M.A. asks from San Pedro, CA on February 07, 2008
Autism - San Pedro, CA
hello,
I have a ten year old son diagnosed with autism, he is non-verbal, have tried everything, I have given up, and feel that everyone in the world has a break, and their kids got better except mine...if you were before and your son did manage to speak, please I really need to hear from you...thanks...God Bless...
JUST WANTED TO THANK YOU FOR TAKING THE TIME TO WRITE ME YOUR ENCOURAGING MESSAGE...REALLY THEY ARE A BLESSING..SORRY FOR NOT WRITING SOONER..JUST CANNOT FIND THE TIME...GOD BLESS YOU...
1 mom found this helpful
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C.A. answers from San Diego on February 22, 2008
I'm no expert but all I can say is try alternative medicine. I've also read about some research where enzymes have helped. Maybe google "autism and enzymes".
S.P. answers from Los Angeles on February 08, 2008
Have you heard of the Institiute for Progressive Medicine right here in Irvine? I just went and had a 15 min free consultation for my mom for some other health issue. One of the Dr.s is listed with DAN, Defeat autism now. i read one her special interestts is children's medicine. The number is ###-###-####. Their website is www.iprogressivemed.com
Good luck, S.
J.M. answers from Los Angeles on February 08, 2008
M.,
Consider going to www.vcas.info and looking under Parent Support groups. You are in Thousand Oaks area right? There are some great parents arount here to talk to. I have a 10 year old boy with autism too. He is verbal, but significant delays. We have come a long way with therapies. I know a family who has (HAD) a non verbal child in this area. The boy did not speak for 8 years! The mom set up a home based DTT program all by herself after buying the Lovaas ME book. Her son started to talk, and use functional language. He is about 11 years now.
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A.B. answers from Los Angeles on February 08, 2008
i don't know where you are, but I live in Los Angeles and there is a great osteopath who helps with children with autism. Her name is Dr. Kathryn Gill: 310-576-2505/2503/2504 (different extensions). She is in Santa Monica. I also know of a great acupuncturist in Santa Monica: Matia Brizman of Bomamed Holistic Clinic: ###-###-#### - and she might have some information on this. I have heard sometimes of chelation therapy helping and specific diets, and maybe these 2 will have information for you. My child does not have autism, but I have taken him to both and have especially heard Dr. Gill talk about autistic children benefitting from osteopathy - I just think you need to make sure it is a reputable doctor. Hope some of this helps in your journey. All the best to you.
J.S. answers from Los Angeles on February 08, 2008
Hi M.,
I am an Alternative Health Practitioner. I have worked with autism and know that there is hope. I want to give that to you. I have a client who we have had good results with the things she has been doing. I will give you her e-mail address. Lynette, who is a practitioner, has a website which I don't have at my fingertips right now. She has been working with autism for many years and has developed a program that has worked with many children. Her e-mail address is ____@____.com, my client's e-mail address is ____@____.com has some wonderful information to share with you about other things she has done to help her son.
I know that the vaccines have a role to play in autism. We have a couple of machines that we work with that can help also to clear out all those toxins. Of course, along with diet, etc. which I am sure you have already tried.
My website is kaysnutrition.com and my e-mail is kaysnutrition.com. I have a wellness center located in Simi Valley, CA.
Blessings,
J. Sanders
Alternative Health Practitioner
A.D. answers from Los Angeles on March 17, 2008
Hi, My son is 8 yrs. old and diagnosed with autism. He is verbal but most of his language is the script of his favorite movie. I do know how you feel when it comes to wanting to talk with your child. Although my son is verbal I have never held a conversation with him and never asked a question and recieved a direct answer.
I have seen all the many types of advice you get and all I can say is try one more thing. I am not sure how you feel about ths or if you already tried it. The company is called Alpha Smart and the device is a Neo. I am told it is a small computer that the child can type into to respond to you when they cannot talk. I hope this helps. It is like $150 I think. The website is http://www.alphasmart.com/k12/
C.A. answers from San Diego on February 22, 2008
I'm no expert but all I can say is try alternative medicine. I've also read about some research where enzymes have helped. Maybe google "autism and enzymes".
P.R. answers from Los Angeles on February 09, 2008
M.,
My nephew has autism. His mother "Margaret Motamed" has and is devoting her life to getting him "better". He is a wonderful little boy whom we all love a ton!
Margaret is exceptionally well organized and she probably had to adjust her views of what "improvement" is...
i have known her for over 8 years and was aware that she went on a lot of trips and has "spoken" she helped to put up a website...well, let's just say i'm amazed at all the info on her...and she's my sister-in-law and VERY busy....well, anyway. do a search on "margaret motamed" and autism. i found a website that may be helpful. may you always remember to watch the little miracles..they will keep your sense of wonder alive. *hugs*.
http://autism.about.com/gi/dynamic/offsite.htm?zi=1/XJ/Ya...
