Endometriosis and Lupron Injections for Pain

Hi Tasha,

My daughter is 19, she was diagnosed(surgery) with endo her senior year in high school. She has tried many treatment options, every type of birth control, every cream, supplement, the list goes on, but we had to put our foot down when her dr suggested the Lupron. This disease is truly debilitating and she struggles every month more often than not, her pain lands her in the ER when her prescription pain meds don't help. Last month she ended up in the ER where we were told to follow up with Dr David Redwine. He is a specialist in the field and not one of those that just says "hysterectomy"!!
Check out his website www.endometriosissurgeon.com (lots of great information! well worth the read)
We followed up with him as suggested, he offered us some real hope in treatment options, yes my daughter will endure another surgery but this time we expect to see results that will truly improve her quality of life!!
I hope that you find something that works for you, keep researching and continuing to educate yourself, what works for one my not work for another.
Good Luck!!

1 mom found this helpful

I did 6 months of Lupron injections for cysts and endometriosis. It made mine a lot worse. Be very careful.

It also depleted my bone density so bad that I was walking barefoot across my deck heading to my hot tub and ended up with multiple hairline fractures in the bottom of my foot.

I fortunately got on natural progesterone cream to replenish my bone density and good calcium supplement.

Feel free to contact me to discuss further. Do a lot of research because this shot has pages of side effects!!

I had a laporoscopy followed by Lupron when I was about 16. It did help, but I did have lots of major hot flashes and moodiness! So it is a trade-off. And it is terrible for your bones!

Now that I am done having kids I am on an IUD and birth control pills to stop cysts from forming and that has been working great. I haven't needed another surgery!

I had the lupron series but was only able to have 4. On the 4th one I had an allergic reaction for some reason. They worked great, but basically put you in menapause and you will experience hot flashes, etc.

I also have endometriosis and I have been on the lupron shots and I would not ever do them again. IT has been over five years since I started them and I still feel side-effects occasionally. I felt crazy when I was on them, like I knew I was crazy but couldn't do anything about it. I would hear a noise and think that someone was trying to break-in and try to get away by climbing out my window. I wouldn't be able to decide what to wear so I would have a total meltdown. Things like that. I couldn't work while I was on it either- everything was too stressful. I had a TERRIBLE experience with it. If you would like to talk about this more you can email me at ____@____.com or call me at ###-###-####. I would be more than willing to help in any way I can.
E.

I have written this before, but I know of a doctor of nutrition who has worked with women for many years and has had HUGE success. IF you are interested in learning about other solutions to Endo, write back and I would be glad to get you in contact with her. I have been amazed over the years about how effective proper nutrition can be in treating and healing women's health issues.

Hi Tasha!
I have A LOT of experience with endometriosis and Lupren injections. I have had 5 surgery's and been on Lupren for about 2 years at a time. I don't know how serious your pain or endo is but I would recommend the injections. It's definetly not easy. It's exactly like going through menopause. You get the hot flashes, mood swings, the whole package. But it does help the pain. Has your Doctor talked to you about putting you on some meds to help the side affects? Please don't hesitate to ask me more questions. I have had endo for 7 years and have a lot of answers. Hope everything works out for you!
Dani

I googled "endometriosis herbal cure" and found some interesting and informative results. If it were me, that is the route I would want to take first.

I believe that God put these amazing plants on this earth to heal us, and that if we study and learn how to use them we can be healed.

I actually had six months of the Lupron injections for endometriosis. Prior to that, I had two surgeries. In all honesty, I think surgery helped more than the shots. The shots themselves weren't all that bad, but I don't think the benefits outweighed the potential risks associated with the injections (namely bone loss). I had severe pain associated with my case, and I did end up going to a pain specialist and they did injections (I think cortisone)locally to the areas of pain. This helped significantly, at least short term. I read recently that there are some newer treatments that are available that you might look into (unfortunately I can't remember what they are). I hope this helps!

i've found the yahoo group for the endometriosis research association very informative and helpful. http://health.groups.yahoo.com/group/erc/

i would check the archives first for this particular question because it's been asked and answered many times in that group. also feel free to email me with questions or just to vent any time.

Hi Tasha,

My daughter was dignosed with endometriosis when she was 14 yrs old. She has had surgery once when she was 14. We tried birth control pills and she would bleed for weeks at a time. We also tried Depo Provera but that did not stop the pain. We decided to try the Depo Lupron because we has tried so many things that were not working. She has been on it for 7 months and is pain free. I don't know how long she will be able to stay on this but for now it is working great. I wish that this would have been available when I was having the same problems. I also had Endometriosis, I had it removed 4 times and at 28 I had a Hystorectomy (not spelled right I'm sure. It is not the worst thing in the world if you are done having kids. Thank goodness I was able to even have kids. Hope this helps.

I, too, did 6 months of Lupron shots for endometriosis. The side effects were managable. I had a lap. done right after the 6 months and the enometriosis that was left was minimal. I would be very careful about staying on Lupron for too long, but it does help. Have you tried birth control pills? If they will manage your symptoms it would be an easier way to go. Good Luck.