D.B. asks from Sumter, SC on March 03, 2008
6 Year Old with ADD and Dyslexia
Let me start with some back round. I found out recently that my daughter has ADD and dyslexia. We have suspected the dyslexia for years now, but could never get the school to test her. We finally got her in with a private practice and got her diagnosed. She is on focalin XR 5mg and strattera 25mg. Those are for the ADD and an "anxiety disorder" (her self esteem is pretty low) She makes a lot of "everyone is smarter then me" type comments. She is also left handed and in the "advanced dyslexic" group. She was first given an IQ test and tested above average, but her reading, math, and memory scores are very low do to her disabilities. Okay, now the question is are there any mothers out there who have experienced the same or a similar problem? We are just getting all the meetings started with the school. We have started to get a good routine going at home with her as far as the ADD goes but not many people have any advise for the dyslexia. Does anyone know any good games or study tactics that help with dyslexia? What should I ask the school for? (She's in 1st grade and scared to death she wont make it to 2nd) Are there any parent groups/organizations for dyslexia that actually help? Really, any suggestions you all may have would be greatly appreciated!
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A.H. answers from Spartanburg on March 04, 2008
Hi, I recommend taking a look at two sites....Schwab Learning.org and Davis Dyslexia learning. Ihaven't bought the book by Davis, so i really can't recommend it but it might help. I homeschool my dyslexic son. I have found that repetition cannot be stressed enough. he has poor memory recall.
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D.D. answers from Atlanta on March 04, 2008
Talk to the Schenck School in Atlanta or another private school that specializes in dyslexia. Ask them for referrals to educational specialists who have expertise in that area. Having her in the right school will do wonders for her self esteem. Also, just personally, I've never heard of anyone on both focalin and strattera at the same time since they're both ADD meds, neither is for anxiety as far as I know. You may want to do online and find chat rooms for parents of kids with these issues, also there is an organization called CHADD for parents of kids who have ADD. Good luck! D. D.
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S.W. answers from Atlanta on March 04, 2008
Hi D.,
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2 moms found this helpful
M.H. answers from Columbia on March 04, 2008
Family Connection is a group of parents and families that provide support to families that have members with disabilities. Call them, they can set you up with a support parent and other support resources.
http://www.familyconnectionsc.org/
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C.D. answers from Myrtle Beach on March 03, 2008
My daughter doesn't have dyslexia, but she does have ADHD and used to suffer from anxiety. Chances are that the low self-esteem is making the dyslexia worse. I found a really good book that I used in addition to counseling. The book title is: How to Develop Self-Esteem in Your Child: 6 Vital Ingredients, written by Bettie B. Youngs Ph.D, Ed. D. It's an older book, but a lot of the tips and advice are still very relevant. I can tell you from personal experience that getting that anxiety and self esteem issue under control will pave the way to dealing with the rest. And the advantage to using a counselor is that they are likely to have a lot of valuable advice that would be more appropriately tailored to your daughter's individual needs. Chances are, the school can make one available to you as part of her educational plan. Good luck to both of you! Hang in there.
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A.H. answers from Atlanta on March 04, 2008
Try Brain Balance in Peachtree City. I know a lot of parents that had great results using their program. One of my friends had a 10 year old that started the program not being able to read much because of the dyslexia, but after doing the program reads all the time now. If you want more information I am sure my friend would talk to you about it, just let me know.
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K.M. answers from Sumter on March 04, 2008
Dear D.:
Everyone here has wonderful answers to you question, but no one addressed the "WHY" your child has these disorders to begin with. I too have a daughter with ADD and she was on numerous medications and nothing helped her. The side effects seemed to make her worse at times. Then I did some research on how chemicals in our everyday products can cause ADD and ADHD. I found out about Formaldehyde that is in so mnay of our products as a perservative, under trade names of course, like Q15. It is used in toothpaste, baby shampoo, soaps and many other everyday products that we use on our children and ourselves.
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K.M. answers from Atlanta on March 04, 2008
Check into the Skank school. They are dedicated to dyslexia and as far as I know it is imperative to help them now. The Skank school is very expensive, but they have all kinds of financial aid. Hope this helps.
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S.P. answers from Atlanta on March 03, 2008
Don't know your location or anything, but some neighbors of our switched their son to The Schenk School (http://www.schenck.org/)for dyslexia and it's really made a difference for him.
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E.T. answers from Atlanta on March 04, 2008
You daughter will need an IEP (Individualized Education Plan) If she is in a public school, they are required by law (I think its called the "no child left behind" law)to provide special services..i.e. tutoring, smaller classes, an aide to help her in the class, etc. If they can not provide these services they are required to pay the tuition, including busing, to a private school that can. My nephew has dislexia and an anxiety disorder and depression as a result. He was also recently diagnosed with ADD and is also on Focalin. He lives in a small town that was ill equipped to handle his needs and for the past 2 years they have been forking over 35K a year to send him to a private school that can. He is now 12 and has made vast improvements. They're goal is to move him back to the public school system eventually. Whether of not this is the route you choose to go, you will need a good ed advocate to go to school meetings with you. You can ask your doctor to refer you to one. They know how and what to ask for. They do cost money but it is so worth it in the long run.
I am also a parent of a child with disabilities, I know how hard it can be to watch your little one struggle and sometimes you will have to be her champion and fight for her. Hang in there. Its good that you are looking for a support group for parents of children with similar issues. If nothing else you can get great tips for handling certain situations or network to obtain services your child may need. Ask her doctor, phsychiatrist, or psychologist to refer you to one.
Good luck.
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