Hello B.. My name is A. & I have just finished reading all of the responses that you have received.
First off, I want to say that I am not a doctor, but I am a mother & that I, personally, have many physical ailments. I was a nanny for 5 years & also a pre-school teacher. I have done LOTS of research for my own conditions.
All of that being said....first off...I urge you to listen to your intuition. Second, please be sure to tell your daughter that you DO believe her & that you are willing to listen to her & that you want & are trying to help her.
Letting her know that you believe her is a HUGE thing for her. Just because she is active (which I am proud of he for) & dones't "look" like she is in pain....does NOT mean that she doesn't hurt or that she is making it all up for attention or something of the sort. I can tell you from experience...one of the most hurtful, painfull things is for those you love best not to believe you or say comments that make you think that they believe you to be lying or acting. It really is important that she knows that you are in her corner & that you are willing to listen & try to help her. It is also important that you be honest with her & tell her when you do not know how to "fix" the problem. As long as you are trying....that is enough for her. We do not always have the answer...but seeking the answer & knowing that you are trying to help her...really will mean the world to her.
OK...next. The previous posters have all given you some GREAT advice!!! I am glad that so many people have taken the time to try to help you & your daughter.
I agree with many of the other posters that you should certainly seek another opinion (or 2 or 3)! Many of the posters mentioned Juv. RA, Fibromyalgia, RLS (Restless Leg Synd.) & various other diseases, syndromes & issues. I believe that all of these issues hold some merit & should be looked into very seriously. You need to find a doctor that is willing to listen to you & your daughter & more so, one that is willing & WANTS to work with you. There are many doctors out there that feel that they don't have lots of extra time to devote to just one patient. You need to find the doctor that wants to devote the extra time that it will take to help your daughter.
I personally have Fibromyalgia, spinal injuries, degenerating dics, Myofacial Pain Disorder, Costochondritis, migraines, tenosynovitis, IBS (irrital bowel syndrome), problems with my knees & ankles & more!!!
I will tell you that Fibro. (FMS) is the reason for many of my "problems". The FMS also causes me to have "knots" in my legs, for the to crap & swell, to be ice cold, turn purple, strange little sections on the tops of my feet swell up, etc. All kinds of strange things happen to your body when you have FMS. Other than taking meds to treat the FMS, people stretch & excercise alot, some eat diets that are gluten free, taking large doses of acidopholis tabs...eating yogurt with live cultures, some take passion flower & a few other "natural herbs", many people do hydrotherapy, people get massage treatments, reflexology, use heating pads (a GREAT alternative is to make & use a rice pack), cold packs, take hot showers, warm baths & soak....there are TONS of things that can be done for FMS without taking meds. All of these things are done just for the Fibro.!!!
My reason for mentiong all of the above is to show you that there are many alternatives to strong narcotics & other meds to treat different diseaes & syndromes. Don't get me wrong....NONE of these treatments take ALL of the pain away & there are times when taking pain meds & other meds ARE THE BEST CHOICE. You have a choice. You have options.
Whatever is going on with your daughter is real & needs to be "figured out". The sooner that someone figures out what is going on with her, the sooner a treatment plan can be devised, the sooner your little girl & your family can go on with your lives. This might be an issue for her for the rest of her life, it may not. You won't know until you find out all of the facts.
Your daughter is a very strong & tough little girl!!! I commend her highly. There are so many people that just give up & lay down & choose NOT to get back up. She, at such a young age, has made the choice to live her life to the best of her ability.
I hurt daily. All of the time. Everywhere. No amount of pain meds, alternative treatments, hot baths, great massages, etc. changes that. I hurt. Period. Everywhere. All the time. Sitting, standing, laying, moving, still....I hurt. But....I choose to move. I choose to be part of my family. I choose to go outside & play bubbles with my toddler. I choose to sew & be a functioning part of my household. There are many days where I dread & hate the pain that I know is about to course through my body the moment I put my feet on the floor & attempt to stand up & put my weight on them, first thing in the morning as I get out of bed. (this usually happens daily) There are many days where I CAN'T drive, can barely walk, can't open the bottle of juice that I want to give to my daughter, can't open the door to get into the bathroom, much less try to chase my 2 year old, change her diapers, give her food, clean my house, run errands, change my clothes, sew for the business that I am trying to start, play with my daughter, open her cup to give her something to drink, do the laundry, take a shower....but I keep going. Why? Because I choose to. I want to live my life while I have it.
I wish you all the best & I am proud of your daughter for choosing to live her life.
Thank you for taking the time to read my ramblings & opinions. I hope that something that I have said was helpful.
I wish you all the best.
be well. -A..