with the purpura. At one time both legs were completely black like she had been beaten. we took her to a pediatric specialist and then ended up having to put her on steroids for several months after extensive testing. now she is fine. this happened when she was seven and now she is 35. At that time even the specialists did not know much about HSP. I continued to push to find the cause as our family doctor thought she was faking it. Even though I am a nurse, I had to really push to get her the medical care she needed. That is my message- be your child's medical advocate. M.