25 answers

Elidel Prescription/excema

Hi Moms! I took my 3 year old son to the pediatrician last week for his well-child check-up. He has had excema since he was about 6 weeks old. The doctor gave him a prescription for Elidel. Then, I found out from a friend that Elidel has been linked to cancer! Has anyone heard this or had any experiences with using Elidel on small children. I have not filled the prescription yet and don't plan to if this is true. Also, I know that excema may be caused by a food allergy. I just don't know the best way to do a trial elimination of some foods that cause allergies, eg. milk, gluten, etc. Anyone have any ideas on how to do this? Thank you!

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Hi:
I heard this about Elidel as well. My son has had Eczema since about 6 months old and we found out that he has a load of food allergies so we have the greatest allergist in the world (Harvey Leo, Allergy and Immunology Associates)and my son looks so good. We use Protopic (steroid cream) in moderation underneath a heavy coat of Aquaphor cream. We also bathe him in Aquaphor baby wash, was his clothes in dye free perfume free All and use a humidifier. Elidel may not be worth it. I would start with an allergist and pediatric dermatologist (Tor Shwayder, Henry Ford) first. Steroids are bad for long term use but they definitely get the situation under control quickly.

My daughter has on and off Eczema. This year I found a great body wash..Eucerin Body Oil ...it smells at first yet washed clean and it has Omega's in it. I also run a humidifier to keep her room moist, along with body lotion. Unfortunatly, the lotions always are changing(that I use) but that wash has been GREAT!!

My husband swears that the flax oil he has been giving them is what is making a big difference.
Its expensive, but it has so many other benefits, that we tried it just to see.

More Answers

Instead of jumping directly to Elidel (which does work for eczema), why not try some simple things first: gentle bathing with tepid water, no harsh soaps or fragrance, eliminate dryer sheets in the laundry, lots of moisturizer or even just vaseline after the bath, etc. Also try over the counter hydrocortisone cream on the areas as well to clear them up. If those things don't work, consider a prescription cream. Elidel works on the immune system, which works wonders for those with severe eczema, but I would try those other simple measures first!

Eczema is usually a 'representation' of the body's inability to handle something (food, allergens, etc.).

My daughter has always had a bit of a gastrointestinal reaction to dairy (tummy feels bloated, etc.), but it was never bad enough that I took her off her all-time favorite source of food. It started around age 3. I always knew it wasn't good for her. In the last year (she is now 7), she had developed a nickel-sized patch of eczema right under her bottom lip. I took her off of dairy, and within 5 days it was faded significantly. I continued and added fish oil (Nordic Naturals) and within days it was gone. She started up on the dairy around the holidays again, and the eczema was back.
Eczema is basically a type of allergic reaction to something, and more often than not...it is a food. You really should try an elimination diet of sorts. If it is too hjard to only feed your little guy white rice and apples (and other non-allergen fruits/veggies like lettuce, carrot, etc.)...maybe just eliminate one food at a time. i know this is not ideal, but with children a complete 'elimination diet' (taking everything out and then adding one new food every 4-5 days) is pretty difficult. Personaly, I would eliminate dairy for a week and see what happens. Dairy and eczema often go hand-in-hand. If that doesn't start to show improvement, next I would keep the dairy stopped and stop gluten (this is togh because it is almost all breads, pastas and cereals/crackers). As a given, I would stay away from all nuts.
You can try to treat eczema...but the more logical thing to do would be to try to figure out why it is happening/where it is coming from so that you may not have to 'treat' it.
Good luck J.!

Hi J.,We used elidel on our 7year old twins for 6months.It was heaven sent.However i heard if it gets in there blood stream it can cause a major reaction.Basically if you use the medicine make sure he does not have an open stracth..My twins were a year old when we stater it. Then i read about the reaction that scared me.So we did stop using it! Then by the age two in a half,we found out they were allergic to tomato produtsand also peanuts family.There excema was mostly on there cheeks and the joints,(inside there arm or inside the outer knees)I hope that helped.

Hi J.,
My kids all have food allergies/sensitivies. One of my boys has ezcema that flares up when i eat egg (i am nursing). The best way to identify a food allergy/sensitivity is to take all the top allergy foods out of the diet for a few weeks and watch the symptoms (top foods include wheat, soy, dairy, egg, seafood, nuts, and for some kids corn). You are going to need to read labels very carefully, because many of these items are in foods you wouldn't expect and are disguised by other names on the labels. Then start to introduce the foods one at a time and watch his symptoms. I know it can be overwhelming to think about what the heck they are going to eat. If you need any additional support from someone who has been through this, please let me know. I have resources :) Good luck - L.

Hi:
I heard this about Elidel as well. My son has had Eczema since about 6 months old and we found out that he has a load of food allergies so we have the greatest allergist in the world (Harvey Leo, Allergy and Immunology Associates)and my son looks so good. We use Protopic (steroid cream) in moderation underneath a heavy coat of Aquaphor cream. We also bathe him in Aquaphor baby wash, was his clothes in dye free perfume free All and use a humidifier. Elidel may not be worth it. I would start with an allergist and pediatric dermatologist (Tor Shwayder, Henry Ford) first. Steroids are bad for long term use but they definitely get the situation under control quickly.

Hi, J.!
I have suffered with eczema since childhood. Eczema is linked to asthma. I have both. I also have many allergies. I use a product called diprolene ointment on my eczema. It is miraculous! Ask your doc about it.

Good luck,
:)

My son used Elidel when he was a toddler. The study said that mice/rats contracted cancer when they ingested Elidel. (Hopefully humans aren't ingesting Elidel.) It has a black box label warning because of that. Still, I took him off of it even though it worked well. I now mix Aveeno, with a tube of hydrocortisone and a tube of neosporin with my hand mixer. It works wonders!!

Good luck!

C.

Yes I heard this a couple years go and my husband decided to stop using it afterward.

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