A.S. asks from Ephrata, PA on March 11, 2008
I am looking for women that have any advice or suggestions in regards to endometriosis.
I have been to the OB/GYN for symptoms, had an ultrasound to rule out cysts, but was told you can't be diagnosed w/out having a procedure done. It seems like 2 weeks out of the month I feel good, but the other 2 I have some sort of pain. When I have my period I can have excruciating gas pains, it doesn't happen every month, maybe every other. When I am ovulating I have nausea, and pressure when I go to the bathroom. Some months are better than others. Some days I feel like I am losing my mind, but I know what I feel. Has anyone had any similar experiences?
So What Happened?™
I couldn't believe the responses I received. Thank you. I went to the OB/GYN today and I am going to first go to a Gastroenterologist, because when I have my period and have a bowel movement sometimes there is blood when I wipe. I know TMI (to much info.)
I read that can also be a symptom of endo., but she wants to rule out anything else. After that I am scheduled to go back to my OB/GYN to discuss a possible laparoscopy.
Thanks again for all your help.
L.H. answers from Philadelphia on March 12, 2008
I have had my self tested for it. My mom had it, She told me that she would have realy heavy bleeding and very painful times of the mnth. It took my mom years before they would listen to her. I had the ultra sound done and the yearly check up. But they didn't say anything about any other test. I wouldn't give up on finding what is wronge. You know your body and sometimes doc are just idiots.
Have your symptoms gotten beter or wrose since the children? Are you on any birth control. Some doc. will put you on to help with the symptomds.
Best of luck
M.S. answers from Erie on March 12, 2008
A., I know how you feel. keep going back to the doctor. he will sooner or later listen to you. i had cervical dysplasia at 21 yrs. hysterechtomy at 30 yrs. and endometriosis and also overies started to turn cancerous at 32yrs. they took them out FINALLY.i complaned for 5 yrs from age 25 to 30 when they finally did sonograms then liproscopic surgery.then had to have major surgery to get uteris out. it was 3 times the nomal size. so my advice is if your doctor don't listen after a while (GO TO A NEW ONE) you know your own body. GOOD LUCK-(M. S.-MOTHER 41YRS OLD.5- CHILDREN AGES 26-16 YRS. AND 3 GRANDCHILDREN 16MONTHS -4MONTHS OLD.
J.B. answers from York on March 11, 2008
hi A.. im sorry your not feeling well. can i ask you... does it cause discomfort during intercourse? i had some similar problems and mine definetly have interferred with my love life. i find it odd that your dr cant do an ultra sound. they can pick up on some signs with an ultra sound and then do the laparscopy later if needed. the procedure you are talking about i believe is a laparoscopy. its an outpatient porcedure. i had one done last year at the same time i had an episiotomy revision after child birth complications. i was out for the entire surgery, but i think if you are only having the laparoscopy, they may not put you under completely like they did me. i was sore from my episiotomy. but not too bad from the laproscopy. during the procedure, my doc found some adhesions on my fallopian tube that she said was maybe contributing to my pain. no signs of endometriosis though. it was pretty easy to recover from that. my belly button was sore for about a week. the only thing i had a hard time with was the meds. i couldnt really take them and still care for my then 3 month old daughter. and the soreness was difficuilt in my abdomen for a few days if i held her and she kicked me or something. but since your children are older, maybe you wouldnt have to hold them or pick them up for a few days? also, since last year they have found ovarian cysts and ueterine fibroids, which can also cause pain and heavy menstral cramping, and abnormalities with bleeding. mine are small and dont require surgery yet. sometimes they just go away on their own. just make sure they rule these out for you. mine were found by a pelvic mri and then later confirmed by ultra sound. i wish you luck. i dont have endometriosis, but i have had my share of complications in that area. so if you need someone to talk to, i will definetly have a sympathetic ear! hope you get well soon!
S.C. answers from Williamsport on March 15, 2008
I've always found www.webmd.com a good resource for medical questions. They translate "medical" into English, very well, LOL!
L.D. answers from Philadelphia on March 12, 2008
You may want to talk to your doctor about getting a blood test for "CA 125". There is a correlation between this marker and endo. It is a simple blood test that you can try before surgery. Best of luck getting a diagnosis.
B.D. answers from York on March 12, 2008
I recently went to the OB with symptoms and was told the same thing about not being diagnosed without a procedure. She said this is probably what I have, but we can't be sure. My symptoms are different, but from talking to the Doctor and looking on line, there is not a whole lot that can be done without a procedure. My doctor said that the only thing that might help was birth control pills and it seems to have helped me out a great deal. I still have some problems, but they seem manageable now.
R.O. answers from Allentown on March 12, 2008
I have had 2 laparoscopies for ovarian cysts and will most likely be having another here soon for another cyst that doesn't seem to want to go away! Anyways, my doc thought I had endometriosis and lookied while in already doing the procedure bit didn't find any. The first one I had adhesions and they removed those. I am sorry you are going through that. I get pain like that all the tiem but they come from cysts.
D.W. answers from Philadelphia on March 12, 2008
If you do not like your doctor go to another. I have a friend with severe endometriosis and they gave her a total hysterectomy. Remember, every case will be different.I think it is important to find out what is going on.I also do not think that you and to go on with all that pain. You have to take care of yourself first. If you live in the deptford area call dr.keswani he is on manuta pike in west deptford. he is great and my friend who had the endometriosis really like and felt like he listened to her and referred her to a great surgeon.