S.G. asks from Payson, UT on February 10, 2008
Epilepsy
Has anyone heard of neurofeedback, what have you heard or experienced? We are at the end of our road. we have tried everything from vitamins,diets,seizure drugs, The last option is nuerofeedback. I am a little skeptical. My son is 11 He has about 5 seizures an hour. Complex partial and absent. He was also diagnosed with aspergers.
Any suggestions or comments?
More Answers
C.C. answers from Denver on February 12, 2008
Hi
S. I have a friend who has a four year old son with a severe sizure disorder, if you would like you can email me @ ____@____.com and I will give you her email address, I think you may learn a lot from her about your options for treatment.
C. C
A.A. answers from Denver on February 14, 2008
Go ask your doctor about the vagal nerve stimulator. it helps. Its a simple procedure that works over time and sometimes right away. Its a small round piece of plastic that has two wires attached to it. The wires go around the vagal nerve in your neck (its the nerve that runs along right beside the vocal cords) and it is activated every few minutes. Its a device that can be programed to operate every few minutes to every minute. What it does is sends massaging impulses through the wires and it signals the brain (it doesn't touch any part of the brain) it signals that the brain is having a seizure and helps it slow the severity or sometimes the whole seizure to a stop. I've told you the basic details but its not an uncommon procedure. its a out patient surgery but not severe. Ask about it. I have it and no one can notice it and it works shorten the length of my seizures. i have gramal by the way.
A.S. answers from Denver on February 12, 2008
Hi S.,
My husband and I market a juice that is 100% natural and has proven to stop seizures. This is something we strongly suggest you try. My husband works with a lady who's son was Autistic (similar to Aspergers) and here was what she wrote to my husband a few weeks back.
David
I would love to tell you about my son Michael. He has struggled most of his life with completing simple tasks like, getting ready for school, completing homework, and cleaning his room. He was not able to make and keep friends and had problems with his fine and gross motor skills. Loud noises bothered him and he had difficulty sitting still. At times he was angry and difficult to be around. My twin sister is a Naturopathic Doctor and together we tried various things to help him....I did not want to put him on medication. She had me try a dairy and gluten free diet and we did notice some improvement. We decided to take a look at his brain chemistry. The results from test were consistent with the brain chemistry of those with autism.
In the summer of 2006, I was introduced to Xango and it has been life changing for Michael. A friend gave me a bottle to try and I looked at the website to see what to do with it. When I saw that it was helping people with ADHD and Autism I decided to have Michael try it. After two weeks of him taking one ounce of it in the morning, he came to me and said "Mom, I don't know what is in that juice but I feel great?" I started to notice that he was riding his bike (something he was not able to do before) and he was happy and fun to be around (no more rage). I realized that he had been depressed before and this was no longer the case. When school started I was waiting for the usual concerns from his teachers, but didn't hear a thing from them. I decided to go visit him at lunch time (he hated lunch in the past because no one wanted to sit with him). I walked into the lunch room expecting to see him alone and saw him surrounded by a group of kids who were laughing with him and enjoying his company....I stood there with tears running down my face, I was so happy for him. As the year progressed, his teachers asked me what I was doing with Michael because he was improving so much.....he even made the honor roll! Now, he completes his homework on his own without being asked and in the morning he is able to get himself ready and out the door on his own. Having a child like Michael is a challenge for the entire family and I would tell anyone in this situation to give this juice a try. It has been life changing for us. I wish I would have known about it years ago!
Diane Stamper
Go check our website at www.davidstephen.themangosteenrevolution.com
Feel free to call me at ###-###-####
Sincerely
A. Stephen
C.C. answers from Colorado Springs on February 12, 2008
I don't know anything about neurofeedback but you have written my story...my son is 10, has aspergers, ADD and recently diagonsed with epilepsy mixed variety with complex partial and generalized seizures. He was minimally controlled but has had 2 seizures in the past 2 weeks so we are back at square one. He takes depakote and has side effects taht the is currently being medicated for..so we take meds to control side effects of meds to control seizures that don't work.
I hope you find information about neurofeedback.
T.Y. answers from Denver on February 14, 2008
I have heard good things about neurofeedback-I have not used it personally. Another option is cold-laser treatments, I have had 3 closed head injuries and sometimes have petite seizures-the cold laser treatment has really helped with my episodes-I have to get extremely tired to have one now. The lady who does the treatments uses them to keep her sons terets(?) syndrom in complete control. Cold laser helps open up the neuro pathways so the signals don't short out and get stuck in places they don't belong. It is non-intrusive and is very relaxing- Ruthanne wrks out of Sumney Wellness Center in Longmont,CO
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