L.C. asks from Saint Peters, MO on October 02, 2008
Asthma or Something Else??
My 1yo has recently been diagnosed with bronchiolitis - a form of asthma brought on by a recent upper respiratory infection. We have been to the doctor probably 5 or 6 times and this cough will just not go away. She was on Singulair and now has been changed to Pulmicort (SP?) which requires nightly breathing treatments. Are there any Moms out there who have experienced the same thing? If so, has your child grown out of it? I am about at my wits end with this cough and am concerned that it's something more, but the doctor insists that it's not - even without a chest x-ray! What's next? What if it doesn't go away?
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M.C. answers from Kansas City on October 03, 2008
Hi L.,
My son went through a similar spell when he was just under a year old, I don't remember the exact diagnosis, but it sounds about the same. We did breathing treatments 3 times a day for quite a while. He did grow out of it and is a very healthy and active 11 year old. Just hang in there!
M. C
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H.H. answers from Kansas City on October 03, 2008
my son had this and started when he was 3 months old and coughed everyday until he was about 2. The doctor wouldn't give us a nebulizer to use at home and had to take him in about every 2 weeks for a breathing treatment as well as chest xrays which I called the torture chamber. He hated the xrays and they didn't show anything so after about 4 visits of them the doctors just decided not to keep taking chest xrays and check his breathing every 2 weeks and everytime we went for those checkups they would put him on the nebulizer breathing treatment. I think he would have been better if we had the nebulizer at home and used it everyday until his cough was gone. We lived in California his first year, then moved to Washington where he got better and occasionally needed to go for a breathing treatment. When we moved to Missouri 3 years later he did really well and only got the cough occasionally usually in the fall months. When we moved to Tennessee he got really bad but we were burning wood for heat and did not realize that was the cause of him being sick and was diagnosed with actual asthma at that time. After we quit burning wood he got a lot better and rarely needed his inhaler. When we moved to Georgia, all 3 of our kids had asthma symptoms and was given the nebulizer at that point. They were sick for the 3 years we lived there with breathing problems and ear pain which was considered allergies and wasn't ear infections. I also got sick a lot there with strep throat, and youngest son was allergic to something outside and had to wear long sleeves and pants to play outside or he would break out with a rash when he was outside but if he had long sleeves and jeans on he wouldn't break out. That was the strangest thing. We moved back to Missouri when hubby retired from the Army and all 3 kids are very healthy. The oldest that had all the bronchiolitis and asthma as a kid has no problems now and hasn't used his inhaler for 6 years now. The youngest starts coughing every fall and uses the nebulizer when needed but usually after a week of treatments he gets a lot better and doesn't need it for a while.
I know this is long but just wanted to let you know that in our case it seemed that theirs was probably allergy related due to the different areas we lived in and some states were worse for them than others. Carpets can also aggrevate it as it seemed the apartments we lived in with carpet he coughed more.
Most of the time they will grow out of it in time but some kids can grow out of it by age 2 or 3 and others will actually have asthma and have it all their lives. Most of the kids I know that had the problems as babies grew out of it by age 3-5. Our oldest son was around 9 but was a lot better by age 2 and didn't cough but during fall and spring. I think the different climates were the issue with him. We were blessed that he was never fussy with it. It was just sad to hear him coughing all the time but he was a very happy baby.
S.D. answers from St. Louis on October 03, 2008
When my son was 7 mos old he got the flu and then it went into bronchiolitis. He had to have Pulmicort every 12 hours and Albuterol every 4 hours for about a week and a half. It was terrifying and exhausting! The doctor told me he was too sick to be in the hospital. She was concerned his immune system couldn't handle any additional germs. After that episode he has not had any additional problems. He is almost 15 mos. old now. If you are truly concerned I would get a second opinion. When children are this young they're unable to tell us what's wrong and perhaps it should be addressed. He was never put on Singulair. Good luck!
L.K. answers from Kansas City on October 03, 2008
L.,
I'm right there with you with my two youngest (3-1/2 & 1-1/2). We finally decided to take our 3-1/2 year old to an allergiest who also handles asthma. He actually gave us several different options with her medication and breathing treatments. They seem to be helping alot more. We go Tuesday for actual allergy testing to determine exactly what is causing her issues. She's been suffering like this for two years off and on.
