4 answers

Age of Febrile Seizure

I too am having a hard time my twin daughter had a seizure at age 5 I think it was sometime between april and june she was at he babysitters and no one was sure what happened because she was sleeping they thought she was dreaming and then she sat up vomited and pee'd herself. Of course the next was was when I was in the hospital recovereing from surgery so I couldnt bethere for her again this happened in august. Luckily my mom and husband were there, my mom said she had complainedof the back of her neck hurting for about 6 hours before she seized but because her and her twin were funning and jumping in the house she just thought she turned it wrong or bumped her head because she would still play so it was like itwas just an ache. Later that night at supper she kept putting her head on my moms shoulder like she was tired andthen I guess her eyes got big and she stared at my mom like she was terrified and had a seizure. They took her straight to ther er the staff did some tests and said she had a fever and told us they believed it was a febrile seizure. She hasnt had any more yet she had an eeg done recently and they said it looked clear, now we are scheduled to go to a childrens hospital to make sure this is all that it is and nothing is being missed. I'm worried because when doing all my research they say that children rarely have start havingthem after the age of 6 she will be 6 in November so I wantto know if any ofthe other children had them this late in age, thanks R.

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I sorry ma!
I would think anything is possible. It may not be normal, but a big fever could happen anytime. Im not too familiar with epilispy, but my sister had a grand Mal seizure when we were 5 and with the whole twin thing, I knew she didn't feel good. She told my mom her cheek hurt all day then had a seizure that night and stopped breathing. Like your baby all the tests were normal everytime. She was put on phenabarbatol but we are now almost 33 and she has never had another one. If your not comfortable don't stop! Get 2 ns, 3 rd even 4 th opinions. Good luck love.

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I'm so sorry you are all going through this. It sounds like you need a referral to a doctor who specializes in child epilepsy. Because that is what this sounds like.

Please ask your doctor for a referral. Don't wait.

Good luck, Mama,
D.

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One set of our twin grandsons had febrile seizures and they started much younger and stopped, or so it seems now, when they were about 2 1/2 or a bit younger. They do get high fevers sometimes now but not as often and no more seizures. We were told by Children's Mercy and other hospitals, etc., that the febrile seizures should end by age 5 and if not then they need to see someone for epilepsy or further testing. I would think it was not febrile at this point but then again you need a doctor to tell you that and check her out with testing. I would get that done soon to put your mind at rest and from guessing what is wrong.

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Hi R. -

I'm so sorry you have to go through this. My oldest daughter had them. She had her first one when she was approx. 9 months old and I swear it was one of the scariest things I ever went through. She had about 5-6 of them and her last one she was around 3 or so I believe. They were horrible. Even to this day, her body can not handle the adjustment in her body temperature. As soon as I can tell she is starting not to feel well and trust me you know, I give her Motrin right away. When she was younger, I had the routine down. She would get THE look. I would immediately get Motrin and Tylenol in her, get her a freeze pop and throw her in a cool bath. I would do anything to get her temperature down.

Good luck - it does get easier. It's awful to say but I got used to them.

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