M.S. answers from Los Angeles on February 08, 2008
Hi M.:
My heart goes out to you. I suspect you are a very, very special mom. There may be something you have not tried - I know, sounds presumptuous, right? Here's my suggestion - in case you have never heard about this before:
I suggest you go to the website “naet.com” and order the book “Say Good-bye to Allergy-related Autism.” If you decide to pursue treatment, you can find an NAET certified doctor through the website. I (and 2 of my grand children) go to Dr. David Karaba for other allergy related treatment (freedom) in Fullerton and absolutely love him. His phone number is ###-###-####. If you want to do further research, you can also visit narfnet.com. Here’s the information on the book:
Say Good-bye to Allergy-related Autism
By - Devi S. Nambudripad, M.D., D.C., L.Ac., Ph.D.
This book discusses about a drug-free solution for allergy-related autism using Nambudripad’s Allergy Elimination Techniques (NAET®). In Say Good-bye to Allergy–related autism, Dr. Nambudripad, the developer of NAET®, helps the reader explore the truth behind most cases of allergy-based autism spectrum disorders-the most frightening epidemic attacking one out of one hundred and sixty-six children before the age of three today. This book provides useful, practical, effective solutions to help autistic children and their families. She explains how allergies are often the underlying causes to autistic disorders and how NAET® testing procedures and NAET® treatments can offer relief from their allergies and these allergy-based disorders. This book also explains the theoretical basis for her technique and provides true testimonials and fascinating case histories of autistic patients who have been treated successfully with NAET®. Dr. Nambudripad also discusses the transformation of autistic children as they become productive while going through NAET® treatments. She also shares results of two autism studies conducted using NAET®. It is encouraging for the parents of autistic children to learn about the recent (2005) NAET® autism study using 30 subjects in the treatment group and 30 subjects in the control group, where 23 out of 26 children from the treatment group significantly improved to the point that these children were able to remove the label of autism and attend regular school and normal activities, just after completing NAET® treatments for 50 allergen groups, within the span of 12 months. The book is filled with encouraging, educating and exciting testimonials from the satisfied and happy parents about their journey through the rocky road and their horizons.
Best wishes and may God bless you and your family.
M.
A.N. answers from San Diego on February 08, 2008
M.,
I know it is very difficult to have the patience that we need to understand why things like this happen although at the end of every day we have to know how special each child is in their own way. Being a parent of a child that has (TBI)tramatic brain injury and represents itself very much like Autism but with additional needs. We have bad days and good days but at the end of each day there is not a day that I would miss with him. I recommend looking for a tag team method. Work to get someone to help you out by letting you take a break and allowing other people to have special time with this wonderful boy. He will have a long road ahead of him and will need you very much. I know this is not a solution but I can say I understand. Don't ever give up on him. Spend some time to see if you can get some exernal resouces. There are many. You are not alone.
M.H. answers from Honolulu on February 08, 2008
Aloha M.,
I feel your pain in your heart. Hope that you can find something to sooth your feeling.
May I speak from my experience as an asthma child?
On my third birthday, I had my first attack. I was born in Japan. If you can imagine, the country was filled with smog and smoke. My condition went worthen quickly. I remember many sleepless nights spending all of my strength just to breath.
I only can guess how my parents, felt helpless. It was only natural that they went look for the cure for my condition. We tried possibly everything from Mustard Wrap to Acupuncture. I have almost died twice because of asthma attack. My parents were desperate. They even decided to send me to the asthma study facility when I was 8. I was separated from my parents for three months.
I knew that my parents were doing all these things for me. I felt a lot of love. At the same time that I was very sad every time asthma attack came back. It made me think that I fail again. I remember crying in the hospital when nurse come to give me IV not because of fear for needle but deep sadness that I did not meet my parent's expectation.
Many people and drs said that "When she grows, asthma will disappear." As their saying, most of kids we knew from Pediatric office grow out of their asthma but me.
By the time I was 4th grade, we start look for the way how to live with my sickness.
At the age of 38, I still use daily asthma medicine. I never grow out of it :-) But, I am very happy. I have very strong connection with my parents because we went through all those steps together. Once my mom gave up her hope to be Grand Mother because my body is soaked in all kind of drugs. But, I am now a mother of 4 years old girl.
I am not trying to say that You won't find a cure.
I am trying to say that you don't have to find a cure. It is OK that all the other kids getting better but your son. It is OK. Every child grows on their pace. Every one is different. It is OK.
Hope my message will arrive to your heart in the right way.
Love and Peace,
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