My 1-1/2 year old has just started having a lot of issues. So he may be going to the allergiest next. I'm not sure where you located but our allergiest is Dr. Michael L. and he is great out in Lees Summit. Our entire family has used him (mom's, brother's, myself, husband, & kids).
C.W. answers from Kansas City on October 03, 2008
I would keep up with the treatments but I would make an appointment with an allergy specialist or a pulmonologist. Usually the way to diagnose bronchiolitis is by an X-ray and with they type of sputum your child produces. If this is what it is there is a good chance that your child will grow out of it when she gets older as her airways get bigger. Moms tend to know when there is something wrong with thier child and sometimes the doctor is right but if you have a strong feeling it is something else I would get a second opinion right away. A second opinion never hurts and it will make you feel better. I had an ER doctor one time tell me my son has bronchiolitis and he had croup instead so he gave my son the wrong treatment. I took my son to his regular doctor and got the right medication later. Follow your instincts with this one and although coughing can last with what your daughter has it can also be something else. Did they just give her pulmicort or did they give her albuterol or xopenex as well? Sometimes getting a treatment with pulmicort alone can cause more coughing.
F.M. answers from Kansas City on October 03, 2008
We have been through this just recently. If the meds aren't working, it isn't asthma, and you need to get her to a pulmonologist. He could have a rare vascular ring like my son did (although she is a little older than the typical diagnostic timeline), or cystic fibrosis, etc. Do you have any CF people in your family? Anyone that dealt with this type of thing even back to great great aunts? That may reveal something to you. A CT scan would be in order. It may take a few months to get over the bronchiolitis, but asthma isn't caused by having it. They give asthma meds because that is the same treatment for bronchiolitis. My baby was hospitalized for 2 days for it, and got better from the meds in 2 weeks, but then got bad again, and did have something else that caused the meds to stop working. HTH
M.C. answers from Kansas City on October 03, 2008
Hi L.,
My son went through a similar spell when he was just under a year old, I don't remember the exact diagnosis, but it sounds about the same. We did breathing treatments 3 times a day for quite a while. He did grow out of it and is a very healthy and active 11 year old. Just hang in there!
M. C
K.W. answers from St. Louis on October 03, 2008
I agree that it could be allergies or asthma...however, if your gut is telling you that it is something else, be persistent or change doctors. My daughter who is 2 &1/2 now, experienced the same thing about the time she was one. She had been ill, and then the cough would not go away. I had her to the doctor and they kept insisting there was nothing there. Finally I asked for a chest x-ray and they complied. Turns out she had pneumonia. My doctor and nurse practioner apologized profusely. Turns out that sometimes pneumonia cannot be heard in little ones. She was treated with antibiotics and was better in about a week. Six weeks later it happened again. This time they did not hesitate to get an x-ray. She had a new case of pneumonia. I took her to a pulminologist who diagnosed her with asthma and we did the Pulmocort and Singulair and 6 months later there were no signs of asthma or anything. I believe she has seasonal allergies. My doc told me some kids just really struggle with that first year. If you are in the St. Louis Area, Dr. John Spivey at St. John's hospital is an awesome Pulminologist. He had childhood asthma and understand what the kids go thru. Good luck to you, and it sounds like you are doing a very good job.
S.B. answers from Springfield on October 03, 2008
My middle son had chronic croup as a baby as well. We spent many nights walking in the cold or standing in or by the shower to open his airways. Asthma and allergies run in my family so I coud believe what the Dr. was telling us; however, my son has now been fully diagnosed with asthma but is medically maintained. He took several meds for a few years and we just recently backed him off of. He still takes allergy meds as he is allergic to all trees, grasses and pollens. Going to an allergist to find out the triggers can be very helpful. Knowing he is allergic to all things out doors we now make sure he showers welll when he comes in at night to help get rid of the allergens. The coughing has mostly gone away, he doesn't use his rescue enhaler and hasn't had any asthma ER visits. If you manage it well your child can live a perfectly "normal" life. My son is a healthy, happy outdoor loving 4th grader.
Good luck and God bless
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