K.F. asks from Oregon City, OR on January 20, 2008
GERD - Other Treatments?
My Daughter, Abby 19 months, was born with severe GERD. We had to have a GI feeding tube placed when she started to loose weight, just a week or so after her 1st birthday. Since then she's gained weight and is in the 25% for her ht/wt. She still has a lot of GERD symptoms through out the day and worse at night (since she lays down, the head of her bed is elevated) she is feed contiuously by a feeding pump during the night. She vomits most mornings. During the day she often swallows hard, hiccups, sneezes, and scratches at her ears and eyes (this is all reflux related). Currently we have her on Prevacid, and have tried Zantac and Prilosec (seemed to work pretty good but with each weight gain we'd have to increase her dose). I put Gripe juice in her feeding bag at night and this seems to help a bit...less vomiting in the am. She seems very uncomfortable and wakes up several times during the night repeatedly swallowing. Does anyone have experience with a more "natural" approach for GERD, the "traditional" medications don't seem to eleviate all her symptoms, don't get me wrong they do help. Without them I wouldn't be able to feed her without her vomiting 2 - 3 times during a meal. Anyway any advice would be helpful. Thanks
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B.K. answers from Seattle on January 22, 2008
Hi Karlee,
My daughter, 12 mos, has mild GERD. My chiropractor treats babies with GERD so I decided to give it a try. After her first adjustment (it's simple and painless) she slept through the night for the first time ever. It may be worth a try for you. I hope you can find something to help. It must be very challenging dealing with severe GERD. I have found my daughters mild symptoms stressful. Take care.
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E.M. answers from Portland on January 24, 2008
Hey, K.,
I seem to be the resident naturopath here. I'm not sure if you've looked into food allergies yet for your daughter Abby. Identifying and eliminating them can be tremendously helpful for GERD, and can also help prevent long-term common childhood issues such as eczema and asthma. My own daughter is 21 months and had severe colic issues that were completely resolved by eliminating her food allergies. Those were five very long and difficult weeks for us. I can only imagine still coping with these kinds of issues for 19 months!
Feel free to call or write for more information.
Dr. E. Mendenhall, ND
###-###-####
<____@____.com>
T.D. answers from Portland on January 21, 2008
Hi K.,
My son also has GERD and has vomited pretty much everyday of his life, he is now 5 1/2. Although we have not had to use a feeding tube as he has no problem eating everything in the house...lol. I have had some success with Chiropractic. Recently he had a respiratory infection and was given albuterol in an inhaler....he did not throw up the whole time he was using the inhaler, once we stopped it the vomiting began again. I have started the inhaler again and the vomiting has reduced dramatically. The GI DR also prescribed Prevacid Solutabs which I thought might work until i realized that they contain Phenylalanine (the ingredient in Asparatame) I do not give this to my children as many people in my family have had severe reactions to Aspartame. I spoke with the drug company and they told me there it is only in the Solutabs so I now break up the capsules and sprinkle them in his food. I have scheduled an appt with the Allergist to see if this is what is causing the vomiting. Do you know if your daughter has allergies? (sneezing, scratching ears & eyes) I dont know if any of this will help. Best of luck to you I know how frustrating it is when you feel like no one is giving you the solution you are looking for! Please let me know how things are progressing.
T.
B.K. answers from Seattle on January 22, 2008
Hi Karlee,
My daughter, 12 mos, has mild GERD. My chiropractor treats babies with GERD so I decided to give it a try. After her first adjustment (it's simple and painless) she slept through the night for the first time ever. It may be worth a try for you. I hope you can find something to help. It must be very challenging dealing with severe GERD. I have found my daughters mild symptoms stressful. Take care.
K.G. answers from Seattle on January 22, 2008
K.,
Great question! My 3 yr old daughter has GERD and a G-tube too (for other reasons). I am not sure about scratching at her ears/eyes but the hard swallowing has been a symptom we have seen with my daughter. Then air in tummy. Then vomiting...Does she do any arching?
We have struggled too but seem to have her comfortable most of the time GERD wise. I have some thoughts but I am no expert other than a mom that has been dealing with this for a few years.
Can you or have you tried slowing down or stopping her feeds completely at night and shifting her calories during the day? Maybe her stomach is not emptying very quickly as is common with g-tubes and increasing her discomfort and increasing her feeling of the need to swallow. Any constipation issues? May be contributing to her discomfort...
I don't know what your medication schedule is now but my daughter went from a morning dose to a morning AND evening dose to help at night. (Prevacid solutabs) But I still have spent many nights sitting with her in the rocking chair trying to get her comfortable.
My last thought is that it is time to re-visit a specialist or a new one. We go to Children's in Seattle and have had great care. Persisitant doctors that keep trying until there is some kind of satisfactory result. I am wondering if there is someting besides the GERD contributing. Have you had a pH probe? stomach emptying test? scope? I know vomiting can cause ear congestion but could also be a sign of some type of allergy...
Good luck - K.
S.M. answers from Seattle on January 22, 2008
My son who is ten, had suffered from severe GERD for 4 years. It was an undiagnosed food allergy. Have the doctrs looked into that? MY son now is off corn and has a low fructose diet (we also found out he was fructose intolerant) and we have gone off all the meds (he was taking 3 of them)
Hope this helps.
D.D. answers from Seattle on January 22, 2008
Wow! Your poor child! My heart goes out to you.
Do you have a good naturopath who specializes in stomach disorders? A LOT (in fact MOST) of the time when a person has GERD, they have too LITTLE stomach acid. (I had it for a couple of years, and also when I was pregnant). If it wen't for digestive enzymes, I would still be terribly sick. These medications such as Prilosec and Zantac inhibit the absorption of vitamins, and a lot of drugs are untested on children so they don't know what effect it will have down the road.
The reason you can get acid reflux with too LITTLE acid is, the food gets old, it starts to develop gas, because it can't go "down the chute" and it backs up into the esophagus.
There is one good test to see whether or not this child has too little or too much stomach acid. Feed them a tablespoon of either lemon juice or Vinegar. If they feel better, they have too LITTLE acid. If they are worse, they have too much. My sister had GERD and I asked her to try this, and it wiped out her symptoms in about 2 hours. Believe me, she did not want to swallow vinegar, but the results were amazing. She started commenting how much better she felt. That's probably why those medications aren't effective. It's the opposite of what your daughter needs. My kids love to have lemon juice in their water (without sugar) because they learned from Mom that she puts lemon in her water.
I also discovered Naturopaths have tests for food allergies that MDs don't have. It's worth the cost, I'll tell you. They have saved my life, and me from Chronic Fatigue, which I had for 12 years.
God bless!
L.N. answers from Portland on January 21, 2008
Hi there,
I don't know anything aboaut GERD, but my naturopathic doctor is a gasto-intestinal specialist and is extremely knowledgable. I highly recommend her. Her name is Tanya Hudson, and here is her info: ____@____.com, ###-###-####. She does a free 15-minute consultation, so you can see if she's right for you. Good luck!
J.R. answers from Portland on January 21, 2008
Hi,
We went through very simillar things with our daughter. She ended up with a g-tube (due to reflux) at about 4.5 months, and had it until age 2. She is now 4.5, and doing very well. Sounds like you are doing many of the same things we did, sorry she is still having such problems. We found the feeding clinic we went to very helpful. But we also used a naturopath, who works primarily with homeopathy. Although by the time we took her to him, she no longer had the g-tube. But I believe he has been very helpful. Also there is a great feeding group online that was very helpful. Good luck and let me know if you want more info.
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