Allergy Frustration

Updated on January 04, 2010
S.S. asks from La Grange, IL
23 answers

We have known that my 16 m.o son is allergic to cow's milk and goat's milk for several months. He breaks out in a rash when he comes in contact with them. He has not had this reaction when given soy. We finally did the blood test to see what other allergies he might have and found that he is also slightly allergic to SOY!
Now what am I supposed to feed him? He never has liked the soy milk to drink, but soy yogurt has been the one big thing that I could rely on for some nutritional value (protein and calcium). I am so frustrated! He is pretty picky...does not eat veggies well either. What can I give this kid? We also tried every flavor of rice milk too.
Also, is it true that by exposing him to soy I am lessening the chance of him growing out of this allergy?
Help!
Thanks.

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So What Happened?

Thanks for all the great responses. I have lots of research to do. Thanks for giving me places to start.
I really appreciate it!

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D.T.

answers from Chicago on

at his age, you could still rely on infant formulas, but there are also alternative milk products ( rice dream is just one).....it will be tricky to find "processed" foods that do not contain dairy by-products but they are available. As for "treats" look for baked goods marked "parve". Good luck.

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D.R.

answers from Chicago on

if he isn't allergic to nuts you can try almond milk. The vanilla is really pretty good and even tastes good with cereal. Good luck!

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A.B.

answers from Chicago on

The Midwestallergyrelief.com is by Ian Wahl isn't it? Did you get any better by going to him? We went there and after spending $500 we stopped because the process seemed to be endless with lots of allergens to be treated (including my daughter's own digestive juices etc.) Right after that my daughter had a bad ear infection. I would like to know if somebody did actually go through the entire treatment and is free of allergies now.

Somebody has recommended Dr. Oberg to me. He follows Dr. Doris Rapp's protocol and is a proper MD that takes insurance. The appointment is after two months. If interested, his number is ###-###-####.

Regards,
A.

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J.J.

answers from Chicago on

This resource has more about what not to do, rather than what to do, but I hope that it might be somewhat useful to you...

http://www.askdrsears.com/html/0/T000100.asp#T031004

Here is some additional info...

http://www.askdrsears.com/faq/fit8.asp

http://www.kellymom.com/nutrition/milk/infant-formula.htm...

http://www.llli.org/NB/NBMayJun00p87.html

http://www.askdrsears.com/html/3/t030800.asp

This page has a list of articles regarding how to feed toddlers with food allergies (bottom of page)...

http://www.kellymom.com/babyconcerns/food-sensitivity.html

If you would want to relactate and go back to breastfeeding, here is some info about that...

http://www.llli.org/NB/NBrelactation.html

Or perhaps you could look into buying some breastmilk from a milk bank?

http://www.hmbana.org/
http://www.nationalmilkbank.org/

Best wishes,
J.

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J.M.

answers from Chicago on

Have you tried real yogurt? Dannon vanilla,(not the ones with food starch or gelatin) My mom can't handle milk, but Yogurt is ok, because the way it is broken down and the the active culture is good for your tummy. Best wishes. I hope this helps.

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J.O.

answers from Chicago on

My daughter has an egg allergy that was diagnosed at around 14 months. The blood test revealed that the allergy was significant enough to warrant an epi-pen (on the borderline between stage 2 and 3). Before we had her tested she she was able to tolerate baked goods with egg in it without significant problems; consequently her allergist said to go ahead and allow her to have baked goods with egg but limit her exposure to pure egg or things with high concentration of egg (mayo, custard, etc.)
Anyway, my point is that we just had her retested after a year and her level of reaction went down. She is either outgrowing the allergy or has built up a tolerance to it. In her case exposure has actually allowed her to tolerate it better.
What is your son's reaction when he has soy? My daughter's allergist said as long as she is not having a severe reaction (she only gets very mild diarreha, if that) then go ahead and let her have foods with egg in it. I am no medical professional but, I would say if your son is not have a very severe or distressing reaction to soy then go ahead and let him have it. If you don't want to do that, you could try potato milk. I would take your son to an allergist (if you haven't already) and get their advice. Dr. Story at Children's Memorial in Chicago is really good that's who my daughter sees. Good luck I know it is frustrating!!!

