C.W. asks from McKinleyville, CA on July 28, 2010
Cancer...urrggg!!
So I am just in need of a little advice. I am the type of person that ALWAYS knows what to do, when, why, where etc. And right now I am at a loss and have so many questions running through my busy little noggin. And need some advice from people who have gone through what I am about to go through.
My mom, my best friend, has been battleing cancer for the last 3 years...lung cancer which we fought with surgery and chemo, then 2 years later it came back in the brain as tumors, which was fought with gamma knife radiation. Then last year it spread to her lymph nodes and appeared in her other lung and neck. She just finished another round of chemo and radiation and her lateset scans show that the treatrments didn't work. It has also popped up in her stomach now. So long story short, the doctors have given her "monthes and not years" Whatever that means!
My question is...what does one do in my postion?? I don't know where to start, who to talk to, what to do or say, how to think...blah! Is there anything specifically I should be doing to prepare for the END? I have a large family and many many friends who are there for me and my family, but I still feel very scared and alone for what the future might hold. Also as a side note, my family is not really religous.
How have others tried to preserve her in a way...like a scrapbook, a movie, anything? Will this hurt her more do you think? I don't want to walk on pins and needles with her, but I can't help it because I have so many questions and concerns. Maybe its just the way its gonna be and there really is no way to prepare huh? I have always been the overly happy and positive person and just can't seem to pull it together here!
Thanks for any advice you ladies can give. Sorry such a long post!
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So What Happened?™
Thank you everyone for the kind and yet honest replys. I am gonna try to do everything I can to preserve her memory for the future generations and me : - ) The other issue is that I live 4 hours from her (college grad and had to move for a job). Working that out with my career/employer is going to be challenging but I know I need to make a decision/balance that I will be able to live with the rest of my life. I am only 28 (also have a 2 yr old baby girl) and she tunred 49 today...way to young for this!! I am still interested in hearing more poeples stories and thoughts : - ) Thanks again
More Answers
I.G. answers from Seattle on July 28, 2010
What does your mother want?
I have lost three of my gransparents to cancer, two when I was young and one when I was an adult. My gradfather lived life to the fullest (trips, vacations, parties, you name it!) until his very last days, which he spent with my mom taking care of him. During that time they went through old photos and home movies together and he helped her to rmember who everybody was.
That was all he wanted.
I had a co worker pass from cancer not too long ago. She was VERY involved at our workplace, worked here for 20+ years. It took only one year from diagnosis to her death. She went on an RV trip with her family during her last weeks and we had a send-off for her at work. That was what she wanted.
I hope that your family has a wonderful time with her during the next months!
Good luck!
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R.Q. answers from San Francisco on July 29, 2010
I am very sorry to hear about your mother's prognosis. I just lost my father less than a month ago to liver cancer. He was given 3 months to live and ended living a year and a half. All i can tell you is spend every second you have with her and appreciate it every minute. It is gonna get much harder and much worse for you to watch her waste away, sorry but that is the honest fact. All you can do is be there, tell her you love her, tell her thank you and when you see her suffering let her know it's okay for her to leave and that you will be okay. No matter how hard it is for you to watch, it is a thousand times harder for her to live thru it.
You sound like a strong person and you will get thru this, but it's out of your control and all you can do is what you feel is right. Just love her and let her know you love her. I found there was no way to prepare for the moment I saw my father take his last breath but when he did I saw him rest and be at peace and that was comforting enough to know he was no longer suffering.
I'm also not very religious but found comfort in reading about general spirituality, native american rituals and just finding my own peace to believe in. Good luck, hang in there and although you will hurt and be sad, you will be okay.
R. Q.
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D.B. answers from Charlotte on July 28, 2010
C., my heart goes out to you and your mom and family. You all have had a long tough row of it. I think that the rest of the journey is now about preparing to say goodbye. Also for your mom to say goodbye to her family. The scrapbook is a great idea. You could work on it with her looking on, a project that brings back happy memories, and provides an activity that is using her mind to help keep from the dark depressed thoughts possibly drowning her spirit.
Don't walk on pins and needles. Show love and acceptance, listen and hold her hand, reminisce about the good times you have had. It will help her come to terms with her loss. It is her loss too, not just the ones left behind.
Make sure you get her last wishes so that you know what she'd like at her funeral, if that isn't already written down. Work on her obit - I know that sounds hard, but do it anyway. My mom and I had to stay up all night writing it the night that Daddy died. Make sure you know where all the paperwork you need is - the funeral home can tell you what to have prepared.
Have her list who she wants to have certain things - perhaps she'd just like to give them while she is still here so that the familiy members can say thank you. If your dad is still with you, this will undoubtedly help him - I'm sure he'd be glad for you to take the reins.
It's harder to do this in the middle of intense grief, so don't wait.
Prayers and my best to you all,
D.
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H.P. answers from Sacramento on July 29, 2010
You may have already had this suggestion but I couldn't read all of the answers b/c I started to get weepy after just two of them. Hope this helps.
