15 answers

Any Other Options You Have Tried for a Toddler's Very Severe Asthma?

I am writing this in hopes to have any and all suggestions and personal experiences sent my way! My little guy who is now 3 years old has been battling asthma/allergies since he was 6 months old. He has been on every nebulized medication (xopenex, albuterol, pulmicort, etc.), every inhaler (albuterol, advair, symbicort), every allergy med (zyrtec, nasonex, veramyst) plus orapred (prednisone) and countless antibiotics (to treat sinus infections, ear infections, etc) too many times to count. We even did a prophylactic antibiotic through this Winter in an attempt to avoid sinus infections, and I'm not sure it helped him at all. He has his second set of ear tubes and already had his adenoids removed. He is scheduled to have a bronch and cilia biopsy in a few weeks to see if there is a possible anatomical cause (narrowing or obstruction of airway possibly) to all of this. CT scans have been normal as are x-rays, genetic tests (for CF), and immunology workups (all normal). His symptoms (spastic cough and wheeze....more that he wheezes with the cough) are ONLY present when he is sick (viral respiratory illness or sinus infection), which is a lot. He is maxed out on medications and I really hate having him on so much that we all know can also be harmful to such a small growing body. I just want him to be better and not have to do nebs and steroids and antibiotics all the time. I just ordered a bunch of books on amazon on the subject and am anxiously awaiting any other help I can get. Does anyone have a pediatric allergist/pulmonologist/ENT they are in love with and willing to recommend? We see the specialtists at CHKD for all of these, and am wondering if anyone has a particular dr. they would recommend for a second opinion in the VA Beach/Norfolk area? Has anyone tried homeopathic/natural/holistic approaches to treating asthma in a toddler? If so, what were they and did they work? Do you know of any doctors that are open to this or incorporate it in their scope of practice? Any success stories? I'm feeling pretty overwhelmed right now and trapped with lack of better options besides simply continuing on the road of too many medications.... I am open to anything at this point, so please help!! Even if your child has grown out of such severe asthma and is medication-free now, I'd love it if you would share that with me as well, to know there is hope!

Thanks so much for taking the time to read this post and hopefully we can get the much needed help for our little guy!

I will add that we are very proactive at home....change the Hepa air filters monthly, have Hepa air cleaners throughout the house, no one smokes anywhere near or around my house or children, we don't eat in smoking restaurants, etc. Their toiletries are ALL organic/safe/chemical-free, etc. The only thing I DON'T do and am switching to now, is 'green' cleaners for the house. I'm getting rid of dishwasher detergent, laundry detergent, clorox stuff, lysol wipes, etc. and replacing with a fantastic 'green' line of products. His allergies are only environmental, which include dust mites, animal dander, and some grasses/trees. We have the allergen protector cases on all pillows, mattresses, etc. I may take him to a neuropathic doc. at the recommendation of the mamasource folks! Thanks again!

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A.,

I am sorry you are having to go through all this....My thoughts and prayers are with you and your family. One thing I would check is to make sure there isn't something in the house (combined with the normal cold) that causes his symptoms. For instance mold, roach dander, etc. I am guessing you might be living in base housing or an older home. You can get home tests for mold etc. I would test for radon in your home too. Meanwhile make sure your heat isn't too high especially when he is sick and keep up your research. One thing that helped me when my kids are sick (silent reflux--not sure what is causing it, we might be on our way to some answers)...is journaling their symptoms, what they did that day, ate that day, etc.

Hang in there!
R.

Hi, A. - Poor little guy! Good luck to you. I hope you get lots of helpful responses. My friend had 3 asthmatic sons. She switched all of her household and personal care products to "green" products, and her sons have not used inhalers in 3 years. She'd be happy to speak with you, I'm sure, as she has made it her mission to help other families avoid what she was going through. Let me know if you'd like more info. Best wishes, N.