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B.W.

answers from Chicago on

I see someone had responded with the many other milks to try. Please check out the following website:

http://www.midwestallergyrelief.com/index.htm

This man will cure allergies permanently. He uses what the have been using in Europe for years. In europe, they do not deal with herbs or allergy shots to deal with allergies. They simply go to the cause and that is an imbalance. His work is amazing and you will be so thankful. It is better than NAET treatment, if you have heard of that. If you have any other further questions, please let me know as I have been going to him for awhile with many many allergies.......

Good luck to you!
B.

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J.D.

answers from Chicago on

Hi S. From I been told after a child is a year old they don't need to drink milk. But continue to give him Soy products. And puree his veggie into his food. Also check with his pediatrican for a solution and an allergist. Also try Pedisure it has plenty of nutritional value for children.

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R.S.

answers from Chicago on

Hi S.,

I would recommend rice milk (fortified with calcium). My daughter likes to eat the coconut-based non-dairy yogurts (soy free) made by So Delicious. They sell them at Whole Foods (but I've seen them at my Jewel, too). They don't have the same protein level (it's virtually none), but they are fortified with calcium. I recently read that at this age (my daughter is a few months older than your son) getting enough calories and nutrients is more important than protein. My doctor always asks about calcium (we don't do dairy), so make sure to watch that and to give your son a variety of foods, but I wouldn't worry to much. If you're lucky, he'll outgrow his allergies, and if not, they are developing new foods every day for people just like him.

All the best,
R.

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J.D.

answers from Chicago on

If he's tolerating soy, he may not be allergic. Are you seeing a ped allergist? Did they combine his history with blood and skin tests? All 3 need to be considered

we see allergists at children's memorial - but in glenview annex
1800kids-doc
dr. jennifer kim

i highly recommend www.kidswithfoodallergies.org
support, resources, recipe database etc - FANTASTIC!

we add hypoallergenic calcium powder and vitamin powder to dd's food
kirkmanlabs.com

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L.P.

answers from Chicago on

I would stop giving soy for all the same reasons the other people wrote about. My girls are allergic to dairy, soy, peanuts, tree nuts and gluten. We give them enriched rice milk. They also get an numerous supplements. Good luck !

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J.F.

answers from Chicago on

Hey S.,
My son has similar issues and it was recommended to me to put him on a pro-biotic. We use the renew life brand and since he's 4 we do the flora bear cheawables. I believe you can get them in a liquid though. Just go to Whole Foods and ask.
I was told also that people who suffer from food allergies have what is called leaky gut. This means that there are spaces in their intestines and digestive track that are permeable and when certain foods are consumed they leak through the track and into the blood stream causing an allergic reaction. I was told that if I wanted my son's allergies to get better, I had to heal his gut.
We've been working on this by doing the probiotics as well as keeping his diet as healthy as possible. This means for us- limiting sugar (even the more sugary fruits), lots of organic veggies, minimal animal proteins (for a bit because digesting animal proteins is more taxing on the body than veggies- leaving less energy for the body to work on healing itself).
We have also been on and off the Body Ecology Diet which is more of a lifestyle than a diet, but has helped tons. If you're interested check out www.bodyecology.com and join the bedrock messageboard. The messasgeboard is full of knowlegable mom's who support each other as they work hard to heal both their children and themselves of all kinds of physical ailments.
You can give your son raw milk and butter, but get him on a pro-biotic for a few weeks first! I made mine for a while with the help of the mom's on the bedrock site. The probiotic can be made with kefir starter packets purchased from the body ecology site and young coconut water. You would have to find an asian store (whole foods has them, too but a bit more expensive), that sells Young Coconuts. They are not the regular brown hairy ones, but are white and look like a little house- flat on the bottom and come to a point at the top. If you go to the BE site all the directions are there- and you'll be amazed at how much easier this is than it sounds if you opt to go this route! You can always use the store bought pro-biotics, but I believe if you make it yourself it is alot more potent. Just be sure to do the probiotic for a few days/week before you start the raw butter.

