June 29, 2013,
M.M. asks from Frisco, TX on January 17, 2011
Excessive Blinking and Eye Rolling Right
I would like to know if anyone had had this experience with their child. My son 6, two days ago started blinking a lot and inbetween blinks his eyes would roll to the right, like a swift shift up and over, before that he was complaining of itchy watery eyes and burning, on and off. Went to his ped, got referred to opt. went there and was given eye drops and to document what is happening and wait and see. This is not a good feeling. We also notice this happens more when he is watching tv howver is has happened when is is playing. ANy advise would be great. thanks
So What Happened?™
I have made an app with a neuro doc but it is a month from so. So we have decided to give this another day, if this persists, we are going back to the ped doc. thanks for the replies We will have an eeg done soon, we hope we get some answers. Thank you all for your replies.
L.K. answers from Dallas on February 03, 2011
Hi, I just saw your post to Robyn and wanted to follow up directly with you. I didn't see your post last week. Here's what I said to Robyn:
Has he had strep ever? If he's not had an official diagnosis of strep, please get him tested - a blood test. There is a condition called P.A.N.D.A.S. that is like rheumatic fever, only instead of the strep anitbodies attacking the heart, it attacks the basal ganglia in the brain, which controls motor movement. Lots of kids wind up with tics that are misdiagnosed as Tourette's Syndrome, but clear up when they get put on antibiotics, specifically augmentin.
My daughter has this - and it started with eye blinking, then progressed to facial tics and leg and arm chorea and mild OCD. Visit pandasnetwork.org
Th information there may seem overwhelming and way more intense than what your son is exhibiting, but please get him checked out early. The key factor of PANDAS is that one day, and you'll remember it to the minute, these little eye blinks and mild tics suddenly explode into a constant and bigger version.
And be prepared that only a few doctors are either familiar with it at all, or have heard about it but dismiss it. Particularly neurologists who will claim it's Tourette's and there's nothing to do about it except give really harsh meds with worse side effects.
Please send me a message if I can help. There is a PANDAS Support group that meets in North Plano once a month. And the good news is that the couple of docs in Dallas are in the Plano/Far North Dallas area.
A.M. answers from Dallas on January 17, 2011
it might be a tic. my niece started doing this around 6 or 7 and the more my sister pointed it out, the more she would do it. after everyone stopped correcting her about it, she outgrew it. took about a year - during the time wight before she stopped - my nephew started doing it too..his stopped sooner though as no one commented on it.
maybe his eyes are super dry....try a humidifier also during these winter months. my eyes are super dry and i blink a lot and have to use drops during the winter months.
M.H. answers from Auburn on June 29, 2013
Hey- I notice that this was in 2011. Did this get better?
H.D. answers from Dallas on January 17, 2011
G.R. answers from Dallas on February 01, 2011
My son had the same thing at 6...lasted for several months. We took him to the pedi and to the eye doc as well. We eventually took him to a neuro and did the EEG scan to rule out seizures. Turned out he was not having any seizures and diagnosed with a tic. Now one year later he has no symptoms at all. I was worried about Tourettes... but it seams to have dissappeared! Not sure what caused it... seemed to happen even more when he was worried about something or when we called attention to it. But, as I said, now one year later he has no symptoms.
B. answers from Augusta on January 17, 2011
sounds like a small seizure.
My friend's daughter the same age was doing this , and hers started happening more and more.
It ended up that she had a double ear infection and a sinus infection and it had over loaded her little system.
N.W. answers from Dallas on January 18, 2011
I agree it could be an absence seizure or a tic. Chronic strep or PANDAS can cause tics. Sometimes virus or vaccination can cause seizures.
A.S. answers from New York on August 15, 2012
Hi, my sister, when she was about 17 was sitting in class one day and one eye went spontaneously blind, that lasted for a month or so, where the blind spot diminished but never fully went away. And then, even when she slept, her eyes would open, i cant remember if she would blink, but her eye or eyes, can't recall if one or both, rolled up and then shifted to the side, all spontaneously, without her knowledge. After extensively going to doctore, she eventually ended up at one of the top Dr.s/ surgeons affiliated with NYU optic surgery. Dr. kupersmith in ny. This was optic neuritis, it was something to do with lesions in the brain. by itself it was okay, but she had to be monitored for years to come, basically get MRIs to make sure the lesions werent multiplying, that's all. it does go away and honestly this sounds like its the same thing. you need an optic neurologist. check to see if it happens at night. good luck