K.M. asks from Las Vegas, NV on January 12, 2008
Anyone Else Dealt with Torticollis?
I have 6 month old twin girls and one of my girls has torticollis. She started physical therapy when she was 3 months old, twice a week. Her physical therapist is wonderful but has not given me any idea of how long she will be in physical therapy. Does anyone else have/had any children w/ torticollis? I thought therapy would only be a couple months. Anyone have any idea how long a child is typically in physical therapy for torticollis. My daughter is still not turning her head as well as I had hoped by now either, which is a little disheartening. Thanks in advance everyone.
R.C. answers from Las Vegas on January 14, 2008
My son had torticollis. We were taught to do the PT on him at home and we did it for about 5 months.
R.K. answers from Grand Junction on January 14, 2008
I agree with the chiropractor advice. I get this every once in a while. It is so very painful and crippling. I am usually better with one or two adjustments. Look for one that treats children and infants. ((HUGS))
V.H. answers from Phoenix on January 14, 2008
My 4 yr old had it when he was born and was in PT ffrom 2 months to 14 months. No signs of it now. My second son who is now 7 months had a small case if it when he was born but I had been seeing a Chiropractor for a year and I asked him to adjust him and now he shows no sign. I am thankful for my Chiro!! You should look into it. I can give you his name and number if you would like. Just email me!!
M.T. answers from Albuquerque on January 15, 2008
Hi girl! I have never met anyone else that even know what torticollis is! My daughter, who is now 5, had it as a baby. We took her to physical therapy one time. The therapist informed me, everything she was doing with her I could do at home. She had us laying the baby on her back and dangling toys to make her look the uncomfortable direction. She also encouraged me to nurse as much as possible on the side that make her look that way. I am not telling you to stop taking her to therapy, but you might just ask if it is totally necessary. As my little girl grew and developed and began crawling and walking the problem disapeared. Hope this helps!
By the way, congrats on the babies! You sound like a great mama to all 3!
M.L. answers from Phoenix on January 14, 2008
My son has torticollis on the left side. We noticed when he was 2 months old that he was favoring his right side and would pretty much only turn to the right. At his 4 month checkup his pediatrician recommended physical therapy. We started at 5 months (that's how long it took to get an appt). At the first appointment, it was encouraging since we had already started trying to force him to look to the left. At his second session, his physical therapist was encouraged by how much he was turning to the left - he had full rotation. We just force him to look to the left by holding out toys and we use his big brother as a good distraction for him since he loves looking at his big brother :) I also think the massages we gave him worked really well. If you want the number for our physical therapist, please let me know. She is wonderful with babies and my son really took to her :) It will get better, it just takes some time :)
A.O. answers from Denver on January 14, 2008
I havent had a child with torticollis but I have had it and let me tell you it is not fun. With intensive therapy, massage and chiropractic it took me a couple of weeks to recover. I am not sure if it is different in children than adults but I would highly recommend adding massage therapy and chiropractic to the physical therapy. Dr Spresser, in Arvada ###-###-####) is a great chiropractor and very good with children and infants and would give you good suggestions on a massage therapist that could help as well to loosen those muscles. Good luck!
C.S. answers from Las Vegas on January 14, 2008
My son had torticollis when he was a baby - and my husband is a physical therapist, so I didn't ever actually take him to the clinic for therapy. I think it had pretty much disappeared by the time he could sit up on his own, which was about 6 or 7 months. Has the PT told you the things you should be doing at home? i.e, lots of tummy time - she won't like it, but it really works; also, to roll up a small towel or blanket and when she is in her car seat, swing, or on her back, place the roll against her head on the side that she favors so that it will keep her head straight. One other suggestion is to lay her down facing away from you (so you're on her weak side) and then try to get her attention, so she'll have to turn her head towards you.
I hope that helps, and good luck with your three little ones!
M.C. answers from Albany on January 14, 2008
I have two friends with different experiences. One has a daughter who was in therapy for around 8 years. Another friend has a boy who was in therapy for 18months. I think the length varies widely depending on your specific circumstance and other factors.
D.S. answers from Albuquerque on January 14, 2008
My daughter also had torticollis with a mishaped head. I took her to a specialist who just gave us some excercises to do with her. I also took her to a Chiropractor and I worked on putting her in her crib so that the side she couldn't turn to would be toward the outside (where I stood) and not the wall. Babies have a tendancy to want to turn away from looking at a wall. After about 3 or 4 months, her head started to round out and her head no longer tilted. I don't know what kind of doctor you have her going to, but you may want to try a chiropractor. It worked for my daughter.
M.M. answers from Albuquerque on January 16, 2008
The length of time spent in PT or OT (as we had both) will depend on the severity of the problem (my son's was minor, whereas some kid's head sits on their shoulder). Also, the length will depend on how often your child is seen. My son had active therapy for about 4 months and then has had a monthly check-in for another 5 and he has just been discharged. Most of the time it comes down to the stretches. They have shown that most of the time Torticollis is curable by PT, however, in severe cases surgery may be needed to loosen up the damaged tissue. Also, if he has any flattening of the head that may be your next issue. My son's is resolving itself and I've had doctors that were both for and against helmets. If there is any flattening it becomes an issue if/when it may distort the location of things within the head which can affect facial features, etc. I looked at the helmet as a last resort. Be strong, do exercises..learn the stretches to do with your little girl and a little baby massage is a good thing too. Depending on where you go there may be someone there that can teach you infant massage. Good Luck!
B.R. answers from Denver on January 15, 2008
My son had torticollis. We did some PT at Children's and then we just kept it up at home. I spent my time putting him on one side, speaking into one ear, rattling toys on one side, etc. for a couple of months. It did resolve with some work. I would bring everything up with your pediatrician again if you still have concerns. It may not hurt to get a second opinion either.