Anyone Else Out There W Multiple Sclerosis?

My SIL was diagnosed over 10 yrs ago. She is managing very well with medication. VERY expensive medication. I know one of her meds is over $1,000 per month. Thank God for her insurance. When she got the diagnosis, she quit her job and went to school. She had been a nail tech and there was a rumor that the chemicals could've been a contributing factor. SO, the state picked up the tab on her schooling under vocational rehab. Now, 10 years later she is strong and healthy at 48 yrs old. All functions are good and I can't see any decline at all. Sure, she has had her ups and downs. She went through a wierd time where she was allergic to everything under the sun- even the sun. But that passed. She woke up blind one morning due to pressure on an optical nerve, but that was corrected with medication. She has completed her Bachelors and Masters degrees and is now a speech patholigist. She would never have made that change if not for the diagnosis. So, a silver lining for her. I expect her to have a long full life full of grandchildren. I know you will manage as well. Love and strength to you.

I'm glad you are doing so well. My step-father has MS. He wasn't diagnosed until he was 50, which I understand is pretty late for a diagnosis. He is on Avonex and muscle relaxers. He walks with a walker with someone guiding him, and sometimes uses a wheelchair. His situation is complicated because last spring he had an accident, and he is now completely blind. He tries to exercise and stretch each day, and that seems to help. Fatigue is a big issue for him, as well.

I hope you continue to do well. I get magazines and newsletters from the MS society, and research sounds hopeful. Good luck to you.

Hi - I was diagnosed 2 years ago. I don't know if you've heard of it but there is new research showing MS is linked with poor blood flow due to narrowed veins that then affects the myelin. (you can search under CCSVI treatment). I had angioplasty for this and they found a 90%blockage in one of my veins (azygos) which led to the place on my spine where most of my lesions were. Since the procedure (which was no big deal), I have stopped taking avonex, have not had any relapses and my fatigue is totally gone. I am a huge proponent of this and hope that everyone with MS is at least reading up on this. Lots of reputable hospitals are doing clinical trials on this now. There is an excellent facebook page where you can contact others who have had this procedure. I feel very blessed to have found this in the early stages of my progression. Good Luck to you. I know the fatigue can be especially overwhelming when you have little kids!

Search the question data base ad you'll find nearly a question a week or every other week or so that is about MS. My frined has it and I have referred lots of these questions to her and she made the comment that she is basically copying and pasting her previous answers over and over again.

By searching you will also be able to make friends with others who are living through this disease.

Hi, I also have MS. Am 27 and was diagnosed at 17. Have done Avonex, Rebif, Methotrexate, and Novantone and right now I take Cellcept, solumedrol every other month and baclofen. I have to use a walker to get around the house and wheelchair when going out to the mall or somewhere there might be a lot of walking. So the problems it gives me are walking issues, blind out of my right eye from optic neuritis, and bladder issues.

My DH has MS. He was diagnosed about 10 year ago (39 now) and he takes muscle relaxents and pain meds. He gets numbness of his face & vision loss, but from what I understand (which is little) he has a mild case or form of it. I know stress and sleep deprivation really affect him and his symptoms.