I'm not sure where you are in Chicago, but here are a list of co-op farms that you can get raw butter and milk from. Chicago area: Raw milk products (milk, cream, butter) are now available through a cow share program managed by Richard Hebron of Family Farms Cooperative. Please e-mail Richard at ____@____.com or call ###-###-#### for more details. Deliveries are made once every four weeks to Aurora, West Dundee, Forest Park, Highland Park, Edgewater, DesPlaines, and Schaumburg. More details available here: www.mercola.com/forms/raw_milk_cow_sharing.htm

Chicago area: Fresh From the Farm Cooperative, Sheri Giachetto ____@____.com , ###-###-####. Provide local, organic, farm-sourced raw dairy, meats, and produce. Began in May 2001 as a result of the family’s pursuit for high quality food directly from the farmer/producer. They have assembled an array of foods from various providers which include organic, grass fed beef, pork, pastured chickens, pastured eggs, raw milk, cream, and other raw dairy products. Raw honey and bee pollen is also available as well as organic produce in the summer months, all from local, independent, organic farmers. They provide these foods fresh on a weekly basis (Weds pickup) from their southwest suburban home, and currently serve over 120 families from all areas of the Chicago metro. They continue to welcome new families to their cooperative and are happy to answer any questions you may have. They continue to search for the highest quality products at the most reasonable prices for their members as well as their own use.

Chicagoland Area: Richard and Kelly Boge and Family. Glen Ellyn, IL. ###-###-####(cell) or ###-###-#### (home). Starting cow share/co-op. High quality raw dairy products available. Cow on site. Will deliver no rBST, all natural high quality raw dairy products to local areas or can pick up at our house. Please have own containers. Call or email with any questions or to start ordering. ____@____.com

Chicago Northwest Suburban area: Natures Juice Co-Op, LLC., ____@____.com , ###-###-####. A private club that provides Organic, grass fed raw dairy products packaged in glass. Offering Raw Milk, Butter, Cream, Yogurt, Cheese, Fertile-soy free-free range eggs, Fresh organic Coconut cream, plus much more. Weekly pick up. All products are hormone, antibiotic and pesticide free, 100% RAW the way God created it to be.

Chicagoland/Wheaton/Naperville: MooGrass Farms inc. says Mooove over Organic we are 100% grass fed. www.moograssfarms.com located in Wheaton with Thursday pick up and Chicago area delivery available soon. They are a private club offering Raw milk, Eggs, Grass fed & finished beef, Seasonal produce and Much Much more. See our web site for more information or call 1-888-COW-5789 fax 1-888-269-5789 email: ____@____.com.
I hope this helps!
blessings,
J.

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N.F.

answers from Chicago on

Look into siliacks(think thats how its spelled) disorder. If that is the case your child may need to have a glutten free diet period. My sister was diagnosed at 2 with that disorder, but for 2 years we had no idea why she was always throwing up milk or dairy or just about anything that she ate. She is now 9 and has grown out of most of the allergy, but she still has food allergies that trigger her asthma. Honestly at 16 months a child does not know what they do or do not like because they are still learning but if it is something that makes them sick then thats different. Right now you are on a mission to figure out what food allergies your child may or may not have and how it may affect them and your family long term. So look into siliacks disorder because it is not something that is common and most doctors will not even suggest it. A child can grow out of it and they may not, but its better to explore all possible options. Good luck!!

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C.J.

answers from Chicago on

I'm with a company called Shaklee and we have been able to help a lot of people with this frustration. There are many different things we can try and they are all milk free. I could not possible talk about them all in a e-mail. If you are interested e-mail me at ____@____.com. I would love to talk with you about a meal plan.

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J.A.

answers from Chicago on

I know that some mom's have had success giving raw milk to their kids despite the allergy and their kids have tolerated it well. Sometimes the children just have an allergy to the processed milk (goat and cow). It is very hard to find in IL, but just an idea.
Good Luck.