I'm not sure where you are located, but we have a pediatric ENT/allergist (specializes in both) at I am totally in love with. He actually listened more than he talked. He's a leader in the area in research as well as treatment. He is located in Rockville, MD. Email me at ____@____.com if you'd like his name. Good luck, I know how terrible it is to have a sick kid that you can't seem to get the treatment right!

Hi A.,

So sorry to hear about your little one. I can only imagine how frustrating it must be for all of you. I would definitely recommend finding a homeopathic doctor to help you find a natural regimen. Some things that you might try now are eliminating all toxic cleaning substances from your home. Water and vinegar do a great job on the housework and there are tons of all natural soaps, shampoos, laundry soaps etc available now. The whole family would need to get on board as far as hair & laundry go. My daughter doesn't have asthma but she was sick the entire winter and the her doctor had run out of options for us. I bought some probiotics at Whole Foods and have been giving her one dose a day. The results have been remarkable. Her runny nose cleared up within two days, her cough is almost gone, her sleep returned to normal, her disposition improved and her appetite increased. Amazing. Probiotics (in case you aren't familiar with them) are good bacteria like the kind you find in yogurt. The theory is that since our immune system functions at its best when our gut is populated with healthy bacteria, the more healthy bacteria you put in your system, the better. I just started taking some probiotics myself. I can't speak highly enough of them. As others have posted, an elimination diet might also be useful. A good naturopath or homeopath will be able to guide you through that process. Chiropractic and accupuncture are also wonderful tools for keeping the body's systems in good working order. Best of luck to you and your little boy.

I know it's a long shot, but have you tested to make sure that he is not Vitamin D deficient. One of the leading causes of autoimmune issues is D deficiency.

You might check.

M.

Ask your doctor about Singulair. My 8 yo son was diagnosed with allergy induced asthma at 2 and we had a hard time too - March, july and November were horrible for us unitl he started taking Singulair every day and 2 puffs of Pulmicort inhaler at night and he does great now - still has an occasionally flare up but nothing like it was. Good Luck! B.

I think it is time to try a natural approach to your sons asthma. All those drugs and antibiotics have damaging side effects. Asthma is an allergy symptom. It is much more prevalent in the past 10 years than ever before. I believe this is due to our air pollution and too many chemicals in our environment. To avoid sinus infections take your son off ALL dairy products. They are mucus forming and create an environment for bacteria to grow. Also dairy is the number one food allergy because cows are fed so many chemicals. His health may greatly improve with this one step. Give him daily vitamin C and acidophilus ( the friendly bacteria to replace what he has lost from all the antibiotics.) If the colon loses this friendly bacteria, it weakens one's immune system and puts one in a vicious cycle of illness and drugs. Go to the Vitamin Shoppe or a health food store. Echinacea is a good herb to take to strengthen the immune system. AF

Hi A.,

I hope you find solutions on this board. I recommend that you get rid of all chemicals in your home. Salt, baking soda and vinegar is basically all you need to clean with. If you have carpet, consider getting rid of it. If you have anything that could possible collect dust, put it in a closed container - that includes books, loose papers, fabric, etc. Clean all of your furniture either with a steamer or vacumm with a HEPA filter (gets rid of 98% of particles). Use a HEPA filter on your heating/air conditioning system. Place a HEPA filter on your air vents. Do not use brooms to sweep with as it stirs up dust. Use a damp mop.

Wash linens in hot water once per week. Cover mattress and pillows with a protector to keep dust mites to a minimum. If you have animals remove them from the home.

Mold may be an issue since you live near water. Consider having an enviromental inspector come to your home to test your air for mold spores. If you see anything black spots or water damage anywhere, have it repaired. After you shower or use the tub, wipe down the wet surfaces instead of letting it air dry. This will help reduce mold growth.

Try using a Neti pot to clean his nasal passages. It's uncomfortable and he may not let you do it. It certainly helps me. See if Hyland hayfever, a natural product, will help clear up allergy symptoms.

I wish you well. If you need anymore environemental info, please email via mamasource.

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