D.Y. asks from Las Vegas, NV on July 04, 2009
Adhd - Las Vegas,NV
Hello Moms!
I am looking for resources, and online organizations for ADHD. I have a few on hand and have done some research, but looking for others I may not know about. My son was diagnosed with this after pushing for 2 years. Looking for help in parenting with this and organizations/resources that will help me when I have my meeting with the school for the IEP, and 504. He started on meds after rying everything else, diet, classroom changes counseling, etc, Medicaid will not cover natural medicine. He is on adderall, 5 mg 3x a day. Thanks ahead of time for the suggestions.
1 mom found this helpful
So What Happened?™
The responses are overwhelming and encouraging. I appreciate everyone's input and will take each one and try til we find what works. The 504 meeting went well(we had favor!) and things are in place for next school year. Out track request was granted and agreed with by principal of the school and they are going to find a teacher who will be best suited for him. I will keep you all informed as the school year progresses.
thanks again soooooo much!!
Featured Answers
V.C. answers from San Diego on July 05, 2009
there is a really good book about ADD & ADHD called "Healing ADD" by Dr. Amen. He isn't just about 1 approach to this issue, he has several & he has done a lot of research on this & has 3 children of his own with ADHD, so he has LIVED it, which makes him that much MORE an expert in my opinion. I also subscribe to an ADHD on-line magazine which is very helpful, has a lot of articles about dealing with life & ADHD. good luck
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K.J. answers from Los Angeles on July 05, 2009
D.,
This is the resource my friends have told me to go to. It seems pretty helpful. http://www.chadd.org/ My son is currently on Concerta with no negative side effects at all. He's a wonderfully bright child and I'm seeing his creativity finally coming out now that he's better able to focus. Without the medication, I'm not sure I EVER would have seen this side of my child. He's happy, we're happy. Medication for this illness really gets a bad wrap, probably because it's overused in the wrong situations. But for those who need it, it's a life saver. I don't feel I'm forcing my child to fit in with society. I feel I'm giving him a chance to meet his full potential. Good luck to you!
1 mom found this helpful
S.M. answers from Los Angeles on July 05, 2009
D.,
Check out http://www.chadd.org/.
This is an online website that may be helpful to you.
Also I have used cafemom.com and then join a group named ADHD and us or loving a child with ADD. These groups have a lot of moms that can answer your questions and offer your online support. It has been a Godsend for me. Drive to Distraction is a good book to read. It will give you an understanding of ADD/ADHD. It may also give you some ideas of how to deal with it. Good Luck!
1 mom found this helpful
D.L. answers from Reno on July 06, 2009
Hi, D..
My stepson had the same issue and we did all the same things you've tried. We are in Reno and the doctor my son had is Burton Dudding (P: ###-###-####). He specializes in ADHD. His office should be able to give you resources and support, maybe a specialized referral in LV. His wife, Georgia Dudding, a psychiatrist, was a godsend in helping our family deal with the issues that go along with an ADHD child. It was well worth going to get this support; people who don't have a truly ADHD child don't understand what its like. My advice: you know your son better than anyone else, trust your instincts.
Anyway, good luck. If you need any encouragement, feel free to email me.
(PS - one thing that was easier for my son was being on a time-release medication so that he didn't have to take it at school.)
V.C. answers from San Diego on July 05, 2009
there is a really good book about ADD & ADHD called "Healing ADD" by Dr. Amen. He isn't just about 1 approach to this issue, he has several & he has done a lot of research on this & has 3 children of his own with ADHD, so he has LIVED it, which makes him that much MORE an expert in my opinion. I also subscribe to an ADHD on-line magazine which is very helpful, has a lot of articles about dealing with life & ADHD. good luck
A.S. answers from Los Angeles on July 05, 2009
Oh no.. your little one was diagnosed at two years old. He is only two and I believe he is at the age where he needs to explore freely of course with supervision. He is at a stage where he wants to have control of his body movemetns and his enviroment. He is tasting and testing...i mean testing boundaries. I believe a child should be very active at this age to develop his fine and gross motor skills age appropiatley. It is part of his development. It is better for him to be active then just sit there and have symptoms of delay, with all do respect to mothers with children who have developmental delays. You might want to get a second opinion, ask yourself if you are too tired and feel you need help with his "leanred behavior," or perhaps he may be different from your other children. I honestly thhnk he is way too Y. for medication. You know like a quick fix. I have worked with children for over eight years and have seen many chidlren with different personalities, behaviors, etc. and have also observed different parenting skills due to (cutlure and beliefs, illnesses that may affect parenting skills, many stressors in the family, parents age, finance issues and more) that make parents perceive their children to have "something wrong." Revaluate everthing: are you too tired due to all your kids, was he planned to be born, how do you feel about yourself (low self-estteem,) happy in marrige, sometimes we make hold so much and feel or little ones have something because we are not stable. Maybe try some redirecting techniques to reteach him posivite skills you would like to teach. good luck. and by the way this bulleting really caught my eye..
S.B. answers from Los Angeles on July 05, 2009
Hi D.!
Here is a really great resource. This is a guy who has found help for ADD & ADHD. He has a unique viewpoint on what ADD is and how to handle it. Very cool.
Also, I know others are really trying to help but I just wanted to point out that both CHADD and webmd are funded by the drug companies. CHADD really pushes drugs as the only solution.
Good luck D.!
S.