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T.L.

answers from Chicago on

YES! giving him an allergen is only going to stress his immune system out even more causing him to get ill more and most likely develop more allergies. Also soy is really not very good for you(do some research). Their are a TON of other milks out there...coconut, almond and my favorite HEMP! go to Whole foods and explore. You may have to start out with the sweetened version and then wean him down to the unsweetened. Also you dont need milk to get your calcium intake? just give him a supplement and lots of high calcium foods. They also make cocnut milk yogurt which is FANTASTIC!!!!! Good luck and I have no issues feeding my child a dairy free soy free and gluten free diet by choice...just have to make sure you have lots of food ready and with you.

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S.X.

answers from Chicago on

my son was allergic to soy and to cow milk.
we did rice milk
black strap molasses in oatmeal
we did soy yogurt even though allergy, wasn't bad...

it took him until 3 to grow out of it.
he was also allergic to eggs.
you can cook w/rice milk too : )
and vegan butter
any ?s let me know

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B.B.

answers from Chicago on

Try unsweetend almond milk or rice milk they both have about the same nurtrients as cows milk.

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G.S.

answers from Chicago on

I feel your pain. I have a 9 year old who is allergic to nuts, peanuts, and soy and a 3 year old allergic to nuts, peanuts, eggs, and yellow-jackets. They make sunflower seed butter. (we were doing soy since he first wasn't allergic to it--so was doing soy butter--now he is allergic to soy. Soy is in everything so I avoid the full soy products and accept he will have ezima from it. My allergist said he has never heard of anyone dying from soy exposure). As for outgrowing soy I don't know. But since it is in everything (crackers, cereals, chewing gum, etc. ) I doubt he will. Don't know if I was helpful but just know you are not alone.

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A.S.

answers from Chicago on

Green veggies are one of the best source of calcium and legumes are a great source of protein.

I know you said that he is picky, but most kids are. It can take 10-15 times of introducing your child to the same veggie before they acquire the taste. My daughter hated green peppers and red peppers until she was 26 months old. now she loves them. Keep trying to introduce them, and one day he'll surprise you and eat it!

You may want to check out vegan cookbooks and websites. Although you are not raising your child vegan, they talk about different ways to get protein and calcium that are not reliant upon animal products.

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S.C.

answers from Chicago on

My 5 year old suffers from atopic dermatitis as well. And her allergy tests came back with a lot of positives. The first allergist we went to didn't explain that those who suffer from atopic dermatitis can often get false positives. Your childs skins can be causing the antibody like response (I hope I am getting this right). If wheat touches my daughters skin, for example, she will have a rash reaction to it. BUT she can eat it and not have a reaction at all.

2 websites can really help you navigate these issues

foodallergy.org http://www.foodallergy.org/default.htm

and the national eczema association
http://www.nationaleczema.org/

Best of luck -

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E.A.

answers from Chicago on

Is this Allergy, intolerance, sensativity? It makes a big difference on how you address which foods to give him. also you didn't say he has problems with nuts - have you tried Almond milk. None of my three girls could toelrate cows milk before 2 years-ish and none of them drank a milk substitute. Also i agree with the person who says not to give soy. not necessarily from an alelrgen standpoint but simply b/c it's the msot genetically modified food on the plantet and many new studies are coming out about the link to estrogen increasing as a result of soy sonsumptions. People always point to the Asian cultures for soy use. But in reality (especially in earlier time periods) they NEVER consumed soy in the quanitity that American's are today. It's in EVERYTHING. Unless you live a very whole foods lifestyle - you'll turn over most dry goods products and find it staring at you. We don't buy any foods with soy in them. If they eat it is't an edemame here or a piece of tofu in stir fry there....so a few times per year *maybe*

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V.R.

answers from Chicago on

I have been dealing with the same thing. I give my son orange juice that is calcium fortified and 1/2 multi-vitamin with iron and calcium. There are several other alternatives for getting fat intake. I am still giving him breast milk and alternating with grain milk fortified with calcium also. My son did not like rice milk (there is not a lot of fat in it) or almond milk. I hope this helps. I did a lot of research to find something that would give him the fat and calcium. I had hoped to stop pumping but I don't care at this point as long as he gets what he needs.

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