My mum passed away from breast cancer that metastasized to her liver and then her bone and brain. I was able to spend most of her last month with her thanks to a very understanding boss, and I am so thankful that I was able to be there with my dad for her last time. However, looking back, I wish I would have taken a month (or even a week!) to spend with her earlier, when she was still able to be up and about and before the cancer started "short-circuiting" her brain and clouding her understanding of what was really going on. We knew for three and a half years that cancer would eventually take her (she was given 18 months at her original mets diagnosis but kept fighting for over twice as long) and I wish I had taken more time to be with her before things really went downhill.
I had planned to do an audio recording with her, kind of an interview, to save some of her memories and stories. I had a list of questions to ask her but on the day I hoped to do it (about five months before she passed and when she was still mentally sharp) she was tired and probably didn't want to accept that me asking those questions meant that she wouldn't be there to tell those stories to her grandkids so she asked me to wait. And then I didn't take the time to try again until it was too late. I have one recording session of her and my dad that I can play for my kids so they will be able to hear her voice, but I wish I had more. Then again, I didn't want to push my will on her. I just wish I'd spent more time with her earlier and been able to ask for the recording a second time.
Be honest with her and your family and talk to everyone about your concerns and questions. That will help them do the same with you. So sorry that you are going through this.
Also, call hospice ASAP. The nurses that came to our house went above and beyond to help make sure my mum's last month was as pain free and comfortable as possible.
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D.P. answers from Pittsburgh on July 28, 2010
C.,
I'm so sorry about what you and your mom are going through. Cancer sucks, that's for sure. I'll pray that she has more time than you have been told.
Just one piece of advice that a friend gave me when my stepfather was near the end: Take time to talk to your mom and tell her how much you love her and appreciate everything she has done for you/your kids, etc. It might be awkward to initiate, but the fact that you have expressed your love and concern to your mom will bring you much, much comfort down the road.
I love the idea of doing a video diary or a photo collection. You know your mom. You could buy her a journal. It might encourage her to start sharing memories from her childhood, early mommy days, etc that will surely be a treasure to her family. I think there are even books you can buy that ask questions like "What do you remember most about your childhood?", etc. That might be nice.
I think if your mom is your best friend, you can (and should) be open and honest with her about her condition. Otherwise it will be like the 900 pound gorilla in the room, right? Follow her lead and you will be just fine.
Again--I'm sorry about your mom's diagnosis. Even though you're not religious, I'll say a prayer for her and you today. God bless.
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K.E. answers from Buffalo on July 28, 2010
Oh my, Big hugs for you and your family, I work in a cancer hospital and I see this all the time.
I can tell you that nothing makes you "ready" for it just easier, so yes I would talk to her. Talk every chance you can about everything you felt, memories you too share, what you love about her. Everything, so you do not say one day I wish I said...
Talk to her about her wishes and get this all planned out with all the appropriate officiates, so all you have to do is call and say it is time.
Call Hospice if that was not done for you, they are wonderful.
My father was diagnoses w/ esophageal Cancer (which has a 70% fatal rate) so I have asked him to get me every picture of him he has, I have called every reletive I can think of for the same, and I am making a photo album of his life with captions of the memories I have with each picture.
I do not know what age your mom is, but if she has any stories to tell, (family tree stuff, or historical stuff she or the family has gone through, I would video her as she tells it)
It is so hard, and I wish you all of the luck and If there was a way to send my support to you in this message I would.
XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOX
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D.W. answers from Indianapolis on July 28, 2010
Cancer does suck, and I offer you well wishes in getting through the next few months.
Well, I come from a different point of view. I am a young cancer survivor - diagnosed after my daughter's birth 2 years ago. I was lucky to have a good prognosis and have successfully completed treatment, but I know, too well, that could change any day.
My best advice is to contact an organization like Imerman Angels (imermanangels.org). Becoming a survivor was really hard for me. They're a non-profit that supports people and loved-ones dealing with all stages of cancer. They'll connect you with another daughter who's been in your shoes and help you go through the process of dealing with her terminal diagnosis. For me, I was matched with another 30-something young mother diagnosed with stage II Hodgkins. It was really helpful.
As far as what to do: ask her? People think cancer patients are afraid to talk about their condition. In reality, we probably spend more time making other people feel good about it than we receive. I think my candor took some people by surprise.
But, I'd ask her what she'd like to have in remembrance. If she wants videos of her reading her favorite children's stories for grandchildren/greatgrandchildren to view down the road. It's OK to ask because it will be a memory for you to have down the road and what better way to commemorate her than as she wishes? Ask if there's a favorite photo, have her write a story about a favorite memory, etc. But, let her be part of the process for as long as she can.
She knows this is going to be harder on you than it is on her. She is likely doing as much to comfort you as possible because of that.
Best wishes to your family. There are many, many organizations dedicated to helping you all through the process (like Imerman Angels).
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L.S. answers from Philadelphia on July 28, 2010
My mother and in-law both filled out this book for my daughter... they are still with us, but when they are gone we will have lots of memories to read about when we miss them the most...
Memories for my grandchild by Annie Decker... they sell it at amazon.com
Sorry for what you are going through... preparing yourself can only make things easier... you will still feel just as much pain, but if you have good memories to look back on then eventually you will laugh and remember the good times...You are in my prayers
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