R.J. answers from San Diego on July 06, 2009
Ugh. I'm so very very sorry about the vast majority of responses that you've gotten, especially after you specifically stated a) that there's no way you can do the super-expensive "natural" route, b)listed off the vast amount of work you're already doing. & C)made it quite clear that you're looking for ADHD resources, not alternative treatments . Most people mean well, but this disorder is so overdiagnosed/overmedicated/over-written about (by people who have no understanding/people selling snake-shoes. etc.) that even intelligent, well meaning people, THINK they know what they're talking about and don't.
Obviously, if it can be fixed (by food, massage, vitamins, sleep, chiropractors, eliminating allergies, etc)...it wasn't ADHD to begin with, but something else entirey. Which of course is one of the many reasons WHY it's so over diagnosed, is because the symptoms of the pitfalls (not the benefits, or the norms) can be caused by many many many other things.
You say you've spent 2 years working this out (which, quite frankly, seems to be the norm for people who really DO have ADHD), with (I'm assuming) your eight year old. Which is sooooo lucky. The pitfalls are brought out by an educationa system that coud have been designed to bring out every thing bad about ADHD (there's tons that's wonderful, but let's face it, there's at least half as much 'bang your head on the wall to keep from going crazy' bad. People with ADHD are frequently brilliant, but we have no internal sense of structure, and have to create external structure. Which most of the popuation, apparantly doesn't.
Anyhow, I say you're lucky, or rather your son is...because it's been caught early, and it sounds like you've not only done a very thorough job evaluating but are continuing to do a fantastic job by him. I think it was Barbilee who brought up how many incrediably brilliant, world renowned people in history have been shown to have had ADHD, and there are thousands more...just not as famous ;) but still doing fantastic work (the absent minded professor is the dead giveaway, but we're also talking scientists, CEO's, authors, athletes, photographers, etc. etc. etc.) What she doesn't go on to point out is that most of those very famous cases were NOT schooled in our schooling system...but had private tutors. Which is as about ideal for ADHD as you can get. The modern schooling equivilent is YOU...kids who had an amazing, understanding parent, or kids who got very very lucky with their teachers. Most very successful ADHD adults had at LEAST one inspirational force in their life.
Moving along, to your actual question:
- Chadd, obviously.
- "You mean I'm not lazy, stupid, or crazy?" by Kate Kelly and Peggy Ramundo http://www.amazon.com/You-Mean-Lazy-Stupid-Crazy/dp/07432...
This book gets ignored by many parents...since it's nominally about ADULTS, but it's the single best resource I know of. I actually threw this book across the living room (ahem, more than once, and I LOVE books and never treat them that way), because I was so furious/heartbroken/regretful that it hadn't been around when I was a child, that my mum had never been able to read it. Many kids do the "my parents don't understand me" thing. ADHD kids usually don't. They ASSUME their parents understand them, and are baffled at the reactions that would tell any right thinking person that they don't. Over and over and over again. We (as a group) tend to follow this semi-logical thought "Anyone who really loves me, knows and understands me, who & how I am, and they love me for it. For being me. My parents love me more than anyone. Therefore my parents should understand me better than anyone." I've run into this time and time again with others that I know that are ADHD. For some reason, we tend to get kind of stubborn about "logic".;) But then, you're probably already familar with ADHD logic. Ahem. And tangents, like this one.
http://www.hoagiesgifted.org/
- Many, if not most, ADHD kids fall quite neatly into the "gifted" range. One thing an ADHD kid will nearly always bring home on their report cards (okay 2 things) 1. Is not reaching potential, & 2. Does not consistantly, or regularly turn in homework. We are aware of nearly everything, all the time, and as a consequence tend to soak up information, theories, applications, etc. rather like sponges. And yet, following simple instructions...not our strong suit. Nor is the concept of "practicing" something you already "understand". One of the single best tricks with ADHD is to challenge us. Absorb our attention into something mesmerizing and then have to pry us away with a crowbar. Getting ADHD kids into gifted programs / AP programs can do wonders. Similarly, a lot of the problems that parents of ADHD kids face are the same problems that parents of non-ADHD gifted kids face. Lots of overlapping. And it's a real blessing, to be working with a group of people who AREN'T just fighting the downsides...who aren't just focused on this one teensy aspect of their child...but the whole child.
Hoagie's Gifted has tons and tons and tons of resources/links/articles/etc. Check them out. They are very very much worth it.
- My last three "resources" are tips that you'll probably come across time and time again:
* Sports (of whatever kind your son loves, from teams to swiming, to running/climbing/rowing/martial arts/dance, whatever.) When our bodies are moving our minds are still. When our minds are moving our bodies are still.
* Music or other background noise. For us, it creates a still, calm space that let's us get reeeeaally productive. I could explain it, but it would take awhile.
* Small muscle movements. (Girls usually figure this one out waaaaay sooner than boys). Wiggling your toes inside you shoes, or pointing/flexing them, flexing a single muscle group (like quad, glute, abs, keigles, facial muscles, etc...keeps your body still while you're actually moving a LOT).
Anyhow...hope some or any of this might have been new. Good luck, and have fun!! The benefits way outweigh the drawbacks. Sigh, if only ALL of us could afford maids though, it would make it a great deal easier on those who live with us.
L.R. answers from Las Vegas on July 05, 2009
My grandson who is 11 was diagnosed ADHD at age 5. I would like to give you something I did and it worked. I recommend to all parents of ADHD children, to do this. I read an article in the paper about this kid in high school (CA) who had ADHD at 5 and what strugglest he went thru. I bought this book 2 years ago. After reading it I asked the teacher to read it. It is called "ADHD and Me". It established a better learning environment with the teacher and my son. She could better understand him when he needed extra help and be refocused. I also recommend that it might be something you, your husband and your son might read it.
When you go for your IEP take the book and give it to the resource teacher to give to his new teacher.
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