May 02, 2009,
A.K. asks from Pleasant Hill, CA on April 30, 2009
2 Year Old Daughter Just Diagnosed with "Vesicoureteral Reflux"
My daughter had a UTI that became a kidney infection. Her doctor has us go in for a renal ultrasound and a VCUG. The renal ultrasound showed that one of her kidneys is small, and the VCUG showed she has vesicoureteral reflux, a condition where urine flows backwards from the bladder into the kidneys. We just had the tests done today, and the radiologist said she would give our doctor the report, and our doctor would give us more detailed info. But in the meantime I would like to hear from others who have been through this with their children. Was your child put on long-term antibiotics? Was surgery necessary, or did it resolve itself as your child got older? If it did resolve itself, how old was your child? Or just any other info you would like to share. Thanks so much.
2 moms found this helpful
M.H. answers from San Francisco on May 01, 2009
My five year old was diagnosed at 9 months after developing a UTI. We did the VCUG and renal ultrasounds. My hudband's cousin's children all had reflux, so we assumed it was gentic in some way. We chose to put her on antibiotics once daily (keflex). She never had another UTI. She had two more VCUGs and the reflux was gone by the time she was three. She did not have slow kidney growth, though. She recently had them measured again and they are normal.
One thing that our doctors noticed at the end of her case was that they never changed her Keflex dose in three years. The nephrologist never adjusted it and it didn't occur to us. So her dose from being 15 pounds to a 30 pounds was 5mm. It was likely not having much effect anyway. I think if our youngest showed signs we would have her diagnosed, but consider skipping the antibiotics and just be very aware of UTI symptoms. She seems to be immuned to Keflex now which can be frustrating.
D.D. answers from San Francisco on May 01, 2009
My son Joseph was born with hydronephrosis of his left kidney which was discovered on my 22 week ultrasound. He was given a low-dose antibiotic from birth and had two surgeries for reimplantation of his left ureter before the age of two. He is now ten years old and although his left kidney only functions at 18% the right one makes up for it and he is an active, healthy little boy. I would be happy to talk to you more about your daughter's diagnosis and our experience if you would like to contact me. My name is D., I am also a SAHM and Joseph has a younger sibling Rowan aged four. You can email me at ____@____.com or call me on ###-###-####. I will be out and about most of today, but at home this evening. I know it's very difficult, but please try not to worry.
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J.I. answers from San Francisco on May 01, 2009
My son was diagnosed with reflux at 4 mos old after having a UTI. He had stage 4 reflux on both sides and was treated at Stanford University Urology dept with low dose antibiotics for infection prevention. He never had another UTI. We had quarterly ultrasounds to make sure the kidneys were not damaged, and when we went for his first annual VCUG, we were told that his reflux was completely gone and that we had to do no follow-up. We were shocked and thrilled that it went away so quickly.
G.B. answers from San Francisco on May 02, 2009
My 3 yr old was also diagnosed with kidney infection (pylonephritis). What you need to know is that this disease is a serious bacterial infection that needs to be treated with extended (1 -2 months)antibiotics and/or also INTRAVENIOUS antibiotics. Children that are not put on an extended course of IV ABX can get arthritis down the line.
My daughter is now 12, has been suffering with Arthritis type pain since 4 yrs old, starting in a knee and progressing to her hips and back. She was treated by a regular family pedi instead of a specialist. Truthfully, microbiologists are the ones who really study and understand bacterias and what happens with them in the body. I think the closest thing to them , for a doc who understands mycoplasmas and cell wall deficient bacerias, is a Lyme disease specialist.
What you can do,and what I would do if I knew now what I didnt know then, is to push hard for What you need. If the doc won't give you IV ABX for at least a month, I would use SAMENTO (an antibacterial you can find online) 5-8 drops, 4 times a day.
Check this out:
Do not give bubble baths , ever. If the child ever opens up the urethra to urinate in soapy water, the soap, and any bacteria , will go right up into it.
N.P. answers from San Francisco on May 02, 2009
Our daughter also had a UTI that turned into a kidney infection. We went through the same set of tests, which ultimately came out OK..but a friend of mine's daughter is currently going through the same issues after a year of antibiotics the reflux still exists and they are considering the surgery. Many children outgrow the reflux, right? I think it is fairly common-good luck with whatever decision you make.
M.S. answers from Stockton on May 01, 2009
My oldest son (will be 3 then end of may) was found to have an enlarged kidney while I was still pregnant. My Drs. said it is typically a boy issue. He was put on antibotics from the day he was born. He had his first VCUG when he was 5 days old. He was then diagnosed with reflux. He was the worst stage you can be on one side and about a stage 3 on the other. They gave him a year to see if it would correct itself. However, it didn't. At about 13 months he had a surgery called deflux done. It is a noninvasive procedure where they inject a solution into the bladder. They place it at the end of each ureter to block it so the urine can't reflux up into the kidneys. The procedure was effective and he has been off antibiotics ever since! Now we just have to watch for bladder infections. The Dr said it he gets a bladder infection, that means the solution has moved and they would need to do it again.
Good luck! Hopefully you daughters will correct itself.
S.K. answers from San Francisco on May 01, 2009
My daughter was diagnosed with this in both ureters when she was 6 weeks. She had hi-grade reflux on both sides so she did stay on antibiotics - I think the term is propalatic- until she was 23 months and had surgery. The dose was smaller than if she had an active infection. The treatment varies with how bad the reflux is. I have lots of friends whose daughters had Grade 1 or 2 reflux and it resolved itself, no antibiotics were necessary.
I'm also blessed with a brother who is an urologist so I knew my daughter's docs were doing the best plan possible.
My daughter is turning 10 in 3 weeks and has non relux issues, but the surgery was successful, the antibiotics kept her infection free for 2 years and she has no kidney scarring from the reflux.
Hang in there!
V.C. answers from Sacramento on May 01, 2009
My son has the same thing -- he has had it from birth and is now 7 years old. In my son's case, at birth he had so much fluid built up around his kidneys, they had to insert tubes to drain it out. He also had a surgery to correct. His problem that was his ureters were too long and too wide and they did not close off properly at the bladder, which was why the urine could reflux back to the kidneys. He was on antibiotics for a long time, but was taken off in the last year or so. He still has a small degree of reflux, but hasn't had any infections lately, which I am thankful for. If you have specific questions, feel free to E-mail me directly at ____@____.com.